Polymyalgia Rheumatica (PMR) Support Group

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Comment

I suspect many people can taper by 1 mg per month. That is what the guidelines...

https://connect.mayoclinic.org/comment/1308271/

Discussion: Fast Prednisone taper?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 20 6:46am

Comment

I'm assuming your "off label" use of Actemra is for PMR since it isn't FDA approved...

https://connect.mayoclinic.org/comment/1312929/

Discussion: Kevzara and Prednisone Tapering before and during Kevzara

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 25 9:39pm

Comment

Viruses evolve. For flu and Covid, they have to keep updating the vaccines to deal with...

https://connect.mayoclinic.org/comment/1314949/

Discussion: When in PMR remission: What's your experience with covid vaccine?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 28 1:13pm

Comment

I have PMR, with intense pain. I’m on 15mg of prednisone. I was on 30mg and...

https://connect.mayoclinic.org/comment/1315138/

Discussion: Where have you experienced pain due to PMR?H

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 28 4:32pm

Comment

That is another story. I took the plunge. I stopped Prednisone but did a "countdown taper."...

https://connect.mayoclinic.org/comment/1320239/

Discussion: Testing for Cortisol levels during taper of prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 4 12:31pm

Comment

Did you experience any symptoms of adrenal insufficiency? Adrenal suppression is probably inevitable with any dose...

https://connect.mayoclinic.org/comment/1322423/

Discussion: PMR (ending prednisone) and Osteoarthritis flare up

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 7 3:56pm

Comment

"This is hard work for patients because for most of that time, you have to run...

https://connect.mayoclinic.org/comment/1320699/

Discussion: Trouble going below 3mg

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 5 8:28am

Comment

Tapering off of prednisone and managing the PMR symptoms can be challenging. Keeping a daily log...

https://connect.mayoclinic.org/comment/1304504/

Discussion: Where have you experienced pain due to PMR?H

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 15 7:54am

Comment

I began taking Prednisone in July 2024 for PMR/GCA. 60 mg. for 6 weeks. My voice...

https://connect.mayoclinic.org/comment/1304571/

Discussion: PMR with hand/wrist pain and swollen veins?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 15 9:20am

Comment

That sounds like poor options they are giving you for Rheumatologist appts but I know there...

https://connect.mayoclinic.org/comment/1302874/

Discussion: Do we actually “recover”?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 12 8:30pm

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