Polymyalgia Rheumatica (PMR) Support Group

Because of HFpEF heart failure, I had to get off of my prednisone quickly. (I addressed this in an earlier post). I successfully tapered and...

I am a 64 yr old female diagnosed with high blood pressure in February. I also have mild asthma but am otherwise healthy, active, good...

Have had PMR for 5 months. I am down to 10mg prednisone. I tried to drop to 7.5 about 3 weeks ago, but each time...

I'm thinking of going off Prednisone and onto Kevzara. Having such bad side effects with Pred that I'm so wanting to stop taking it. The...

I was diagnosed with PMR and possible GCA in July 2024. In January 2025, I began Actemra infusions, every 4 weeks. I am currently on...

I am conflicted on when or if to get a Covid shot. I see from our group than some have had a very bad reaction...

Hello everyone, I was diagnosed with PMR in August. At the time, my rheumatologist took hip X-rays which showed moderate to severe osteoarthritis but I...

I’ve had what was diagnosed as PMR for 2 years. My pain and stiffness is getting worse as time goes on even though I’ve been...

Hello. I am new to this group and recently diagnosed with PMR. My blood work (SED, CRP, CCP) are all normal. My ANA panel was...

Through searching here I found posts relating shingles and Shingrix to possible onset of PMR/GCA. But looking at it from the other direction (fighting our...

Has anyone had experience with getting their doctors to prescribe, AND their insurance to pay for, Actemra (Tocilizumab) when they "only" have PMR? Some background:...

Has anyone else found that sugar worsens their PMR symptoms? I've tried cutting the sugar in my diet to an absolute minimum, and it seemed...

Hi, I am only new to PMR. Currently on 15mg daily tapering down to 12.5 next week. I was shocked when diagnosed as like many...

I’d been tapering slowly and was at a 14 mg dose daily after 9 months of treatment for PMR. I was doing quite well I...

I’d love to hear other people’s experiences of living with someone on high-dose, long-term prednisone. My husband has PMR and a serious case of GCA...

I had symptoms of PMR nine years ago and rheumatologist prescribed prednison. I took this for a few months and tapered off to 2 mg....

I am approaching the 3rd anniversary of this blasted disorder, and have successfully tapered to 1.5 mg prednisone daily. But PMR has been ever present...

I am in severe pain with soreness aching in shoulders, upper back, both hips and now headache. I am starting to get some numbness in...

I was diagnosed with PMR the end of October 2024 and have been on prednisone ever since and tapering. Right now I just increased from...

I started prednisone towards the end of April. I began at 15 mg, and have tapered down to 4 mg as of three days ago....