Support Groups

Polymyalgia Rheumatica (PMR) Support Group

Public Support Group
3,994 total results
Discussion
My story may help
I think we’ve all noticed that PMR and Prednisone seem to have different stories for everyone. I believe my experience may help some of you...
Last active: Jul 6, 2023
Discussion
Actemra Infusions
I was diagnosed with PMR and possible GCA in July 2024. In January 2025, I began Actemra infusions, every 4 weeks. I am currently on...
Last active: Jun 3 6:21pm
Discussion
Kevzara and prednisone for almost a year-
I have been treated for PMR with prednisone since June of 2022. Was doing well on 10 mg until 2 discs blew out in November...
Last active: May 21, 2024
Discussion
Do CPR and SED rate numbers correspond to pain levels?
I was newly dxed with PMR about 3 weeks ago. I have had a good response to prednisone, started on 10 mg, now tapering with...
Last active: Mar 1 9:28pm
Discussion
Tapering angst
It’s been awhile since I joined and introduced myself. I began my PMR journey July 2022 taking 15mg daily. I thought I was doing a...
Last active: Aug 5, 2023
Discussion
PMR symptoms worse in winter? Seasonal?
My PMR was finally diagnosed in January 2024 after my having what I now know were classic symptoms starting in November 2023. Symptoms started slowly,...
Last active: Dec 5, 2024
Discussion
Suspect Open Angle Glaucoma after seven months on prednisone
I started prednisone towards the end of April. I began at 15 mg, and have tapered down to 4 mg as of three days ago....
Last active: Nov 30, 2024
Discussion
Kevzara Side Effects?
I'm thinking of going off Prednisone and onto Kevzara. Having such bad side effects with Pred that I'm so wanting to stop taking it. The...
Last active: Apr 26 2:13pm
Discussion
How to go from a 7 day 50 mg prednisone to the previous 14 mg
I’d been tapering slowly and was at a 14 mg dose daily after 9 months of treatment for PMR. I was doing quite well I...
Last active: Mar 17, 2024
Discussion
GCA Relapse - A Slow Burn
I thought I was doing so well, off Prednisone almost two years, after having PMR and GCA for about two and a half years (one...
Last active: May 2, 2024