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Public Support Group 206 total results
Discussions (15)
Managing Post-Exertional Malaise (PEM): What can help?
What can help Post Exertional Malaise crashes that is common with Long Covid same as with ME/CFS?
Post Exertional Malaise with Long Covid: How do you cope?
I have always been the family "Energizer Bunny". But this was my last family gathering I can host.5yrs of fighting long covid, since Spring 2020....
NIH to Open Clinical Trials for Long COVID Post Exertional Malaise
If anyone is interested, I just came across this clinical trial. They don't have all the locations listed yet, but the first site will be...
Are your heart symptoms worse in morning, better as day progresses?
For those suffering with tachycardia, fatigue, orthostasis and post exertional malaise: do you notice symptoms are worst in the morning and gradually improve throughout the...
Anyone had success with Low-Dose Naltrexone for PEM, Chronic Fatigue?
I have Long Covid with Post Exertional Malaise / Chronic Fatigue. I just started Low-Dose Naltrexone last week. Has anyone found this helpful?
PEM What is your reaction? A new study from the Netherlands
I am well over a year with Post/Long Covid and the never-ending, long list of dreadful and painful symptoms. Like many of you, one of...
Resource to share with doctors who don't know what to do for you!
This attachment is for people who have Long COVID with Chronic Fatigue Syndrome. Chronic Fatigue includes PEM (Post-Exertional Malaise). That means you get excessively fatigued...
Important JAMA study from May 2023
This important JAMA study from last May hasn't been mentioned recently: https://www.nih.gov/news-events/nih-research-matters/toward-deeper-understanding-long-covid. The researchers proposed a scoring system for diagnosing long covid. At the top...
Has any long hauler been diagnosed with thinning optic nerve/glaucoma?
I had covid in April 2022. Many symptoms have lingered since then, most notably post exertional malaise, shortness of breath, coughing, GI problems, autoimmune disease,...
Any experience with Post-exertion Malaise (PEM) symptom of Long Covid?
I am diagnosed with Long Covid and symptoms include fatigue, insomnia, and post exertion malaise (PET). I can’t find much research on PET especially the...
Avoiding financial destitution with long Covid
Hi all, I have a thread going about post-exertional malaise, but I also wanted to get some advice on finances while dealing with long Covid....
Interesting article
This is a research article that I read from a link someone shared on this page. It does have a lot of medical jargon, but...
Recover Covid Initiative Study - Discussion via Zoom
https://recovercovid.org/ They're having another Zoom seminar discussing the following from a new study. Just an FYI for those interested. I am interested due to the...
Measure your Moderation
Central to Mayo's Long COVID recovery plan is moderation. Some primary symptoms for me are/were PEM (Post Extertion Malaise) and Exercise Intolerance. Mayo says don't...
POTS, Pre- or Post-COVID: Where did you find treatment and what helps?
Hello- I’m looking for others diagnosed with POTS, whether you had it before or after COVID. I’d like to know if you’re willing to share:...
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