Support Groups

Polymyalgia Rheumatica (PMR) Support Group

Lock icon Public Support Group
Clear Search
5,826 total results
Discussions (293)
Using methotrexate with PMR
My husband, 72yo, was diagnosed with PMR in March of 2024. He had rather severe symptoms...couldn't get out of chair and pain in neck and...
Last active: Aug 18 12:36pm
How many of you are on your second flare-up?
How many people have come off of Prednisone only to have it reoccur a month later? I have had PMR for 3.5 years and was...
Last active: Oct 7, 2023
Better to be in some pain or better to up the dose of prednisone?
Thank you for all of the information and guidance provided by members of this group. It has been very helpful. I have been tapering down...
Last active: Aug 21 12:56pm
PMR and interactions with meds for other conditions
I am a 64 yr old female diagnosed with high blood pressure in February. I also have mild asthma but am otherwise healthy, active, good...
Last active: Nov 29, 2021
Sed Rate still elevated, but pain much improved
I have tapered from 40 mg prednisone last February to a current dose of 9 mg. I’ve also been on methotrexate going on three months,...
Last active: Oct 27, 2024
Is anyone having success with Plaquenil in addition to prednisone?
I have been on plaquenil 400 mg a day for 7 months and I am taping prednisone also. I am having several side effects from...
Last active: Jun 15 1:39pm
Kevzara Side Effects?
I'm thinking of going off Prednisone and onto Kevzara. Having such bad side effects with Pred that I'm so wanting to stop taking it. The...
Last active: Apr 26 2:13pm
PMR and Hip Osteoarthritis
Hello everyone, I was diagnosed with PMR in August. At the time, my rheumatologist took hip X-rays which showed moderate to severe osteoarthritis but I...
Last active: Feb 13 7:02am
Polymyalgia, Covid Infection, Anti-Virals
I have just finished a 5 day course of anti-viral tablets (‘Paxlovid’ - ‘nirmatrelvir’ + ‘ritonavir’) following a positive Covid test. Paxlovid is approved for...
Last active: Nov 24, 2022
Prescriptions
Have had PMR for 5 months. I am down to 10mg prednisone. I tried to drop to 7.5 about 3 weeks ago, but each time...
Last active: Feb 28 12:16pm
Back on Prednisone
Because of HFpEF heart failure, I had to get off of my prednisone quickly. (I addressed this in an earlier post). I successfully tapered and...
Last active: Jun 21 11:39am
GCA, zoster, and (maybe) PMR
Through searching here I found posts relating shingles and Shingrix to possible onset of PMR/GCA. But looking at it from the other direction (fighting our...
Last active: Jan 22 8:24am
Need to decide to get a Covid Shot while I have PMR.
I am conflicted on when or if to get a Covid shot. I see from our group than some have had a very bad reaction...
Last active: Nov 1, 2024
Temporal Artery Biopsy VS a color Doppler Ultrasound for GCA diagnosis
Hello. I am new to this group and recently diagnosed with PMR. My blood work (SED, CRP, CCP) are all normal. My ANA panel was...
Last active: Sep 10, 2024
Has anyone experienced steroid myopathy?
I’ve had what was diagnosed as PMR for 2 years. My pain and stiffness is getting worse as time goes on even though I’ve been...
Last active: Oct 6, 2024
How hard is it to get on Actemra (Tocilizumab) with PMR?
Has anyone had experience with getting their doctors to prescribe, AND their insurance to pay for, Actemra (Tocilizumab) when they "only" have PMR? Some background:...
Last active: Apr 2, 2023
Sugar and PMR
Has anyone else found that sugar worsens their PMR symptoms? I've tried cutting the sugar in my diet to an absolute minimum, and it seemed...
Last active: May 24, 2024
How to go from a 7 day 50 mg prednisone to the previous 14 mg
I’d been tapering slowly and was at a 14 mg dose daily after 9 months of treatment for PMR. I was doing quite well I...
Last active: Mar 17, 2024
Living with someone on high-dose long-term prednisone
I’d love to hear other people’s experiences of living with someone on high-dose, long-term prednisone. My husband has PMR and a serious case of GCA...
Last active: May 10, 2024
Confused about PMR symptoms
I was diagnosed with PMR in August by a rheumatologist. I was placed on 60mg Prednisone. Began tapering and now I am down to 15mg...
Last active: Mar 19, 2024