Support Groups

Polymyalgia Rheumatica (PMR) Support Group

Public Support Group
1,137 total results
Discussion
PMR or PREDNISONE
I’ve been recently diagnosed with PMR (April 2024) and currently trying to rule out GCA. I have a question. I’m having a hard time differentiating...
Last active: Jun 29, 2024
Discussion
Does skin recover after prednisone?
I have been on a taper for a couple of months - now at 12.5 mg, down from 20 mg. Skin on my hands and...
Last active: Jun 10, 2024
Discussion
What a ride it has been ...for me at least!
I started my ride on this PMR train in August, and I have been on a whirlwind tour since. I feel it's the old "One...
Last active: Nov 11, 2023
Discussion
Trembling and shaking, no energy - PMR?
Must husband was diagnosed with PMR in May after suddenly going blind. He spent seven days in hospital. Once released he started on 55mg prednisone...
Last active: Sep 28, 2024
Discussion
Swollen feet, ankles, legs & knees
I had PMR a few years ago & it affected my arms and hands. After being on Prednisone for a year it cleared up. Last...
Last active: Jul 1, 2024
Discussion
Multiple triggers aka when the chickens come home to roost
I am 71 and was officially diagnosed in April, 2023. Reading these posts as well as research articles has been really helpful. It seems there...
Last active: Jun 3, 2023
Discussion
Weaning off long term use of prednisone.
I started taking prednisone 10 mg 12-13 years ago for PMR and am now at 3 mg. Now my Rheumatologist says it looks like I...
Last active: Jul 23, 2023
Discussion
Muscle Weakness with PMR, can I resume working with weights?
This is my second bout with PMR. I had so much energy the first time on prednisone . I’m reducing much slower this time, but...
Last active: Mar 13, 2022
Discussion
Has anyone experienced edema in their ankles and feet?
I contracted PMR 8 months ago when I came down with Covid. it’s started with stiffness in my neck and swelling in my hands rests....
Last active: Aug 28, 2024
Discussion
Kevzara Side Effects?
I'm thinking of going off Prednisone and onto Kevzara. Having such bad side effects with Pred that I'm so wanting to stop taking it. The...
Last active: Nov 11, 2024