Prostate Cancer Support Group

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Comments (1,095)

I am one 4+3, one 3+3 (some cribiform atypia) , Decipher .84, PSMA PET confined to...

https://connect.mayoclinic.org/comment/994431/

Discussion: Knowing ASAP if with recurrence - Your Thoughts, Please!

Support Group: Prostate Cancer

Posted: Jan 9 12:05pm

Local Hospital has the True Beam Rad machine, It seems to have multiple functions. Orgovyx web...

https://connect.mayoclinic.org/comment/974596/

Discussion: SBRT vs. Robot-assisted radical prostatectomy

Support Group: Prostate Cancer

Posted: Dec 3, 2023

1) My cancer has yet to metastasize. 2) And orgovyx is obviously working. 3) And flomax...

https://connect.mayoclinic.org/comment/1125067/

Discussion: ADT/ ORGOVYX Day 45; Told Radiation Is Next

Support Group: Prostate Cancer

Posted: Aug 16 6:30pm

I have completed i week on Orgovyx. No side effects yet. perhaps your radiologist is concerned...

https://connect.mayoclinic.org/comment/612467/

Discussion: Hot Flashes and Hormonal Therapy for Prostate Cancer

Support Group: Prostate Cancer

Posted: Jun 29, 2021

It has worked for me BUT be careful if you've never used it before. Start with...

https://connect.mayoclinic.org/comment/1177018/

Discussion: Does cannabis help anyone experiencing pain from radiation?

Support Group: Prostate Cancer

Posted: Nov 20 3:16pm

My RO's name is Albert Attia, Mayo Clinic Jacksonville, FL. As an update, my Decipher score...

https://connect.mayoclinic.org/comment/890697/

Discussion: What's your experience with Orgovyx (relugolix)?

Support Group: Prostate Cancer

Posted: Jul 5, 2023

A search for “Eligard sleep problems” will confirm your problem is not unique. Also true with...

https://connect.mayoclinic.org/comment/1140581/

Discussion: Poor sleep on Eligard?

Support Group: Prostate Cancer

Posted: Sep 12 5:05pm

Thank you for responding. Hope you do very well and are able to avoid additional tx....

https://connect.mayoclinic.org/comment/799741/

Discussion: Has anyone had the PSMA-PET scan? Was cancer found?

Support Group: Prostate Cancer

Posted: Jan 21, 2023

Good results from Orgovyx so far. Side effects not as bad as Lupron injections. 2nd time...

https://connect.mayoclinic.org/comment/917006/

Discussion: What's your experience with Orgovyx (relugolix)?

Support Group: Prostate Cancer

Posted: Aug 22, 2023

Hi. I was diagnosed gleason 10 2 years ago. I had 45 radiation treatments and was...

https://connect.mayoclinic.org/comment/1019741/

Discussion: Mayo Clinic Dr to guide conversation on treatment options

Support Group: Prostate Cancer

Posted: Feb 21 9:42am

Thank you for the reply and glad to hear you are not having any issues. You...

https://connect.mayoclinic.org/comment/889459/

Discussion: MRIdian Viewray Experience

Support Group: Prostate Cancer

Posted: Jul 3, 2023

Great chart (and lots of data). I'm hoping mine looks something like that after 10 years....

https://connect.mayoclinic.org/comment/1077367/

Discussion: Share your test results (if you'd like)

Support Group: Prostate Cancer

Posted: May 29 5:14pm

I wanted radical prostatectomy thinking it could get rid of my prostate, my chronic prostatitis, and...

https://connect.mayoclinic.org/comment/1157183/

Discussion: Treatment Decision - Radical Prostatectomy versus Radiation Therapy

Support Group: Prostate Cancer

Posted: Oct 14 8:42pm

I have been subscribed Orgovyx for my prostate cancer but I have heard some bad side...

https://connect.mayoclinic.org/comment/818456/

Discussion: What's your experience with Orgovyx (relugolix)?

Support Group: Prostate Cancer

Posted: Feb 27, 2023

I can't get past your "horrible side effects". I am 18 days post SBRT and on...

https://connect.mayoclinic.org/comment/997154/

Discussion: My Gleason score is 7 - 3+4. How long can I live without treatment?

Support Group: Prostate Cancer

Posted: Jan 14 1:00pm

I'm about two months in on Orgovyx and have dealt with the hunger issue. I'm a...

https://connect.mayoclinic.org/comment/1150182/

Discussion: Anyone on Orgovyx have a raging appetite?

Support Group: Prostate Cancer

Posted: Oct 1 9:38am

It was announced at one of the recent conferences that staying on ADT, Zytiga or one...

https://connect.mayoclinic.org/comment/1174360/

Discussion: Castration resistant PC CRPC -Neuroendocrine PC linked 2 ADT ?

Support Group: Prostate Cancer

Posted: Nov 16 9:18am

Yes stage 4 A to one nodule and SV. Started on Degarelix last month and switching...

https://connect.mayoclinic.org/comment/1101645/

Discussion: Low baseline testostrone and overall survival after treatment

Support Group: Prostate Cancer

Posted: Jul 8 12:08pm

What a journey, impressive, your willingness to undertake the treatment! I just got my labs back...

https://connect.mayoclinic.org/comment/1102160/

Discussion: Time to Castrate Resistance: Anyone remained castrate sensitive 5+ yrs

Support Group: Prostate Cancer

Posted: Jul 9 9:15am

Had not seen this post when I replied to your other post. ADT may be a...

https://connect.mayoclinic.org/comment/959033/

Discussion: Anyone take a Treatment Holiday? Intermittent use of ADT (hormone Tx)

Support Group: Prostate Cancer

Posted: Nov 4, 2023

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