Prostate Cancer Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

1,186 total results

Comments (1,095)

I have been on Orgovyx for 13 months. I go to the gym 3 times a...

https://connect.mayoclinic.org/comment/941002/

Discussion: Post prostatectomy: What do rising PSA levels mean?

Support Group: Prostate Cancer

Posted: Oct 3, 2023

I was 72 when I stared the treatment’s. I took Orgovyx for 12 months and really...

https://connect.mayoclinic.org/comment/1170251/

Discussion: What's your experience with Orgovyx (relugolix)?

Support Group: Prostate Cancer

Posted: Nov 8 3:43pm

I was given a prescription for 6 months Orgovyx just by asking (but I am in...

https://connect.mayoclinic.org/comment/1145320/

Discussion: Testosterone: Is everyone's level in the low numbers?

Support Group: Prostate Cancer

Posted: Sep 22 6:03am

3 years and 2 months, so far, and the hot flushes continue (but they're less frequent...

https://connect.mayoclinic.org/comment/1180438/

Discussion: How long do the hot flashes last? Another 3 month Eligard shot today

Support Group: Prostate Cancer

Posted: Nov 26 4:53pm

This depends on age and luck. The older you are the longer it takes to recover...

https://connect.mayoclinic.org/comment/1156041/

Discussion: Withdrawal from orgovyx: How long will fatigue and hot flashes last?

Support Group: Prostate Cancer

Posted: Oct 12 7:10pm

I took Orgovyx and while "ADT Sucks" , I think from my experience and posts on...

https://connect.mayoclinic.org/comment/1164540/

Discussion: Has anyone else moved from Firmagon to Orgovyx?

Support Group: Prostate Cancer

Posted: Oct 29 9:21am

I had a gleason score 10, 8 out of 12 cores positive. Was put on Orgovyx...

https://connect.mayoclinic.org/comment/959406/

Discussion: IMRT sessions finished now waiting

Support Group: Prostate Cancer

Posted: Nov 5, 2023

My experience with ADT hormone therapy Orgovyx was not that bad. BCR after RP led to...

https://connect.mayoclinic.org/comment/894746/

Discussion: Has anyone done Proton without Hormonal Therapy (ADT)?

Support Group: Prostate Cancer

Posted: Jul 13, 2023

I am on my 11th week of taking Orgovyx. I had similar side effects and my...

https://connect.mayoclinic.org/comment/1099657/

Discussion: Does relugolix (Orgovyx) break the blood brain barrier?

Support Group: Prostate Cancer

Posted: Jul 5 10:19am

The thing the therapist has helped me see the most is that setting expectations and being...

https://connect.mayoclinic.org/comment/1179647/

Discussion: Ready to throw in the towel

Support Group: Prostate Cancer

Posted: Nov 25 8:54am

I have a 4+3 and a 3+3. My Decipher was .84 and that tripped the trigger...

https://connect.mayoclinic.org/comment/989898/

Discussion: Anyone had a decipher test done? Did the results impact treatment?

Support Group: Prostate Cancer

Posted: Jan 1 6:07pm

msciulli, Is there a high copay for ORGOVYX for you? what are the side effects from...

https://connect.mayoclinic.org/comment/1048494/

Discussion: MRIdian Viewray Experience

Support Group: Prostate Cancer

Posted: Apr 10 1:07pm

@rnpalarino1, I merged the 2 discussions together where you asked about restarting Orgovyx should your PSA...

https://connect.mayoclinic.org/comment/1179408/

Discussion: Anyone stopped Orgovyx and started again if PSA rises?

Support Group: Prostate Cancer

Posted: Nov 24 7:11pm

On orgovyx/xytiga 13months psa undectable after 3wks . Testosterone 10. Went to consult Dr Kwon he...

https://connect.mayoclinic.org/comment/1048426/

Discussion: Orgovyx and Zytiga combined

Support Group: Prostate Cancer

Posted: Apr 10 11:21am

It's really weird here with Orgovyx. It's $2,500 a month if you're uninsured. If you're insured...

https://connect.mayoclinic.org/comment/1130897/

Discussion: Puzzled by drug prices

Support Group: Prostate Cancer

Posted: Aug 26 6:28am

Orgovyx is ok for someone that has cardiovascular disease? I have 2 stents placed in 2019....

https://connect.mayoclinic.org/comment/1036157/

Discussion: Recent Orgovyx Validation

Support Group: Prostate Cancer

Posted: Mar 18 8:33pm

Started Orgovyx one month before SBRT. Came off 5 months after SBRT with a 0.05psa. Good...

https://connect.mayoclinic.org/comment/1096085/

Discussion: When to start ADT treatment of 4+3 score?

Support Group: Prostate Cancer

Posted: Jun 29 7:15am

I was on Orgovyx for three months, and never had any of the negative side effects,...

https://connect.mayoclinic.org/comment/1139867/

Discussion: Orgovyx extreme fatigue side effects

Support Group: Prostate Cancer

Posted: Sep 11 11:17am

Under the STAMPEDE protocol the only patients who would take it until resistance are those with...

https://connect.mayoclinic.org/comment/1155959/

Discussion: Side effects of going off of abiraterone

Support Group: Prostate Cancer

Posted: Oct 12 3:38pm

I had 3 months orgovyx and 36 radiation treatments last year for a bcr of .28...

https://connect.mayoclinic.org/comment/696519/

Discussion: Prostate cancer treatment choices

Support Group: Prostate Cancer

Posted: Apr 6, 2022

Aging Well

9041

40 minutes ago

Osteoporosis & Bone Health

7536

2 hours ago

Visiting Mayo Clinic

4636

4 hours ago

Sarcoma

204

9 hours ago

Cancer: Managing Symptoms

3783

11 hours ago