Support Groups

Polymyalgia Rheumatica (PMR) Support Group

Public Support Group
1,137 total results
Discussions (59)
Start Actemra?
Hello everyone again, Need some opinions please. Over the last 12 months, had second Covid, terrible flare, increased hand and feet pain, slightly elevated Sed...
Last active: Nov 27, 2024
PMR and Inflammation Markers
I was diagnosed with PMR in December and placed on prednisone which took most of my pain away. Saw rheum for first time in early...
Last active: May 11, 2023
PMR & Statins
Recently, I’ve been trying to research out the possible connection of PMR and the use of statin drugs. Does anyone have any information they would...
Last active: Nov 23, 2024
how to know how much to increase Prednisone dosage during flare
I have PMR and tapered down from 20mg/day to 2 mg/day of Prednisone over 15 months. Then, yesterday I woke up stiff and in pain...
Last active: Jul 17, 2024
PMR and Undifferentiated Spondyloarthropathies
I am 6 years into a pmr diagnosis and have made many posts here. I see several specialits and often wondered about a connection of...
Last active: May 18, 2024
Is it PMR (and/) or Osteoarthritis?
My encounter with PMR began in November 2022, when suddenly I was beset with the pain and stiffness you are all familiar with. Even rolling...
Last active: Apr 10, 2024
Pain areas move around
I’m fairly new with PMR. I take 15 mg of prednisone daily when I wake up in am I find different areas of my body...
Last active: Dec 27, 2024
Progression and Regression?
My still formally undiagnosed "PMR" started as thigh pain in January '24. Since then, I've gone the exhausting route of seeing rheums, ophthalmologist, my GP,...
Last active: Aug 1, 2024
How to reduce synovial cysts
With the onset of PMR I developed a number of synovial cysts--many being on my hands. They are quite painful. Any recommendations for reducing their...
Last active: Jan 29, 2024
Anyone else have strange neurological symptoms with PMR?
I’ve had PMR for 3 months. In the last month my hands have become shaky and I am always dropping things. Fingers feel a bit...
Last active: Nov 11, 2023
PMR or PREDNISONE
I’ve been recently diagnosed with PMR (April 2024) and currently trying to rule out GCA. I have a question. I’m having a hard time differentiating...
Last active: Jun 29, 2024
Does skin recover after prednisone?
I have been on a taper for a couple of months - now at 12.5 mg, down from 20 mg. Skin on my hands and...
Last active: Jun 10, 2024
What a ride it has been ...for me at least!
I started my ride on this PMR train in August, and I have been on a whirlwind tour since. I feel it's the old "One...
Last active: Nov 11, 2023
Trembling and shaking, no energy - PMR?
Must husband was diagnosed with PMR in May after suddenly going blind. He spent seven days in hospital. Once released he started on 55mg prednisone...
Last active: Sep 28, 2024
Swollen feet, ankles, legs & knees
I had PMR a few years ago & it affected my arms and hands. After being on Prednisone for a year it cleared up. Last...
Last active: Jul 1, 2024
Multiple triggers aka when the chickens come home to roost
I am 71 and was officially diagnosed in April, 2023. Reading these posts as well as research articles has been really helpful. It seems there...
Last active: Jun 3, 2023
Weaning off long term use of prednisone.
I started taking prednisone 10 mg 12-13 years ago for PMR and am now at 3 mg. Now my Rheumatologist says it looks like I...
Last active: Jul 23, 2023
Muscle Weakness with PMR, can I resume working with weights?
This is my second bout with PMR. I had so much energy the first time on prednisone . I’m reducing much slower this time, but...
Last active: Mar 13, 2022
Has anyone experienced edema in their ankles and feet?
I contracted PMR 8 months ago when I came down with Covid. it’s started with stiffness in my neck and swelling in my hands rests....
Last active: Aug 28, 2024
Kevzara Side Effects?
I'm thinking of going off Prednisone and onto Kevzara. Having such bad side effects with Pred that I'm so wanting to stop taking it. The...
Last active: Nov 11, 2024