123 total results
Discussions (10)
Post Exertional Malaise
What can help Post Exertional Malaise crashes that is common with Long Covid same as with ME/CFS?
Managing post exertional malaise
It’s been about five weeks since I got Covid, and I am struggling with the push-crash cycle of post exertional malaise. I was feeling good...
NIH to Open Clinical Trials for Long COVID Post Exertional Malaise
If anyone is interested, I just came across this clinical trial. They don't have all the locations listed yet, but the first site will be...
Are your heart symptoms worse in morning, better as day progresses?
For those suffering with tachycardia, fatigue, orthostasis and post exertional malaise: do you notice symptoms are worst in the morning and gradually improve throughout the...
PEM What is your reaction? A new study from the Netherlands
I am well over a year with Post/Long Covid and the never-ending, long list of dreadful and painful symptoms. Like many of you, one of...
Important JAMA study from May 2023
This important JAMA study from last May hasn't been mentioned recently: https://www.nih.gov/news-events/nih-research-matters/toward-deeper-understanding-long-covid. The researchers proposed a scoring system for diagnosing long covid. At the top...
Has any long hauler been diagnosed with thinning optic nerve/glaucoma?
I had covid in April 2022. Many symptoms have lingered since then, most notably post exertional malaise, shortness of breath, coughing, GI problems, autoimmune disease,...
Avoiding financial destitution with long Covid
Hi all, I have a thread going about post-exertional malaise, but I also wanted to get some advice on finances while dealing with long Covid....
Measure your Moderation
Central to Mayo's Long COVID recovery plan is moderation. Some primary symptoms for me are/were PEM (Post Extertion Malaise) and Exercise Intolerance. Mayo says don't...
POTS, Pre- or Post-COVID: Where did you find treatment and what helps?
Hello- I’m looking for others diagnosed with POTS, whether you had it before or after COVID. I’d like to know if you’re willing to share:...