Support Groups

Polymyalgia Rheumatica (PMR) Support Group

Public Support Group
958 total results
Discussions (46)
Swollen feet, ankles, legs & knees
I had PMR a few years ago & it affected my arms and hands. After being on Prednisone for a year it cleared up. Last...
Last active: 2 hours ago
Kevzara Side Effects?
I'm thinking of going off Prednisone and onto Kevzara. Having such bad side effects with Pred that I'm so wanting to stop taking it. The...
Last active: Jun 19 8:55am
Has anyone experienced edema in their ankles and feet?
I contracted PMR 8 months ago when I came down with Covid. it’s started with stiffness in my neck and swelling in my hands rests....
Last active: 2 days ago
Doctors' confusion over diagnosis: Questions they should ask
Since a rheumatologist diagnosed my PMR more than two and a half years ago, two other doctors have second-guessed him. Because PMR is a disease...
Last active: Jun 2 8:37pm
How to reduce synovial cysts
With the onset of PMR I developed a number of synovial cysts--many being on my hands. They are quite painful. Any recommendations for reducing their...
Last active: Jan 29 4:13pm
Does anyone have poor circulation and cold feet? PMR or prednisone?
I developed poor circulation in my hands and feet after diagnosis and commencing Prednisone treatment, my feet are never warm. I also developed peripheral neuropathy...
Last active: Jun 11 3:56pm
Anyone else have strange neurological symptoms with PMR?
I’ve had PMR for 3 months. In the last month my hands have become shaky and I am always dropping things. Fingers feel a bit...
Last active: Nov 11, 2023
The pros and cons of Prednisone
Hello. My name is Jean and I’m new to this group. I feel like I have a unique perspective regarding the “evil” steroid drug prednisone…....
Last active: Jun 14 10:13am
What a ride it has been ...for me at least!
I started my ride on this PMR train in August, and I have been on a whirlwind tour since. I feel it's the old "One...
Last active: Nov 11, 2023
Multiple triggers aka when the chickens come home to roost
I am 71 and was officially diagnosed in April, 2023. Reading these posts as well as research articles has been really helpful. It seems there...
Last active: Jun 3, 2023
Weaning off long term use of prednisone.
I started taking prednisone 10 mg 12-13 years ago for PMR and am now at 3 mg. Now my Rheumatologist says it looks like I...
Last active: Jul 23, 2023
Muscle Weakness with PMR, can I resume working with weights?
This is my second bout with PMR. I had so much energy the first time on prednisone . I’m reducing much slower this time, but...
Last active: Mar 13, 2022
Can PMR be induced by Exercise
Just a theory; I been treated for PMR since April 2023. It began after I stated new exercises for my legs (which I haven’t done...
Last active: Jun 19 1:56pm
TKR and PMR
I was diagnosed with PMR Nov. 2021. I am down to 1/2 predisolone pill every other day. In general. I continue to experience fatigue, off...
Last active: May 23, 2023
Supplements to reduce inflammation
I was diagnosed with PMR about a year ago after I got the high does flu shot. My send rate was not that high but...
Last active: Dec 30, 2021
Can Hashimotos be caused by PMR?
In 2017 I was diagnosed with Hashimoto & put on Levothyroxine. After 2 yrs on meds & not feeling better I sought out an endocrinologist....
Last active: Apr 26, 2023
Worrying GCA development: Lost sight in one eye temporarily
I have GCA having been biopsied last January. I am on Actemra which I am handing well and was on a taper of Prednisone. 6...
Support Group: Autoimmune Diseases
Last active: Dec 26, 2020
What to tell adult kids? Dad diagnosed with giant cell arteritis (GCA)
Our kids live out of state and haven't seen their dad since he developed giant cell arteritis (GCA). I'm headed down for a visit this...
Last active: Apr 15 10:19pm
Can the pain of PMR be aggravated from a stomach virus?
Last summer I was diagnosed with having PMR. I was placed on Prednisone to manage the pain, but my body could not tolerate this drug...
Last active: Dec 30, 2022
Last Covid Booster in August 2022 I’ve had severe pain. Probable PMR
It’s been a journey and a difficult one to even get to this point. My arm (right) pain after shot was unbearable. Then it spread...
Last active: Apr 28, 2023