Support Groups

Polymyalgia Rheumatica (PMR) Support Group

Public Support Group
3,994 total results
Discussion
Using CBD to reduce inflammation
Hi, I'm interested if finding out if anyone has had success in reducing the inflammation associated with PMR using CBD? I'm trying to taper down...
Last active: Dec 31, 2024
Discussion
Joint Clinical Guidelines for Prednisone Induced Adrenal Insufficiency
Good stuff in my opinion! This was how my endocrinologist approached my low cortisol level when I tapered off prednisone. I couldn't continue my taper...
Last active: Dec 16, 2024
Discussion
Keep encouraged, tapering second time is working
My husband (now 80) diagnosed with PMR 2020; went on prednisone; tapered down, but in 2023 it came back. Dr. retired. We found a new...
Last active: Jan 19 11:44am
Discussion
Prednisone dosage split
Something that may help someone but confirm with your physician before implementing. I had a major flare up a few weeks ago. My Rheumatologist started...
Last active: Feb 27 10:29am
Discussion
Actemra & Methotrexate for GCA treatment
Hello everyone,I was diagnosed with GCA on October, 2023 and started a 60mg/day treatment with Prednisone. I am now on Prednisone (10mg/day) and Methotrexate (17.5mg/week)....
Last active: May 5, 2024
Discussion
Covid and pmr
I am on 8 mg of prednisone and tapering 1 mg. Per month. I just got Covid and I’m very achy and sick. Did anyone...
Last active: Sep 14, 2024
Discussion
Back on Prednisone
Because of HFpEF heart failure, I had to get off of my prednisone quickly. (I addressed this in an earlier post). I successfully tapered and...
Last active: Jun 21 11:39am
Discussion
Possibly Misdiagnosed?
I never had any bloodwork inflammation markers for PMR. Tested twice now. But due to age and joint stiffness in neck, hips, thighs, legs, I...
Last active: Aug 2, 2024
Discussion
how to know how much to increase Prednisone dosage during flare
I have PMR and tapered down from 20mg/day to 2 mg/day of Prednisone over 15 months. Then, yesterday I woke up stiff and in pain...
Last active: Jul 17, 2024
Discussion
What mg of prednisone to take when a person gets a flare up?
When a person gets a flare up from PMR are they supposed to go up to a mg where they don't have any pain and...
Last active: Jun 6, 2024