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Discussions (213)
Comments (3,793)
Comment
I’d love to try a biologic to get off prednisone but until I get a specialist...
https://connect.mayoclinic.org/comment/1151948/
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Discussion:
Has anyone experienced steroid myopathy?
Support Group:
Polymyalgia Rheumatica (PMR)
Posted: Oct 4, 2024
Comment
I had a great response from Actemra. My first dose was on January 1st, 2019. It...
https://connect.mayoclinic.org/comment/1150722/
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Discussion:
I am on ACTEMRA for my giant Cell Arteritis but it seems like my PMR ?
Support Group:
Polymyalgia Rheumatica (PMR)
Posted: Oct 2, 2024
Comment
My Rheum tells me that the inflammation and pain from PMR is NOT a sign of...
https://connect.mayoclinic.org/comment/1148813/
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Discussion:
Weaning off of all medicine - prednisone and methotrexate
Support Group:
Polymyalgia Rheumatica (PMR)
Posted: Sep 28, 2024
Comment
I have been on Prednisone since January of 2023. After 2 failed attempts in tapering off...
https://connect.mayoclinic.org/comment/1147078/
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Discussion:
Actemra vs Kevzara success?
Support Group:
Polymyalgia Rheumatica (PMR)
Posted: Sep 25, 2024
Comment
@dadcue @tuckerp OMG, you guys read my mind, lol. I was just thinking of what I...
https://connect.mayoclinic.org/comment/1147017/
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Discussion:
PMR and Fatigue. Interesting study
Support Group:
Polymyalgia Rheumatica (PMR)
Posted: Sep 25, 2024
Comment
Hi.... I would like to get your insight on Actemra. I was diagnosed with GCA in...
https://connect.mayoclinic.org/comment/1144491/
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Discussion:
Is progress being made in understanding PMR/GCA?
Support Group:
Polymyalgia Rheumatica (PMR)
Posted: Sep 20, 2024
Comment
Hi there, I am on a nine week tapering off the Prednisone. From a very high...
https://connect.mayoclinic.org/comment/1144289/
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Discussion:
Anyone have discomfort or pain when tapering off prednisone?
Support Group:
Polymyalgia Rheumatica (PMR)
Posted: Sep 20, 2024
Comment
Hi @dadcue! You asked "Did anyone ever tell you that your taper was too fast?" The...
https://connect.mayoclinic.org/comment/1144057/
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Discussion:
Is progress being made in understanding PMR/GCA?
Support Group:
Polymyalgia Rheumatica (PMR)
Posted: Sep 19, 2024
Comment
Your treatment sounds unconventional to me. Maybe read this new post. https://connect.mayoclinic.org/discussion/pmr-and-prednisone/?pg=1#comment-1143766 ---------------------------- or the following:...
https://connect.mayoclinic.org/comment/1143833/
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Discussion:
Feelings when tapering: My journey
Support Group:
Polymyalgia Rheumatica (PMR)
Posted: Sep 19, 2024
Comment
No floaters but my vision has been blurry and eyes horribly filled with blood like pinkeye...
https://connect.mayoclinic.org/comment/1143021/
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Discussion:
Is progress being made in understanding PMR/GCA?
Support Group:
Polymyalgia Rheumatica (PMR)
Posted: Sep 17, 2024
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