Support Groups

Polymyalgia Rheumatica (PMR) Support Group

Public Support Group
3,640 total results
Discussions (179)
Low Dose Naltrexone and Prednisone for PMR?
My doctor has prescribed LDN and I will be receiving it soon from a compounding pharmacy. I am tapering prednisone, now at 12.5 (from 20...
Last active: 1 day ago
Kevzara and Prednisone Tapering before and during Kevzara
I recently stated with Kevzara and I am interested in those who are currently on prednisone and Kevzara. I would like to know... 1. What...
Last active: Jan 5 6:25pm
Prednisone tapering is hard: Do complementary therapies help?
I have had PMR for 2 years ..I am down to 8 mg doing a slow taper but feel like hell ..dizziness and nausea I...
Last active: May 17, 2021
Confused: Tapering vs cold turkey stopping prednisone
I was hoping to get some help here. I posted the topic “had pmr since Dec. 4. Was really desperate but now I find it...
Last active: Jan 28, 2023
Has anyone "self-tapered" (increase or decrease prednisone)
This is my husband's second bout with PMR. Afer it flared again, doctor restarted on pred. (20 mg) By mid-March appt, on 10 mg, he...
Last active: May 13, 2024
How to Slowly and Safely Taper Off Prednisone but ... no set rules.
The following link addresses prednisone withdrawal symptoms and adrenal insufficiency. There is a nice video that explains how prednisone replaces our natural cortisol -- a...
Last active: Apr 1 4:46am
Prednisone tapering is challenging. What does remission feel like?
Hi all what’s remission feel like? Does it only happen when I’m completely off prednisone or can remission occur while I’m tapering? I’ve had PMR...
Last active: Sep 3, 2023
Anyone have discomfort or pain when tapering off prednisone?
I am currently on a 3 dose of prednisone. I have some shoulder discomfort that goes down my back on either side. The left side...
Last active: Feb 11 6:41pm
Prednisone Taper from 40 mg to 7.5 in one day ‘
My doctor wants me to reduce my 40 mg of prednisone to 7.5 mg I feel like that is an awful big drop ! Has...
Last active: May 11, 2023
How did you cope with the side effects tapering off prednisone?
Has anyone experienced issues when they first started to taper? this is day 2 for me (went from 16 mg to 14 mg) and I...
Last active: Jan 4 4:16pm
Have you been able to taper prednisone with long lasting success?
I’ve had PMR for 8 months. Every time I taper the prednisone down to 5 mg the symptoms return. Getting frustrated and wonder how long...
Last active: Jun 17, 2023
Quadriceps, predinisone and alternatives
Now in a second bought of PMR and been on prednisone for 2 years. At a certain point when tapering pain and weakness in quads-...
Last active: Mar 4, 2023
GCA Symptons while on Predisone
I’m wondering what the symptoms are for GCA if you’ve been on prednisone for 2 1/2 months. I’m experiencing some symptoms, but they don’t seem...
Last active: Mar 25 5:39pm
Prednisone and Antidepressants
I’m 63 and was diagnosed with PMR 4 months ago. My life is upside down. I have tapered down to 20mg Prednisone, not without a...
Last active: Jan 8 11:25am
Adrenal Insufficiency caused by long term Prednisone
Has anyone who has/had true adrenal insufficiency been able to eventually taper off of prednisone?
Last active: Mar 24 9:14am
PMR and pain levels
I was diagnosed with PMR the end of October. I’m presently taking 7 mg and on a tapering of 1 mg every 2 weeks. I...
Last active: Mar 16 10:14am
Does Prednisone cause a change in hair texture?
Does Prednisone cause a change in hair texture. My hair has become very dry and much thinner since I've been on Prednisone. My dosage is...
Last active: Mar 5 12:21pm
Itchy tiny bumps on back
Has anyone experienced tiny reddish bumps on their back that are itchy, while tapering off prednisone? I’ve been tapering off the Prednisone each month which...
Last active: Feb 23 1:45pm
Can ultrasound help confirm PMR diagnosis?
Diagnosed with PMR Jan 2024. Did the 20 mg prednisone to start, tapered down to 7.5 by August when symptoms returned. Back up to 20...
Last active: Feb 7 7:40am
Prednisone and vertigo
Hi all. As I taper down (6.5), I'm having intermittent vertigo. Dr. Internet tells me this is yet another symptom of our dear Predni. Others...
Last active: 3 days ago