Prostate Cancer Support Group

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Comments (97)

Small cell prostate cancer can be also called neuroendocrine in some cases. Neuroendocrine prostate cancer is...

https://connect.mayoclinic.org/comment/1526133/

Discussion: Anyone have Metastatic Small Cell Carcinoma of likely prostate origin?

Support Group: Prostate Cancer

Posted: Mar 13 2:35pm

You really want to speak to the doctor about the neuroendocrine comment. Frequently carboplatin is used...

https://connect.mayoclinic.org/comment/1270981/

Discussion: Should one consider repeating a cycle of docetaxel?

Support Group: Prostate Cancer

Posted: Mar 31, 2025

@billyh, I'm tagging fellow prostate cancer members @zj69 and @chuck53 who also have neuroendocrine prostate cancer...

https://connect.mayoclinic.org/comment/840452/

Discussion: Prostate Cancer with Neuroendocrine involvement found on pathology

Support Group: Prostate Cancer

Posted: Apr 9, 2023

@rabaldwinjr, fellow member @billyh and @rnb122,wrote about neuroendocrine involvement and may have more to add. See...

https://connect.mayoclinic.org/comment/1258748/

Discussion: Anyone get the Decipher test: RNA Tumor RNA Expression Analysis?

Support Group: Prostate Cancer

Posted: Mar 15, 2025

Unfortunately, there are a few options for neuroendocrine cancer. There are some chemo with platinum options,...

https://connect.mayoclinic.org/comment/1146273/

Discussion: Testosterone: Is everyone's level in the low numbers?

Support Group: Prostate Cancer

Posted: Sep 23, 2024

The choline Scan is not usually used for neuroendocrine detection.

https://connect.mayoclinic.org/comment/1309398/

Discussion: Testing for subtypes and neuroendocrine prostate cancer

Support Group: Prostate Cancer

Posted: May 21, 2025

Here are two submissions. NEPC: Neuroendocrine Prostate Cancer. CRS: Cytokine Release Syndrome. This CRS is a...

https://connect.mayoclinic.org/comment/1553631/

Discussion: Prostate cancer-related abbreviations: What acronym would you add?

Support Group: Prostate Cancer

Posted: 5 days ago

It’s not neuroendocrine now but I know it could turn into

https://connect.mayoclinic.org/comment/1347486/

Discussion: Husband’s low psa, aggressive Gleason 8

Support Group: Prostate Cancer

Posted: Jul 13, 2025

I know two people that have had neuroendocrine prostate cancer. They have passed. One of the...

https://connect.mayoclinic.org/comment/1343767/

Discussion: Prostate cancer stage 4 with bone metastasis now spreaded to liver

Support Group: Prostate Cancer

Posted: Jul 8, 2025

Some people do not produce PSMA, but less than 10% of prostate cancer patients have this...

https://connect.mayoclinic.org/comment/1374193/

Discussion: Sugar abstinence for prostate cancer

Support Group: Prostate Cancer

Posted: Aug 19, 2025

@suzystation I must admit I am pretty puzzled about your description. You say your husband had...

https://connect.mayoclinic.org/comment/1509115/

Discussion: Support for wives with the Orgovyx tornado: Needing an olive branch

Support Group: Prostate Cancer

Posted: Feb 18 4:40pm

My interest was the lower right section pertaining to "neuroendocrine-like." Anyone have experience in that area?

https://connect.mayoclinic.org/comment/1250589/

Discussion: Anyone get the Decipher test: RNA Tumor RNA Expression Analysis?

Support Group: Prostate Cancer

Posted: Mar 4, 2025

Is it common for men treated with ADT drugs to develop Neuroendocrine prostate cancer when they...

https://connect.mayoclinic.org/comment/1343853/

Discussion: Prostate cancer stage 4 with bone metastasis now spreaded to liver

Support Group: Prostate Cancer

Posted: Jul 8, 2025

thanks for the reply. I thought the oncologist who brought this up at my appointment said...

https://connect.mayoclinic.org/comment/1473962/

Discussion: Alternate ADT drug shaking things up: Estrogen?

Support Group: Prostate Cancer

Posted: Jan 3 10:10pm

Also consider —> In neuroendocrine prostate cancer (NEPC), PSA levels are often low or normal, making...

https://connect.mayoclinic.org/comment/1347246/

Discussion: Husband’s low psa, aggressive Gleason 8

Support Group: Prostate Cancer

Posted: Jul 13, 2025

Once somebody has been diagnosed with Neuroendocrine prostate cancer there is really not much that can...

https://connect.mayoclinic.org/comment/1309648/

Discussion: Testing for subtypes and neuroendocrine prostate cancer

Support Group: Prostate Cancer

Posted: May 21, 2025

I know two people who ended up with neuroendocrine prostate cancer. Neither of them lived more...

https://connect.mayoclinic.org/comment/1353209/

Discussion: Husband’s low psa, aggressive Gleason 8

Support Group: Prostate Cancer

Posted: Jul 21, 2025

How are you doing? Was this your first Chemo treatment? What was the reason carboplatin was...

https://connect.mayoclinic.org/comment/1270832/

Discussion: Should one consider repeating a cycle of docetaxel?

Support Group: Prostate Cancer

Posted: Mar 31, 2025

I wonder if it's just that improved ADT, Zytiga, and/or the -lutamides keep people with advanced...

https://connect.mayoclinic.org/comment/1174584/

Discussion: Castration resistant PC CRPC -Neuroendocrine PC linked 2 ADT ?

Support Group: Prostate Cancer

Posted: Nov 16, 2024

@jeffmarc - sorry I wasn’t clear. He has two different types or unrelated cancers. Has had...

https://connect.mayoclinic.org/comment/1509523/

Discussion: Support for wives with the Orgovyx tornado: Needing an olive branch

Support Group: Prostate Cancer

Posted: Feb 19 9:05am

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