Prostate Cancer Support Group

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Comments (312)

My TULSA procedure was done on 9-11. After having my catheter removed one week post procedure,...

https://connect.mayoclinic.org/comment/1160354/

Discussion: Tulsa Pro Experience, Mayo Clinic MN – July 2024

Support Group: Prostate Cancer

Posted: Oct 21, 2024

Your clinical history would aid in the forum providing you their assessment and feedback. I am...

https://connect.mayoclinic.org/comment/1052260/

Discussion: I want to learn more about ADT

Support Group: Prostate Cancer

Posted: Apr 17, 2024

I am 74, was stage 4 with mets in my pelvis and sacrum. 2 years of...

https://connect.mayoclinic.org/comment/1437538/

Discussion: Anyone had success regaining muscle strength with low testosterone?

Support Group: Prostate Cancer

Posted: Nov 13, 2025

Well, that is the prevailing theory...have PCa, no testosterone.... I can only offer anecdotal data related...

https://connect.mayoclinic.org/comment/1148249/

Discussion: Testosterone Replacement Therapy after RALP

Support Group: Prostate Cancer

Posted: Sep 27, 2024

Valid question, here is video that might be of interest... https://www.urotoday.com/video-lectures/nccn-prostate-cancer-guidelines-review/video/2295-intermittent-vs-continuous-adt-for-patients-a-review-of-the-nccn-guidelines-christopher-wallis-and-zachary-klaassen.html When reading about Orgovyx... Advise...

https://connect.mayoclinic.org/comment/958592/

Discussion: Anyone take a Treatment Holiday? Intermittent use of ADT (hormone Tx)

Support Group: Prostate Cancer

Posted: Nov 3, 2023

I have read some studies relating to low testosterone and aggressive PCa. Keep in mind I...

https://connect.mayoclinic.org/comment/1250092/

Discussion: elimination of testosterone through ADT and aggressive behavior

Support Group: Prostate Cancer

Posted: Mar 4, 2025

I've been on Orgovyx about 4 months. I'm experiencing intermittent fairly severe thigh pain in my...

https://connect.mayoclinic.org/comment/1528284/

Discussion: Has anyone experienced leg pain while taking Orgovyx?

Support Group: Prostate Cancer

Posted: Mar 16 12:03pm

@stephenz, I did intermittent ADT for my Gleason 9 prostate cancer at age 71. So far,...

https://connect.mayoclinic.org/comment/1515705/

Discussion: What are the risks and benefits of Intermittent ADT?

Support Group: Prostate Cancer

Posted: Feb 27 9:52am

Inspiring! From age 25 to 65 my exercise routine was talked about, thought about, and occasionally...

https://connect.mayoclinic.org/comment/1113128/

Discussion: Encouragement for those on ADT

Support Group: Prostate Cancer

Posted: Jul 28, 2024

I am not sure you'll find a definitive answer. You can read through the NCCN guidelines....

https://connect.mayoclinic.org/comment/1025861/

Discussion: When to resume intermittent hormone therapy?

Support Group: Prostate Cancer

Posted: Mar 2, 2024

My situation was almost identical to you except my PSA was 7.1, clear MRI, two positive...

https://connect.mayoclinic.org/comment/1534204/

Discussion: Hormone therapy before radiation treatment question....

Support Group: Prostate Cancer

Posted: Mar 24 9:17am

a layman’s version… …how SBRT (Stereotactic body radiotherapy) works…A bunch of x ray beams are sent...

https://connect.mayoclinic.org/comment/1098355/

Discussion: ADT as a stand alone treatment

Support Group: Prostate Cancer

Posted: Jul 3, 2024

Definitely seek out counsel from your health team, engage in personal research and education, and most...

https://connect.mayoclinic.org/comment/1036138/

Discussion: Stage 4. What are Treatment Options when radiation is not possible?

Support Group: Prostate Cancer

Posted: Mar 18, 2024

@jackpine , The cath I use is made by Convatec Limited. The first address I have...

https://connect.mayoclinic.org/comment/317759/

Discussion: Bladder ureteral obstruction/stricture

Support Group: Men's Health

Posted: Mar 28, 2021

23 January 2014, a day that remains burned into my memory, the call from my urologist...

https://connect.mayoclinic.org/comment/1378790/

Discussion: How Long Since Your Diagnosis?

Support Group: Prostate Cancer

Posted: Aug 25, 2025

Your oncologist is technically correct, eventually..The question is when...? It may be helpful to this group...

https://connect.mayoclinic.org/comment/255759/

Discussion: Living with Prostate Cancer: Meet others & introduce yourself

Support Group: Prostate Cancer

Posted: Jan 13, 2020

I don't know that there is a definitive answer for that... There have been some on...

https://connect.mayoclinic.org/comment/1177942/

Discussion: Who is a good candidate for Intermittent ADT?

Support Group: Prostate Cancer

Posted: Nov 22, 2024

You ask..."Has anyone ever bern able to get off nubeqa or any other treatment medications for...

https://connect.mayoclinic.org/comment/1408091/

Discussion: Anyone been able to get off meds with metastatic prostate cancer?

Support Group: Prostate Cancer

Posted: Oct 4, 2025

I think that sums it up pretty well. Treat too soon or too late... Mono, doublet...

https://connect.mayoclinic.org/comment/844014/

Discussion: Rising PSA years after radical prostatectomy

Support Group: Prostate Cancer

Posted: Apr 16, 2023

Keep in mind there are generally three ways testosterone plays in prostate cancer. First and foremost,...

https://connect.mayoclinic.org/comment/777890/

Discussion: How do you prevent testosterone levels from going up again?

Support Group: Prostate Cancer

Posted: Nov 27, 2022

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