Support Groups

Polymyalgia Rheumatica (PMR) Support Group

Public Support Group
3,994 total results
Discussion
Has anyone used an anti inflammatory diet to get off prednisone ?
I have had pmr for 2 plus years now and down to 2mg but each time I taper I have had more pain. My goal...
Last active: Sep 10, 2024
Discussion
Heating pad or ice pack
I’m having a major flare with arm/shoulder pain and thigh pain. Prednisone up to 20 mg from5 (was hoping to taper off in a few...
Last active: Jul 26, 2024
Discussion
Can PMR cause Balance problems?
I’m currently in a taper after a slight relapse @ 7mg now tapering 1mg a month started 4mg (3mg AM 1mg PM) 11/1 but began...
Last active: Nov 13, 2022
Discussion
Tapering down and inflammation markers up
Diagnosed Feb with PMR/ GCA. Slowly tapered and now I am down to 10 mg from 40 mg with no flare ups 🙏🙏 Had SED...
Last active: Aug 4, 2023
Discussion
PMR symptom flare from a head cold
I have been on prednisone (started at 30mg) since May and now have tapered to 5mg with no issues. This week Santa has brought me...
Last active: Dec 27, 2023
Discussion
Any suggestions getting or not getting RSV, flu, covid vaccines?
I am traveling out of the country for 3 months , will be tapering to 8 or 8.5 prednisone in a week and just wondering...
Last active: Oct 25, 2023
Discussion
Has anyone tried stem cell therapy
I’m going on 3 years now with PMR and my rheumatologist indicates she’s done all she can. I am now on kevzara and tapering down...
Last active: Aug 15, 2024
Discussion
Still confused about tapering
Hi there, I was diagnosed with PMR about 4 months ago ... my rheumatologist gave me a "schedule" for tapering but I haven't been able...
Last active: Dec 18, 2024
Discussion
How many of you are on your second flare-up?
How many people have come off of Prednisone only to have it reoccur a month later? I have had PMR for 3.5 years and was...
Last active: Oct 7, 2023
Discussion
Prednisone to Kevzara
I am 69 and very active. I loved to play golf but have been unable since onset of PmR. My PMR was diagnosed a year...
Last active: Jun 18, 2024