Support Groups

Polymyalgia Rheumatica (PMR) Support Group

Lock icon Public Support Group
Clear Search
6,537 total results
Discussion
Weakness won't go away
I've been on methylprednisolone for 3 years and down to 6 mg without pain and tapering (again) down to hopefully 2 mg. I can't seem...
Last active: Sep 25, 2025
Discussion
Prescriptions
Have had PMR for 5 months. I am down to 10mg prednisone. I tried to drop to 7.5 about 3 weeks ago, but each time...
Last active: Feb 28, 2025
Discussion
Kevzara Side Effects?
I'm thinking of going off Prednisone and onto Kevzara. Having such bad side effects with Pred that I'm so wanting to stop taking it. The...
Last active: Apr 26, 2025
Discussion
Actemra Infusions
I was diagnosed with PMR and possible GCA in July 2024. In January 2025, I began Actemra infusions, every 4 weeks. I am currently on...
Last active: Nov 19, 2025
Discussion
Need to decide to get a Covid Shot while I have PMR.
I am conflicted on when or if to get a Covid shot. I see from our group than some have had a very bad reaction...
Last active: Nov 1, 2024
Discussion
PMR and Hip Osteoarthritis
Hello everyone, I was diagnosed with PMR in August. At the time, my rheumatologist took hip X-rays which showed moderate to severe osteoarthritis but I...
Last active: Feb 13, 2025
Discussion
Has anyone experienced steroid myopathy?
I’ve had what was diagnosed as PMR for 2 years. My pain and stiffness is getting worse as time goes on even though I’ve been...
Last active: Oct 6, 2024
Discussion
Temporal Artery Biopsy VS a color Doppler Ultrasound for GCA diagnosis
Hello. I am new to this group and recently diagnosed with PMR. My blood work (SED, CRP, CCP) are all normal. My ANA panel was...
Last active: Sep 10, 2024
Discussion
GCA, zoster, and (maybe) PMR
Through searching here I found posts relating shingles and Shingrix to possible onset of PMR/GCA. But looking at it from the other direction (fighting our...
Last active: Jan 22, 2025
Discussion
How hard is it to get on Actemra (Tocilizumab) with PMR?
Has anyone had experience with getting their doctors to prescribe, AND their insurance to pay for, Actemra (Tocilizumab) when they "only" have PMR? Some background:...
Last active: Apr 2, 2023