Polymyalgia Rheumatica (PMR) Support Group

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Comment

After 3-4 months on Actemra, my prednisone taper came to an abrupt halt when I reached...

https://connect.mayoclinic.org/comment/1308018/

Discussion: GCA (Giant Cell Arteritis) and PMR (polymyalgia rheumatica)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 19 5:13pm

Comment

When I was first diagnosed (July 2024), I had severe pain from my hips to my...

https://connect.mayoclinic.org/comment/1298041/

Discussion: Where have you experienced pain due to PMR?H

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 6 9:17am

Comment

Welcome @tyman23, Sorry to hear you've joined the PMR club but happy you have found Connect....

https://connect.mayoclinic.org/comment/1319172/

Discussion: PMR and the taper

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 3 7:59am

Comment

Diagnosed three years ago, and have tapered to a very low dose of prednisone. Although shoulder...

https://connect.mayoclinic.org/comment/1319098/

Discussion: Knee pain and PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 3 6:10am

Comment

"Therapy is based on empiric experiences because few randomized clinical trials are available to guide treatment...

https://connect.mayoclinic.org/comment/1327841/

Discussion: Weight based prednisone dosing

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 15 2:49pm

Comment

Mayo Connect is a good resource. There are many people in the USA being started on...

https://connect.mayoclinic.org/comment/1329973/

Discussion: Kevzara Experiences

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 18 1:49pm

Comment

My Mayo rheumatologist discussed the side effects with me when we discussed a tapering strategy to...

https://connect.mayoclinic.org/comment/1289010/

Discussion: Side effects of prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 24 2:03pm

Comment

Hi @khbarrat, itchiness can be a result of inflammation. I had it on my torso before...

https://connect.mayoclinic.org/comment/1287681/

Discussion: PMR - Prednisone and random itching patches of skin

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 22 4:00pm

Comment

Not at Mayo, but local rural hospital, Salida, CO...chose to go under because I'm a fraidy...

https://connect.mayoclinic.org/comment/1287051/

Discussion: Adjusting to life with temporal arteritis

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 21 6:44pm

Comment

My rheumatologist says it is "unlikely" that I will get off Actemra unless it stops working....

https://connect.mayoclinic.org/comment/1289092/

Discussion: What is the goal when tapering?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 24 3:59pm

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