Support Groups

Polymyalgia Rheumatica (PMR) Support Group

Public Support Group
3,994 total results
Discussion
Has anyone else had pain return after reducing pred by only 2.5 mg?
I'd been taking 15 mg of prednisone for two months after being diagnosed with PMR in early August (I am 62). I saw my doctor...
Last active: Oct 24, 2023
Discussion
PMR and tapering -- will blood work change?
I received a private message from @alanbruce that I think a lot of you may be interested in or thinking about. Alan said it was...
Last active: Jul 6, 2021
Discussion
Prednisone and Opioids
Pred put me into type II diabetes with BPs up to 185/115. I also have Crohn's disease and cannot take NSAIDs. I've had PMR for...
Last active: Feb 20 2:35pm
Discussion
Is anyone having success with Plaquenil in addition to prednisone?
I have been on plaquenil 400 mg a day for 7 months and I am taping prednisone also. I am having several side effects from...
Last active: Jun 15 1:39pm
Discussion
Anyone tapered down as directed, but increased back up on their own?
I'm new to these discussions and my husband's PMR. His Dr. wrote RX for Prednisone starting at 20 mg tapering down by 2.50 mg every...
Last active: Apr 12, 2024
Discussion
Do we actually “recover”?
Will there be a time when the PMR actually goes away, or is this a lifetime diagnosis? I have to taper off prednisone rather quickly,...
Last active: May 14 4:13pm
Discussion
Additional Treatment while on prednisone.
I was diagnosed in March for PMR at the age of 64. At the time I could not raise my shoulders and my hips, both...
Last active: Jun 25 4:48pm
Discussion
Prednisone, Leflunomide, adrenal adenoma. Confused
I was diagnosed with PMR the end of October. Originally put on 15 mg of prednisone. Helped but not great. So upped me to 20...
Last active: Jan 7 12:55pm
Discussion
PMR pain management with medical cannabis
Has anyone used medical cannabis for pain management/ treatment for PMR? Has it helped you taper Prednisone? Do you use it on a regular basis...
Last active: Oct 23, 2024
Discussion
Extremely anxious
Is it normal to be extremely anxious while tapering? I am now taking 2.5mg of prednisone every other day and Kevzara bi weekly. It's so...
Last active: Oct 22, 2024