Support Groups

Polymyalgia Rheumatica (PMR) Support Group

Public Support Group
3,993 total results
Discussions (213)
Prednisone Rash When Tapering Off?
Has anyone developed a rash when tapering from Prednisone? If so, what is the cause and what is the treatment? I have tapered to 2mg...
Last active: Jul 24, 2022
Tapering from 1mg prednisone
I was given prednisone for GCA diagnosis in June 2022. My rhumatologist has directed my drops in dosage by 1mg every 2 weeks until I...
Last active: Mar 6, 2023
Prednisone Tapering or Something Else Going on
I have had the hardest time tapering below 1-1/2 mg. Methylprednisolone. When I saw the Rheumatologist, he said the ache and pain I am feeling...
Last active: Jul 31, 2024
PMR pain and vision
Anyone affected by blurred vision from PMR?Any new suggestions for pain control while tapering Prednisone??PMR patients suffer chronic pain. If you have just ben diagnosed,...
Last active: Jul 18, 2024
Kevzara and Prednisone Tapering before and during Kevzara
I recently stated with Kevzara and I am interested in those who are currently on prednisone and Kevzara. I would like to know... 1. What...
Last active: 2 days ago
Tapering off prednisone with GCA temporal arteritis
I was diagnosed In Oct 2024 when I lost partial vision in one eye. I was started on 80 mg prednisone. January went to 60...
Last active: May 9 7:55pm
Testing for Cortisol levels during taper of prednisone
Has anyone's Rheumatologist done this blood test say half way through a taper? If so, what were you're results?
Last active: Jun 4 5:56pm
Low Dose Naltrexone and Prednisone for PMR?
My doctor has prescribed LDN and I will be receiving it soon from a compounding pharmacy. I am tapering prednisone, now at 12.5 (from 20...
Last active: May 18 11:58am
Prednisone tapering is hard: Do complementary therapies help?
I have had PMR for 2 years ..I am down to 8 mg doing a slow taper but feel like hell ..dizziness and nausea I...
Last active: May 17, 2021
Confused: Tapering vs cold turkey stopping prednisone
I was hoping to get some help here. I posted the topic “had pmr since Dec. 4. Was really desperate but now I find it...
Last active: Jan 28, 2023
Has anyone "self-tapered" (increase or decrease prednisone)
This is my husband's second bout with PMR. Afer it flared again, doctor restarted on pred. (20 mg) By mid-March appt, on 10 mg, he...
Last active: May 13, 2024
How to Slowly and Safely Taper Off Prednisone but ... no set rules.
The following link addresses prednisone withdrawal symptoms and adrenal insufficiency. There is a nice video that explains how prednisone replaces our natural cortisol -- a...
Last active: Apr 27 1:16pm
Prednisone tapering is challenging. What does remission feel like?
Hi all what’s remission feel like? Does it only happen when I’m completely off prednisone or can remission occur while I’m tapering? I’ve had PMR...
Last active: Sep 3, 2023
Anyone have discomfort or pain when tapering off prednisone?
I am currently on a 3 dose of prednisone. I have some shoulder discomfort that goes down my back on either side. The left side...
Last active: May 1 5:08pm
Have you been able to taper prednisone with long lasting success?
I’ve had PMR for 8 months. Every time I taper the prednisone down to 5 mg the symptoms return. Getting frustrated and wonder how long...
Last active: Jun 17, 2023
Prednisone Taper from 40 mg to 7.5 in one day ‘
My doctor wants me to reduce my 40 mg of prednisone to 7.5 mg I feel like that is an awful big drop ! Has...
Last active: May 11, 2023
How did you cope with the side effects tapering off prednisone?
Has anyone experienced issues when they first started to taper? this is day 2 for me (went from 16 mg to 14 mg) and I...
Last active: Jan 4 4:16pm
Quadriceps, predinisone and alternatives
Now in a second bought of PMR and been on prednisone for 2 years. At a certain point when tapering pain and weakness in quads-...
Last active: Mar 4, 2023
Prednisone and Antidepressants
I’m 63 and was diagnosed with PMR 4 months ago. My life is upside down. I have tapered down to 20mg Prednisone, not without a...
Last active: Jan 8 11:25am