Prostate Cancer Support Group

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For reference, here are related discussions: - Low white blood cell count: Can cancer treatment cause...

https://connect.mayoclinic.org/comment/1215074/

Discussion: Did prostate cancer treatment lower your white cell blood count?

Support Group: Prostate Cancer

Posted: Jan 17, 2025

@jime51 Were you taking Prilosec in the morning? That’s why I switched the Orgovyx to the...

https://connect.mayoclinic.org/comment/1453022/

Discussion: How long do the hot flashes last? Another 3 month Eligard shot today

Support Group: Prostate Cancer

Posted: Dec 4, 2025

5 years? Wow. I've been on Orgovyx 2 1/2 yrs. My doctors want me to come...

https://connect.mayoclinic.org/comment/1342458/

Discussion: Hormone Therapy

Support Group: Prostate Cancer

Posted: Jul 6, 2025

I had 5 photon SBRT treatments and 6 months Orgovyx. I was unfavorable intermediate with one...

https://connect.mayoclinic.org/comment/1037600/

Discussion: How Much Time Between Your Diagnosis to Your Start of Treatment?

Support Group: Prostate Cancer

Posted: Mar 21, 2024

@brianjarvis I was on Orgovyx starting March 26 and had my SBRT treatment in mid-April 2025....

https://connect.mayoclinic.org/comment/1482595/

Discussion: What are the chances that this is just a PSA bounce?

Support Group: Prostate Cancer

Posted: Jan 14 9:07pm

Been on Orgovyx for 7 months and had IMRT in Oct. You're doing more than I...

https://connect.mayoclinic.org/comment/1493352/

Discussion: Preparing for ADT + radiation: What are the do's and don'ts?

Support Group: Prostate Cancer

Posted: Jan 29 11:23am

Have you had blood work to see if you are anemic? That will cause shortness of...

https://connect.mayoclinic.org/comment/1481174/

Discussion: ADT Side Effects: Anyone had increased shortness of breath at rest?

Support Group: Prostate Cancer

Posted: Jan 13 8:47am

I developed severe bilaeral arthritis in my wrists about 3 months into Orgovyx. It has limited...

https://connect.mayoclinic.org/comment/1474135/

Discussion: Relationship between ADT and De Quervain tendonitis, stiff fingers?

Support Group: Prostate Cancer

Posted: Jan 4 9:20am

@jime51 To follow up, both PSA and Testosterone have been undetectable since May which was one...

https://connect.mayoclinic.org/comment/1408942/

Discussion: Orgovyx - asking for advice

Support Group: Prostate Cancer

Posted: Oct 5, 2025

@johnernest Take Orgovyx if you can. The recovery time is fraction of Lupron.

https://connect.mayoclinic.org/comment/1434739/

Discussion: How long do symptoms last after completing ADT?

Support Group: Prostate Cancer

Posted: Nov 9, 2025

If your prescribed Orgovyx for life how does one mange the cost?

https://connect.mayoclinic.org/comment/1224636/

Discussion: Orgovyx as lifelong treatment

Support Group: Prostate Cancer

Posted: Jan 29, 2025

Hi @boniyabes , My radiation oncologist recommended the 18 months of Orgovyx, in line with the...

https://connect.mayoclinic.org/comment/1276223/

Discussion: Proton treatment to prostate and localized node: Anyone else?

Support Group: Prostate Cancer

Posted: Apr 7, 2025

@oldgreenpaint Thank you! He already started taking Calcium Citrate 500 mg twice a day and 1000...

https://connect.mayoclinic.org/comment/1526947/

Discussion: Optimal Duration of Hormone Therapy

Support Group: Prostate Cancer

Posted: Mar 14 4:44pm

Because Orgovyx in USA is a high priced / high profit item Sumitomo Pharma hands out...

https://connect.mayoclinic.org/comment/1522363/

Discussion: After insurance approval, how long did it take to receive Orgovyx?

Support Group: Prostate Cancer

Posted: Mar 8 10:39am

I too have been on Orgovyx for a few months. I have noticed some muscle pains...

https://connect.mayoclinic.org/comment/1532498/

Discussion: Has anyone experienced leg pain while taking Orgovyx?

Support Group: Prostate Cancer

Posted: Mar 22 6:31am

@jeffmarc No other treatment other than Barrigel 02/19/26 for the RT. The Orgovyx side effects have...

https://connect.mayoclinic.org/comment/1526004/

Discussion: Preparing for ADT + radiation: What are the do's and don'ts?

Support Group: Prostate Cancer

Posted: Mar 13 11:26am

What you should look into is using estradiol patches instead of Orgovyx. They just finished the...

https://connect.mayoclinic.org/comment/1237019/

Discussion: Does anyone have experience with Trazodone and prostate cancer?

Support Group: Prostate Cancer

Posted: Feb 14, 2025

SBRT 5Treatment. 4 months on Orgovyx Here's my return timeline new to old Testosterone PSA 551...

https://connect.mayoclinic.org/comment/1214266/

Discussion: Orgovyx and the timeline for return of normal testosterone level

Support Group: Prostate Cancer

Posted: Jan 16, 2025

Did the PSMA PET scan pre-prostatectomy detect any cancer? > If so, what was that SUVMax...

https://connect.mayoclinic.org/comment/1467228/

Discussion: How long have you been on Orgovyx (relugolix)?

Support Group: Prostate Cancer

Posted: Dec 24, 2025

@capatov Did you have your January blood work done already? How was it? You are about...

https://connect.mayoclinic.org/comment/1484215/

Discussion: How long after stopping Orgovyx did you notice a difference?

Support Group: Prostate Cancer

Posted: Jan 16 6:50pm

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