Have any of you had Neuroendocrine involvement found on your pathology report after your RARP? If so, what type of treatment did you receive and how soon post op?
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@billyh, I'm tagging fellow prostate cancer members @zj69 and @chuck53 who also have neuroendocrine prostate cancer (NEPC). I've also included your discussion in the Neuroendocrine Tumors (NETs) support group https://connect.mayoclinic.org/group/neuroendocrine-tumors-nets/
Billy, what treatment plan was recommended for you?
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I am presently in Japan and will be meeting with my oncologist the day after I return to discuss the treatment plan.
We are at a very early stage and not sure of the actual Neuroendocrine involvement. My chromogranin A is 165. At this point, I’m looking for more information in general.
My most recent PSA was
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