Support Groups

Polymyalgia Rheumatica (PMR) Support Group

Public Support Group
958 total results
Discussion
Swollen feet, ankles, legs & knees
I had PMR a few years ago & it affected my arms and hands. After being on Prednisone for a year it cleared up. Last...
Last active: 2 days ago
Discussion
Kevzara Side Effects?
I'm thinking of going off Prednisone and onto Kevzara. Having such bad side effects with Pred that I'm so wanting to stop taking it. The...
Last active: Jun 19 8:55am
Discussion
Has anyone experienced edema in their ankles and feet?
I contracted PMR 8 months ago when I came down with Covid. it’s started with stiffness in my neck and swelling in my hands rests....
Last active: 4 days ago
Discussion
How to reduce synovial cysts
With the onset of PMR I developed a number of synovial cysts--many being on my hands. They are quite painful. Any recommendations for reducing their...
Last active: Jan 29 4:13pm
Discussion
Does anyone have poor circulation and cold feet? PMR or prednisone?
I developed poor circulation in my hands and feet after diagnosis and commencing Prednisone treatment, my feet are never warm. I also developed peripheral neuropathy...
Last active: Jun 11 3:56pm
Discussion
Anyone else have strange neurological symptoms with PMR?
I’ve had PMR for 3 months. In the last month my hands have become shaky and I am always dropping things. Fingers feel a bit...
Last active: Nov 11, 2023
Discussion
The pros and cons of Prednisone
Hello. My name is Jean and I’m new to this group. I feel like I have a unique perspective regarding the “evil” steroid drug prednisone…....
Last active: Jun 14 10:13am
Discussion
What a ride it has been ...for me at least!
I started my ride on this PMR train in August, and I have been on a whirlwind tour since. I feel it's the old "One...
Last active: Nov 11, 2023
Discussion
Multiple triggers aka when the chickens come home to roost
I am 71 and was officially diagnosed in April, 2023. Reading these posts as well as research articles has been really helpful. It seems there...
Last active: Jun 3, 2023
Discussion
Weaning off long term use of prednisone.
I started taking prednisone 10 mg 12-13 years ago for PMR and am now at 3 mg. Now my Rheumatologist says it looks like I...
Last active: Jul 23, 2023