Prostate Cancer Support Group

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Comments (1,251)

I had Gleason 9, Decipher score 0.92. My urologist prescribed 24 months of Elegard in addition...

https://connect.mayoclinic.org/comment/1351702/

Discussion: How long does your oncologist have you on ADT?

Support Group: Prostate Cancer

Posted: Jul 19 12:44pm

I was on ADT (Lupron, Abiraterone) for 3 years. I’ve been off for 10 months. I...

https://connect.mayoclinic.org/comment/1352364/

Discussion: Hormone Treatment Experience

Support Group: Prostate Cancer

Posted: Jul 20 10:56am

Going on ADT is the one thing you can do that will drop your PSA. It...

https://connect.mayoclinic.org/comment/1358530/

Discussion: PSA levels increase. When to be concerned?

Support Group: Prostate Cancer

Posted: Jul 28 1:27pm

Thanks retired boomer, I too have had hand arthritis occur as a result of Lupron ADT...

https://connect.mayoclinic.org/comment/1360539/

Discussion: Arthritis upswing after radiation: Is this common?

Support Group: Prostate Cancer

Posted: Jul 31 8:27am

I was 4 + 3 = 7 with PSA going from 4.0 - 7.1 before treatment....

https://connect.mayoclinic.org/comment/1360694/

Discussion: Gleason 7 (4+3), ECE, PSA 3 – Considering IMRT + ADT vs. Surgery –

Support Group: Prostate Cancer

Posted: Jul 31 11:26am

Yeah, "forever" means either 1. Until they figure out a better approach to long-term stage-4 prostate...

https://connect.mayoclinic.org/comment/1350863/

Discussion: How long does your oncologist have you on ADT?

Support Group: Prostate Cancer

Posted: Jul 18 9:30am

Thank you Rotate for the reply regarding total testosterone (TT) and PSA levels. I agree with...

https://connect.mayoclinic.org/comment/1368530/

Discussion: Anyone here after ADT undergone TRT

Support Group: Prostate Cancer

Posted: Aug 11 4:00pm

A few questions: > isn’t an “8-week regime for EBRT” only 40 days, not 81 days?...

https://connect.mayoclinic.org/comment/1363109/

Discussion: 41-days of salvage RT - your experience with side effects?

Support Group: Prostate Cancer

Posted: Aug 3 7:14pm

You are definitely in a sticky situation. You’ve got a high PSA, but they can’t find...

https://connect.mayoclinic.org/comment/1372991/

Discussion: Finished chemotherapy eating healthy exercising regularly will creatin

Support Group: Prostate Cancer

Posted: Aug 17 5:37pm

@jaacm1 You mentioned you have manageable incontinence and ED. I also have these issues following RP...

https://connect.mayoclinic.org/comment/1330234/

Discussion: Salvage radiation decision: with or without hormone therapy?

Support Group: Prostate Cancer

Posted: Jun 18 10:09pm

I’ve been off ADT for nine months now and the side effects are still my daily...

https://connect.mayoclinic.org/comment/1330515/

Discussion: For Newly Arrived Bros: A Day In The Life With ADT

Support Group: Prostate Cancer

Posted: Jun 19 10:30am

Hey! Thanks for getting back. Yes, all lymph nodes were clear after surgery. I'm still on...

https://connect.mayoclinic.org/comment/1331501/

Discussion: Salvage radiation decision: with or without hormone therapy?

Support Group: Prostate Cancer

Posted: Jun 20 5:06pm

Biclutamide is definitely a drug that can be used in different ways. A guy I know...

https://connect.mayoclinic.org/comment/1332614/

Discussion: Switching from Orgovyx to Bicalutamide

Support Group: Prostate Cancer

Posted: Jun 22 10:31am

Everyone is different. I am going on 3yrs since ending treatment, which was radiation and ADT....

https://connect.mayoclinic.org/comment/1355146/

Discussion: climax loss for radiation treatments

Support Group: Prostate Cancer

Posted: Jul 24 7:55am

I really believe that your surgeon is giving you good advice. My surgery was originally scheduled...

https://connect.mayoclinic.org/comment/1356169/

Discussion: Cribriform cells: Does their presence change treatment approach?

Support Group: Prostate Cancer

Posted: Jul 25 12:43pm

FWIW, my last quarterly Lupron (dose 22.5) shot was Jan 2024, so 18 months ago. Most...

https://connect.mayoclinic.org/comment/1356853/

Discussion: Lupron dosing: side effects for 3 month dose vs. monthly dose

Support Group: Prostate Cancer

Posted: Jul 26 10:32am

Interesting, you say you are not experiencing any side effects from the Orgovyx yet then describe...

https://connect.mayoclinic.org/comment/1330317/

Discussion: Stopping ADT Scared and Anxiety Update

Support Group: Prostate Cancer

Posted: Jun 19 7:09am

Very recently diagnosed but, FWIW, I have been on ADT and Darolutamide for 2+, almost 3,...

https://connect.mayoclinic.org/comment/1335372/

Discussion: Unusual Triple therapy sequence, Nubeqa and Fatigue

Support Group: Prostate Cancer

Posted: Jun 26 6:52am

There is light at the end of the tunnel... One of the dilemmas in our decisions...

https://connect.mayoclinic.org/comment/1347778/

Discussion: With regional lymph node metastasis what is the progression?

Support Group: Prostate Cancer

Posted: Jul 14 7:30am

When I asked my RO if I could skip the ADT and only do the radiation...

https://connect.mayoclinic.org/comment/1347854/

Discussion: Deciding on treatment

Support Group: Prostate Cancer

Posted: Jul 14 9:09am

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