Support Groups

Post-COVID Recovery & COVID-19 Support Group

Public Support Group
123 total results
Discussions (10)
Post Exertional Malaise
What can help Post Exertional Malaise crashes that is common with Long Covid same as with ME/CFS?
Last active: Jun 27, 2023
Managing post exertional malaise
It’s been about five weeks since I got Covid, and I am struggling with the push-crash cycle of post exertional malaise. I was feeling good...
Last active: Aug 16 8:38pm
NIH to Open Clinical Trials for Long COVID Post Exertional Malaise
If anyone is interested, I just came across this clinical trial. They don't have all the locations listed yet, but the first site will be...
Last active: Sep 12 2:30pm
Are your heart symptoms worse in morning, better as day progresses?
For those suffering with tachycardia, fatigue, orthostasis and post exertional malaise: do you notice symptoms are worst in the morning and gradually improve throughout the...
Last active: Oct 9, 2022
PEM What is your reaction? A new study from the Netherlands
I am well over a year with Post/Long Covid and the never-ending, long list of dreadful and painful symptoms. Like many of you, one of...
Last active: Jan 17 4:39pm
Important JAMA study from May 2023
This important JAMA study from last May hasn't been mentioned recently: https://www.nih.gov/news-events/nih-research-matters/toward-deeper-understanding-long-covid. The researchers proposed a scoring system for diagnosing long covid. At the top...
Last active: Jan 20 2:31am
Has any long hauler been diagnosed with thinning optic nerve/glaucoma?
I had covid in April 2022. Many symptoms have lingered since then, most notably post exertional malaise, shortness of breath, coughing, GI problems, autoimmune disease,...
Last active: Jun 20, 2023
Avoiding financial destitution with long Covid
Hi all, I have a thread going about post-exertional malaise, but I also wanted to get some advice on finances while dealing with long Covid....
Last active: Mar 5 5:59pm
Measure your Moderation
Central to Mayo's Long COVID recovery plan is moderation. Some primary symptoms for me are/were PEM (Post Extertion Malaise) and Exercise Intolerance. Mayo says don't...
Last active: Dec 24, 2023
POTS, Pre- or Post-COVID: Where did you find treatment and what helps?
Hello- I’m looking for others diagnosed with POTS, whether you had it before or after COVID. I’d like to know if you’re willing to share:...
Last active: Mar 31 7:54am