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Polymyalgia Rheumatica (PMR) Support Group

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Discussions (333)
Tingling fingers part of PMR symptom?
Been tapering for about 5 months. I have reduced my prednisone level from 7.5mg for quite a few weeks to now 6mg. On 6mg for...
Last active: Nov 25, 2024
Tapering prednisone while on Kevzara
I would like to know if those of you on Kevzara are having an easier time tapering off of prednisone. I see all the advice...
Last active: Feb 8 10:21am
What is the goal when tapering?
I was diagnosed with PMR in November. Started on 65mg of prednisone. I have now tapered to 20mg, but the pain is debilitating. What is...
Last active: Apr 25, 2025
Prednisone tapering and extreme sweating
Anyone experiencing extreme sweating while tapering prednisone? I tapered from 9 to 8 after one month and am experiencing extreme bouts of sweating during the...
Last active: Nov 2, 2025
Mental confusion side effect from Steroids
hi. I started 20mg Prednisone/Methylpredisolone one month ago. I am noticing that my brain doesn’t function like it used to. very forgetful and the strangest...
Last active: Feb 24, 2022
Prednisone Tapering or Something Else Going on
I have had the hardest time tapering below 1-1/2 mg. Methylprednisolone. When I saw the Rheumatologist, he said the ache and pain I am feeling...
Last active: Jul 31, 2024
Feelings when tapering: My journey
I have been taking Prednisone for 6 weeks now, started on 15mg and massive improvements once on 12.5, walking well, using light weights for training...
Last active: Nov 13, 2024
Tapering from 1mg prednisone
I was given prednisone for GCA diagnosis in June 2022. My rhumatologist has directed my drops in dosage by 1mg every 2 weeks until I...
Last active: Mar 6, 2023
Prednisone Rash When Tapering Off?
Has anyone developed a rash when tapering from Prednisone? If so, what is the cause and what is the treatment? I have tapered to 2mg...
Last active: Jul 24, 2022
Path to 0mg and acceptable discomfort?
I’ve been tapering down from 15 mg since last April. I’ve been tapering by 1 mg a month since 10 mg. The taper from 4...
Last active: Feb 9, 2025
Safe dose and tapering on Glucocorticoid therapy.
British Medical Journal article. This is the most informative article i have read so far and answers questions about tapering schedules, split dosing and why...
Last active: Mar 7, 2024
Tapering down and inflammation markers up
Diagnosed Feb with PMR/ GCA. Slowly tapered and now I am down to 10 mg from 40 mg with no flare ups 🙏🙏 Had SED...
Last active: Aug 4, 2023
New to this support group.
Hi, I was diagnosed with PMR and GCA (biopsy) in 2020. Started at 60 mg prednisone (to prevent blindness!) and took me two years to...
Last active: Jun 12, 2025
PMR and Fatigue. Interesting study
Lots of threads on here to the question of fatigue. I know I suffer from it. It is well documented that steroids can cause fatigue...
Last active: Sep 27, 2024
Infusion vs injection of tocilizumab (Actmera)
My rheumatologist has prescribed this to help me taper after nearly 2 years of steroids for PMR. She says I can choose an infusion every...
Last active: Jul 20, 2025
How I tapered off Prednisone.
everett02 | @everett02 | 1 day ago I started on Prednisone three years ago for sciatica, followed by more for a year for PMR, but...
Last active: May 21, 2025
PMR or Polymyositis depending on tapering reaction
I am tapering down to 15mg of Pred and the Dr said that when I go to 12.5mg of Pred you will know if you...
Last active: Apr 18, 2024
Almost off Pred, but Very fatiqued
My husband is 80 and this is now his 2nd round with PMR. Had it for about 14 months, tapered the pred and it "went...
Last active: Sep 23, 2025
What mg of prednisone to take when a person gets a flare up?
When a person gets a flare up from PMR are they supposed to go up to a mg where they don't have any pain and...
Last active: Jun 6, 2024
Increasing Prednisone Dosage
I have been on this site before, but I can’t seem to find my way back to the link. Today I was told that I...
Last active: Jun 6, 2019