Support Groups

Polymyalgia Rheumatica (PMR) Support Group

Public Support Group
3,994 total results
Discussion
Does skin recover after prednisone?
I have been on a taper for a couple of months - now at 12.5 mg, down from 20 mg. Skin on my hands and...
Last active: May 19 3:05pm
Discussion
What justifies an increase in prednisone?
I have been tapering for 5 months. I just started 5mg this week. Each time I have tapered after getting below 10mg I always seemed...
Last active: Aug 8, 2024
Discussion
Associated migratory primarily thoracic back pain
I currently had to increase my 20 mg daily prednisone dose to 30 mg to minimize my hip pain and shoulder pain joint complaints but...
Last active: Jul 28, 2023
Discussion
Giant cell arteritis:I’m afraid and would appreciate any advice
In April of 2015 I was diagnosed with polymyalgia and giant cell arteritis and was put on 60m of prednisone daily.<br />After a month my...
Last active: Nov 26, 2023
Discussion
Pill splitting
I have had two rheumatologists discourage pill splitting. I have to believe they have what I'll call 'medical logic' for discouraging their patients splitting prednisone...
Last active: Jan 22 12:54pm
Discussion
Better to be in some pain or better to up the dose of prednisone?
Thank you for all of the information and guidance provided by members of this group. It has been very helpful. I have been tapering down...
Last active: Apr 13 9:13am
Discussion
Just Started Actemra
I just wanted to share some info about my new treatment but wanted to give you a little history first. I was diagnosed with PMR...
Last active: Dec 28, 2024
Discussion
Urgent Question Regarding Prednisone Burst Dosage
Hello, I've had PMR for 2 years. After lots of struggles finally tapered to 5 mg daily. Currently on vacation hours from home, developed severe...
Last active: Aug 29, 2022
Discussion
Any experience with Actemra - for my mom who is 90 years old
Subject: Actemra for 90-Year-Old with GCA, High BP & Kidney Disease — Looking for Real Experiences Hi everyone, I’m hoping to hear from anyone who...
Last active: 3 days ago
Discussion
Statins - side-effects, PMR, Giant Cell Arteritis
My husband was diagnosed with PMR May 2023, GCA (giant cell arteritis) Feb 2024. He's been on high-dose Prednisone the entire time. Started on 30...
Last active: May 26, 2024