Prostate Cancer Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

2,066 total results

Comments (1,909)

Layman opinion: Stay with the devil you know. I took Orgovyx for 4 mos as part...

https://connect.mayoclinic.org/comment/993634/

Discussion: How long do Lupron side effects last after treatment concludes?

Support Group: Prostate Cancer

Posted: Jan 8, 2024

Apalutamide and Firmagon/Orgovyx in my case (3 years, 3 months). Initially I experienced a lot of...

https://connect.mayoclinic.org/comment/1205556/

Discussion: Anyone taking Apalutamide and Lupron for more than three years

Support Group: Prostate Cancer

Posted: Jan 6 6:32pm

After a RP and removal of additional lymph nodes 4 months later, my PSA was still...

https://connect.mayoclinic.org/comment/1220486/

Discussion: What's your experience with Orgovyx (relugolix)?

Support Group: Prostate Cancer

Posted: Jan 24 10:05am

I just started ORGOVYX for less than week. Although moderate ethanol consumption may be tolerated I...

https://connect.mayoclinic.org/comment/1263988/

Discussion: Got some answers for stage 4 prostate cancer

Support Group: Prostate Cancer

Posted: Mar 22 9:48am

So everyone on Medicare or Advantage plan is paying $8000 a yr to take Orgovyx? That's...

https://connect.mayoclinic.org/comment/1027407/

Discussion: What's your experience with Orgovyx (relugolix)?

Support Group: Prostate Cancer

Posted: Mar 4, 2024

What about Orgovyx? No shots, side effects minimal if you exercise and eat right. ADT (hormones)...

https://connect.mayoclinic.org/comment/1222466/

Discussion: My Gleason score is 7 - 3+4. How long can I live without treatment?

Support Group: Prostate Cancer

Posted: Jan 26 4:21pm

The cancer center pharmacy dispensed my first month's supply of ADT Orgovyx this past Wednesday. My...

https://connect.mayoclinic.org/comment/1269723/

Discussion: What's a safe Wait-Time from date of biopsy to start of RT or RP?

Support Group: Prostate Cancer

Posted: Mar 29 11:49pm

I have Medicare with an Advantage Plan. Orgovyx is not a covered drug for me. For...

https://connect.mayoclinic.org/comment/1271831/

Discussion: Orgovyx as lifelong treatment

Support Group: Prostate Cancer

Posted: Apr 1 1:17pm

No. The only indication was a “tiny” (my urologist’s words) break in the capsule. But margins,...

https://connect.mayoclinic.org/comment/1283448/

Discussion: Lifting weights while on ADT: hitting a wall?

Support Group: Prostate Cancer

Posted: Apr 16 3:01pm

I was on Orgovyx for two full years, started with my salvage radiation treatment. For the...

https://connect.mayoclinic.org/comment/1313027/

Discussion: Anyone take a Treatment Holiday? Intermittent use of ADT (hormone Tx)

Support Group: Prostate Cancer

Posted: May 26 6:32am

It seems like a lot of guys have a testosterone bounce when stopping Orgovyx, then it...

https://connect.mayoclinic.org/comment/1214488/

Discussion: Orgovyx and the timeline for return of normal testosterone level

Support Group: Prostate Cancer

Posted: Jan 16 2:49pm

Thanks for sharing your experience. I am doing 6 months adt and will switch to Orgovyx...

https://connect.mayoclinic.org/comment/1240539/

Discussion: Starting Orgovyx - how long for side effects to occur?

Support Group: Prostate Cancer

Posted: Feb 19 9:00am

I was on Orgovyx for 4 months prior to my HIFU procedure. It took about 2...

https://connect.mayoclinic.org/comment/1189824/

Discussion: Withdrawal from orgovyx: How long will fatigue and hot flashes last?

Support Group: Prostate Cancer

Posted: Dec 13, 2024

I started ORGOVYX on April 1st. I am paying $520/Month copay. Not bad compared to $3,000/month...

https://connect.mayoclinic.org/comment/1057064/

Discussion: What's your experience with Orgovyx (relugolix)?

Support Group: Prostate Cancer

Posted: Apr 25, 2024

I was turned down for Orgovyx and within 2 days got approval on an appeal. Nurse...

https://connect.mayoclinic.org/comment/1073791/

Discussion: Hot flashes, fatigue 4 months after radiation and Orgovyx

Support Group: Prostate Cancer

Posted: May 24, 2024

Hi Jeff, glad you’re doing well. I just started taking Abiraterone in conjunction with Orgovyx, I...

https://connect.mayoclinic.org/comment/1332219/

Discussion: Switching from Orgovyx to Bicalutamide

Support Group: Prostate Cancer

Posted: 16 hours ago

Orgovyx Has hidden your active cancer behind a drug that stops it from growing and may...

https://connect.mayoclinic.org/comment/1316469/

Discussion: 4 Weeks on Orgovyx and PSA Undectable

Support Group: Prostate Cancer

Posted: May 30 10:50am

Good luck. Hope your side effects no worse than mine. 10months orgovyx /zytiga dependably undectable psa...

https://connect.mayoclinic.org/comment/975687/

Discussion: Let's get it started: My journey with SBRT (radiation)

Support Group: Prostate Cancer

Posted: Dec 6, 2023

That is encouraging! I'm assuming that your ADT was/is ORGOVYX? How is it to have no...

https://connect.mayoclinic.org/comment/1097594/

Discussion: Can I Manage Testosterone w/ ORGOVYX and Skip Radiation?

Support Group: Prostate Cancer

Posted: Jul 1, 2024

I'm 76 and have been on Orgovyx for 9 months. I get the hot flashes and...

https://connect.mayoclinic.org/comment/1138850/

Discussion: Orgovyx extreme fatigue side effects

Support Group: Prostate Cancer

Posted: Sep 9, 2024

Aging Well

11498

1 second ago

Bladder Cancer

621

33 minutes ago

Men's Health

4479

48 minutes ago

Osteoporosis & Bone Health

10315

50 minutes ago

Visiting Mayo Clinic

5557

1 hour ago