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Polymyalgia Rheumatica (PMR) Support Group

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Discussions (79)
How about knee and lower leg pain?
I've had undiagnosed PMR for 4 years. Doctors said that wasn't it because of the blood tests but after being part of this group for...
Last active: Jun 10, 2024
Does diet affect the occurrence and severity of pain?
I was diagnosed with PMR in May 2023. My GP agreed to start me on 10mg daily of prednisone. Blood markers both positive. I did...
Last active: Jun 6, 2024
How much pain to tolerate
I started with PMR in June - July and began with 20 mg prednisone and am 10 weeks into methotrexate. I do have hand pain,...
Last active: Nov 23, 2024
PMR and Inflammation Markers
I was diagnosed with PMR in December and placed on prednisone which took most of my pain away. Saw rheum for first time in early...
Last active: May 11, 2023
Plaquenil (Hydroxychloroquine) risk for me
Plaquenil has been suggested to me by rheumatology a few times especially when I was experiencing hand problems with xrays revealing cppd. I now had...
Last active: Feb 21 4:28pm
PMR & Statins
Recently, I’ve been trying to research out the possible connection of PMR and the use of statin drugs. Does anyone have any information they would...
Last active: Oct 15, 2025
Start Actemra?
Hello everyone again, Need some opinions please. Over the last 12 months, had second Covid, terrible flare, increased hand and feet pain, slightly elevated Sed...
Last active: Nov 27, 2024
how to know how much to increase Prednisone dosage during flare
I have PMR and tapered down from 20mg/day to 2 mg/day of Prednisone over 15 months. Then, yesterday I woke up stiff and in pain...
Last active: Jan 19 5:27pm
Tingling and burning fingers, painful wrists in the morning
I had symptoms of PMR nine years ago and rheumatologist prescribed prednison. I took this for a few months and tapered off to 2 mg....
Last active: Dec 9, 2025
Unstable hip.
I have an appointment at Dr. Surgery on the 24th about my hip which I am 90% sure is not PMR flare. So hopefully they...
Last active: Apr 11, 2025
What is normal! Must wait months to see specialist?
I was put on 15 mg of prednizone and felt well enough to go on holiday. However started massive cramping in hands and legs. Sometimes...
Last active: 6 days ago
PMR on Kevzara — Normal CRP but Still in Pain?
I’m curious if anyone with PMR who is taking Kevzara has experienced this. My blood work, including C-reactive protein, is now in the normal range,...
Last active: Mar 7 2:31pm
PMR and Undifferentiated Spondyloarthropathies
I am 6 years into a pmr diagnosis and have made many posts here. I see several specialits and often wondered about a connection of...
Last active: May 18, 2024
Is it PMR (and/) or Osteoarthritis?
My encounter with PMR began in November 2022, when suddenly I was beset with the pain and stiffness you are all familiar with. Even rolling...
Last active: Apr 10, 2024
Just starting prednisone for recent PMR dx. Terrified of side effects
Hello all. Recent dx of PMR with lack of markers although sed rate does go above “normal” at times. CRP never elevated. PCP gave me...
Last active: Dec 22, 2025
I’m newly diagnosed with PMR and I am not taking well to Prednisone..
In September of 2025 I was hit suddenly with all the symptoms of PMR. I did have the carpal tunnel syndrome while pregnant, many years...
Last active: Jan 25 6:48pm
PMR relapse symptoms
For anyone who had PMR and tapered off steroids. Did your PMR come back? How quickly? And did it feel the same as the first...
Last active: Mar 2 10:21am
Progression and Regression?
My still formally undiagnosed "PMR" started as thigh pain in January '24. Since then, I've gone the exhausting route of seeing rheums, ophthalmologist, my GP,...
Last active: Aug 1, 2024
Change of diagnosis
At my rheumatologist appointment today, considering blood tests and xrays done after the first appointment 4mths ago, and an examination of hands and feet (Hands...
Last active: Sep 12, 2025
How to reduce synovial cysts
With the onset of PMR I developed a number of synovial cysts--many being on my hands. They are quite painful. Any recommendations for reducing their...
Last active: Sep 14, 2025