Polymyalgia Rheumatica (PMR) Support Group

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Comment

@marymckeith I don't know about my fate. My rheumatologist only told me that I was "too...

https://connect.mayoclinic.org/comment/1503402/

Discussion: Are others with GCA and PMR on Tyenne Monthly Infusions?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 11 4:47pm

Comment

@jeff97 My rheumatologist and I discuss "possibilities" but in reality, there is no plan to ever...

https://connect.mayoclinic.org/comment/1502983/

Discussion: Are others with GCA and PMR on Tyenne Monthly Infusions?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 11 7:50am

Comment

Welcome to this site. You will find patients with similar problems and concerns. I've had PMR...

https://connect.mayoclinic.org/comment/1502517/

Discussion: Are others with GCA and PMR on Tyenne Monthly Infusions?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 10 12:24pm

Comment

@stonewheel Keep in mind that +/- 3 months is for Kevzara to control PMR. Whether or...

https://connect.mayoclinic.org/comment/1501814/

Discussion: Kevzara (sarilumab) to treat PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 9 1:45pm

Comment

I started at 20mg (10mg am and 10mg at 3pm) then tapering 2.5 mg every 3...

https://connect.mayoclinic.org/comment/1501670/

Discussion: Tapering too quickly?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 9 11:21am

Comment

@jck51 Hi @jck51 My Rheumatologist recently told me so directly. At a recent routine appointment with...

https://connect.mayoclinic.org/comment/1500988/

Discussion: Are others with GCA and PMR on Tyenne Monthly Infusions?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 8 1:31pm

Comment

@elleninz It is all about being and staying hopeful. When Actemra was offered to me, I...

https://connect.mayoclinic.org/comment/1500680/

Discussion: Kevzara (sarilumab) to treat PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 8 7:22am

Comment

@dadcue Thank you very much. This is very helpful. I've been on prednisone a year and...

https://connect.mayoclinic.org/comment/1500475/

Discussion: Kevzara (sarilumab) to treat PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 7 5:40pm

Comment

@ds1 I'm not the best person to ask. I had no success tapering my prednisone dose...

https://connect.mayoclinic.org/comment/1499062/

Discussion: Any Tips For Tapering Off Prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 5 8:18pm

Comment

I was diagnosed with PMR Summer of 2020. I’ve tried methotrexate and was unable to taper...

https://connect.mayoclinic.org/comment/1498650/

Discussion: Kevzara (sarilumab) to treat PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 5 10:46am

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