Support Groups

Polymyalgia Rheumatica (PMR) Support Group

Public Support Group
3,994 total results
Discussion
Knee pain and PMR?
I was diagnosed with PMR the end of October 2024 and have been on prednisone ever since and tapering. Right now I just increased from...
Last active: Jun 5 2:37am
Discussion
After PMR and return to good health
I had PMR for twenty months and thanks to Prednisone, good doctors and advice from Mayo Connect I was able to taper my way back...
Last active: Jan 19, 2024
Discussion
How hard is it to get on Actemra (Tocilizumab) with PMR?
Has anyone had experience with getting their doctors to prescribe, AND their insurance to pay for, Actemra (Tocilizumab) when they "only" have PMR? Some background:...
Last active: Apr 2, 2023
Discussion
Temporal Artery Biopsy VS a color Doppler Ultrasound for GCA diagnosis
Hello. I am new to this group and recently diagnosed with PMR. My blood work (SED, CRP, CCP) are all normal. My ANA panel was...
Last active: Sep 10, 2024
Discussion
Has anyone experienced steroid myopathy?
I’ve had what was diagnosed as PMR for 2 years. My pain and stiffness is getting worse as time goes on even though I’ve been...
Last active: Oct 6, 2024
Discussion
PMR with hand/wrist pain and swollen veins?
Hi, I've been struggling with PMR since May '22. Most of my symptoms are typical though apparently unusually stubborn; I'm currently on 40mg/day prednisone and...
Last active: May 16 4:33pm
Discussion
Upcoming surgery prevents prednisone use
I have to have major back surgery in 3 weeks (rods, fusion etc) due to severe stenosis. The doctors think my steroids were covering any...
Last active: Feb 28, 2024
Discussion
PMR & Statins
Recently, I’ve been trying to research out the possible connection of PMR and the use of statin drugs. Does anyone have any information they would...
Last active: May 18 8:26am
Discussion
Revisit the 'PMRandIL6' site _PMR needs NEW FACES of patients
THANK you for the prompt about adrenal insufficiency @dadcue ! You wrote in the Kevzara thread : " I was diagnosed with adrenal insufficiency after...
Last active: Jun 18, 2023
Discussion
When your doctor stops prescribing prednisone
So I have been on prednisone and plaq for 20 years. this is because originally they thought i had lupus. I do not. fast forward...
Last active: Apr 29, 2022