Prostate Cancer Support Group

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Comments (793)

Hi. I had metastatic PC show up on my hip around March 25. This was my...

https://connect.mayoclinic.org/comment/1533305/

Discussion: We need others' info on Stage 4 prostate cancer.

Support Group: Prostate Cancer

Posted: Mar 23 7:22am

@jeffmarc thank you. I will ask her why he can’t have that. She made it sound...

https://connect.mayoclinic.org/comment/1481000/

Discussion: Nubeqa (Darolutamide) versus Zytiga versus Estradiol Patches

Support Group: Prostate Cancer

Posted: Jan 12 11:00pm

The drugs you are taking are the best. I’ve had prostate cancer for 16 years, Four...

https://connect.mayoclinic.org/comment/1504440/

Discussion: RARP vs RT plus ADT for Gleason 8 with cribiform and high Decipher

Support Group: Prostate Cancer

Posted: Feb 12 8:56pm

See if you can get Nubeqa. It works all by itself and can really control cancer...

https://connect.mayoclinic.org/comment/1351623/

Discussion: I am 83 years old with a PSA of 6.5. Will have a prostate biopsy soon.

Support Group: Prostate Cancer

Posted: Jul 19, 2025

https://connect.mayoclinic.org/comment/867998/

Discussion: Stage 4 PC Longevity: Anyone have prostate cancer more than 10 years?

Support Group: Prostate Cancer

Posted: May 28, 2023

Hello I am 64, stage 4B, metastatic prostate cancer. I did 1 round of chemo (horrible),...

https://connect.mayoclinic.org/comment/1441910/

Discussion: Weighing the cancer risk reduction & quality-of-life cost of ADT?

Support Group: Prostate Cancer

Posted: Nov 18, 2025

I've had the same question I'm lucky am only 80 miles from Huntsman cancer center. I'm...

https://connect.mayoclinic.org/comment/1133312/

Discussion: Stage 3a, Group 9, just discovered. Dr. gave options but have question

Support Group: Prostate Cancer

Posted: Aug 30, 2024

Diagnosed with 4b last October. PIRADS 5, Gleason 6-9's and 3-7's. Age 69. My oncologist said...

https://connect.mayoclinic.org/comment/1074637/

Discussion: 11 anniversaries since diagnosis of stage 4 prostate cancer

Support Group: Prostate Cancer

Posted: May 25, 2024

@mjp0512 You did have quite a few aggressive issues along with the Gleason nine. Really disappointed...

https://connect.mayoclinic.org/comment/1554481/

Discussion: Rut Roh Rorge - PSA wrong direction

Support Group: Prostate Cancer

Posted: 3 days ago

@ebooneac You could instead use the estradiol patch. The patch studies showed it’s just as effective...

https://connect.mayoclinic.org/comment/1500141/

Discussion: MRI Results

Support Group: Prostate Cancer

Posted: Feb 7 10:39am

I have small little red spots all over my stomach/chest which could either be from Orgovyx...

https://connect.mayoclinic.org/comment/1413259/

Discussion: Orgovyx Allergic Reaction

Support Group: Prostate Cancer

Posted: Oct 11, 2025

I will stop my six months of Orgovyx and Nubeqa next week. Also had 5 sessions...

https://connect.mayoclinic.org/comment/1395614/

Discussion: Orgovyx and the timeline for return of normal testosterone level

Support Group: Prostate Cancer

Posted: Sep 17, 2025

At least a dozen people on the weekly advanced prostate cancer Ancan.org group are on it...

https://connect.mayoclinic.org/comment/1360198/

Discussion: Where to take Leuprolide infusion? Arm or stomach?

Support Group: Prostate Cancer

Posted: Jul 30, 2025

My husband has metastatic castrate resistant PC, and it's my understanding that Nubeqa/darolutamide is only approved...

https://connect.mayoclinic.org/comment/1340895/

Discussion: Starting Hormone Therapy

Support Group: Prostate Cancer

Posted: Jul 4, 2025

Hello, Ive been on Orgo and Abi plus 5mg of prednisone for 5 weeks this weekend....

https://connect.mayoclinic.org/comment/1536638/

Discussion: Exercise and abiraterone

Support Group: Prostate Cancer

Posted: Mar 27 12:19pm

@northoftheborder According to AI, this is a very rare side effect of all of the lutamide’s....

https://connect.mayoclinic.org/comment/1481300/

Discussion: Side effects adding XTANDI to ORGOVYX

Support Group: Prostate Cancer

Posted: Jan 13 11:06am

A drug like Nubeqa (Darolutamide) might be what would work. I’m 77 and I’ve been on...

https://connect.mayoclinic.org/comment/1351030/

Discussion: I am 83 years old with a PSA of 6.5. Will have a prostate biopsy soon.

Support Group: Prostate Cancer

Posted: Jul 18, 2025

Good add, @msciulli. Here's more info about darolutamide (Nubeqa) and it's recent (Aug 2022) approval: -...

https://connect.mayoclinic.org/comment/753649/

Discussion: Stage 4 prostate Cancer: Firmagon + Abiraterone?

Support Group: Prostate Cancer

Posted: Sep 25, 2022

I am 2 weeks in on Nubeqa, loving it. I feel great with a twist. My...

https://connect.mayoclinic.org/comment/1355225/

Discussion: Can anyone share their experience with Nubeqa?

Support Group: Prostate Cancer

Posted: Jul 24, 2025

thank you Jeff !! I get way more good info here than from the oncologist group..(...

https://connect.mayoclinic.org/comment/1398413/

Discussion: ok just took on Nubeqa after 2 months Orgovyx

Support Group: Prostate Cancer

Posted: Sep 21, 2025

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