Post-COVID Recovery & COVID-19 Support Group

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Comments (244)

I take LDN now, since February, started at 3mgs once daily now take 4.5 mgs once...

https://connect.mayoclinic.org/comment/1166907/

Discussion: Anybody have trouble regulating body temperature after COVID?

Support Group: Post-COVID Recovery & COVID-19

Posted: Nov 2, 2024

I’m sorry to hear that:( I sent you a link to give you more information. Personally...

https://connect.mayoclinic.org/comment/686308/

Discussion: Long COVID and dealing with Strokes: Anyone else?

Support Group: Post-COVID Recovery & COVID-19

Posted: Mar 4, 2022

Ann...I also struggle with fatigue. Not daily but it comes and atkes me out for a...

https://connect.mayoclinic.org/comment/1296852/

Discussion: Any experience with Post-exertion Malaise (PEM) symptom of Long Covid?

Support Group: Post-COVID Recovery & COVID-19

Posted: May 4 6:56pm

I started taking my allergy meds again, Singular. I think this has helped. I finally made...

https://connect.mayoclinic.org/comment/1222318/

Discussion: Phlegm in my throat and post nasal drip after Covid

Support Group: Post-COVID Recovery & COVID-19

Posted: Jan 26 1:37pm

LDN is thought to increase endorphins and modulate glial cells (overactive glial cells are believed to...

https://connect.mayoclinic.org/comment/892122/

Discussion: Anyone out there on Guanfacine?

Support Group: Post-COVID Recovery & COVID-19

Posted: Jul 8, 2023

Hi..I just saw your reply. The Naltrexone was given for the Ulcerative Colitis that I got...

https://connect.mayoclinic.org/comment/876814/

Discussion: Has anyone gotten back to normal after one complication after another?

Support Group: Post-COVID Recovery & COVID-19

Posted: Jun 11, 2023

Postural orthostatic tachycardia syndrome (POTS): symptoms include lightheadedness, difficulty thinking and concentrating (brain fog), fatigue, intolerance...

https://connect.mayoclinic.org/comment/836769/

Discussion: Low dose Naltrexone for POTS helping alot

Support Group: Post-COVID Recovery & COVID-19

Posted: Apr 3, 2023

I am 5 years post COVID and still had the constant post exercise malaise until about...

https://connect.mayoclinic.org/comment/1300989/

Discussion: Managing Post-Exertional Malaise (PEM): What can help?

Support Group: Post-COVID Recovery & COVID-19

Posted: May 10 9:25am

I also have the toe zaps...almost electrical and painful enough to make me go "Ouch". It...

https://connect.mayoclinic.org/comment/1301002/

Discussion: Post Covid weird symptoms

Support Group: Post-COVID Recovery & COVID-19

Posted: May 10 9:38am

God Bless You! I too have Long Covid. I have been to an Integrative Medicine doctor...

https://connect.mayoclinic.org/comment/1041805/

Discussion: What am I actually supposed to be doing to get better?

Support Group: Post-COVID Recovery & COVID-19

Posted: Mar 28, 2024

I’ve had long covid for 4 years after I got the vaccine. Psoriatic arthritis 3 days...

https://connect.mayoclinic.org/comment/1340375/

Discussion: If you have these symptoms would love your input.

Support Group: Post-COVID Recovery & COVID-19

Posted: Jul 3 11:36am

I’m ramping up on low dose naltrexone. Can’t say whether it is helping yet or not....

https://connect.mayoclinic.org/comment/1096529/

Discussion: anti-inflammatory medications or supplements

Support Group: Post-COVID Recovery & COVID-19

Posted: Jun 29, 2024

Just had new EBV test and porphyria urine test done......both are very high. I now have...

https://connect.mayoclinic.org/comment/995678/

Discussion: Post COVID for 21 months now and still declining

Support Group: Post-COVID Recovery & COVID-19

Posted: Jan 11, 2024

@carlosmayo So many variables. In addition to Naltrexone, Mayo prescribed Cymbalta (which per their direction I...

https://connect.mayoclinic.org/comment/1004762/

Discussion: Monoclonal Antibodies: A New Treatment for Long COVID

Support Group: Post-COVID Recovery & COVID-19

Posted: Jan 27, 2024

LDN is low dose naltrexone. My primary care physician in NYC called the prescription to Mayo...

https://connect.mayoclinic.org/comment/921479/

Discussion: Did PAXLOVID also relieve your arthritis and autoimmune symptoms?

Support Group: Post-COVID Recovery & COVID-19

Posted: Aug 30, 2023

Try low dose naltrexone . LDN . It’s started at 1 mg then slowly titrated up...

https://connect.mayoclinic.org/comment/861376/

Discussion: I am finally giving up COVID can have me

Support Group: Post-COVID Recovery & COVID-19

Posted: May 17, 2023

Prescription Low Dose Naltrexone is being used by several people Long COVID. It helps me with...

https://connect.mayoclinic.org/comment/1332174/

Discussion: Worsening exhaustion and LC symptoms

Support Group: Post-COVID Recovery & COVID-19

Posted: Jun 21 4:43pm

@debbie75 Mayo prescribed a course of Cymbalta and Naltrexone for a period of time. My supplements...

https://connect.mayoclinic.org/comment/1199255/

Discussion: Living with LPSVS (long post-COVID vaccination syndrome)

Support Group: Post-COVID Recovery & COVID-19

Posted: Dec 29, 2024

Sadly extreme exhaustion is part of Long COVID. To manage it, I take low dose naltrexone...

https://connect.mayoclinic.org/comment/1000428/

Discussion: I am so damn tired

Support Group: Post-COVID Recovery & COVID-19

Posted: Jan 20, 2024

I too had mono at 19. Now long Covid 19 months. I think EBV was reactivated....

https://connect.mayoclinic.org/comment/731870/

Discussion: Epstein-Barr Treatment for Long Covid?

Support Group: Post-COVID Recovery & COVID-19

Posted: Jul 29, 2022

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