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Polymyalgia Rheumatica (PMR) Support Group

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Discussions (294)
Polymyalia Rheumatica
Hi, I am only new to PMR. Currently on 15mg daily tapering down to 12.5 next week. I was shocked when diagnosed as like many...
Last active: Aug 21 4:56pm
Does Prednisone cause a change in hair texture?
Does Prednisone cause a change in hair texture. My hair has become very dry and much thinner since I've been on Prednisone. My dosage is...
Last active: Mar 5 12:21pm
Loss of smell and taste
DOES PREDNISONE CAUSE THIS?? IT STARTED A WEEK AGO I HAVE BEEN TAPERING DOWN FROM 60MG VERY SLOWLY JUST STARTED ON 15 MG. YESTERDAY FROM...
Last active: May 20, 2020
Covid and pmr
I am on 8 mg of prednisone and tapering 1 mg. Per month. I just got Covid and I’m very achy and sick. Did anyone...
Last active: Sep 14, 2024
Possibly Misdiagnosed?
I never had any bloodwork inflammation markers for PMR. Tested twice now. But due to age and joint stiffness in neck, hips, thighs, legs, I...
Last active: Aug 2, 2024
Extremely anxious
Is it normal to be extremely anxious while tapering? I am now taking 2.5mg of prednisone every other day and Kevzara bi weekly. It's so...
Last active: Oct 22, 2024
PMR pain and vision
Anyone affected by blurred vision from PMR?Any new suggestions for pain control while tapering Prednisone??PMR patients suffer chronic pain. If you have just ben diagnosed,...
Last active: Jul 18, 2024
Facial puffiness? PMR/GCA on Prednisone/Actemra
My husband has PMR since May 2023 and GCA since February 2024. He’s on 50 mg of prednisone and weekly shots of Actemra since developing...
Last active: May 5, 2024
Any suggestions getting or not getting RSV, flu, covid vaccines?
I am traveling out of the country for 3 months , will be tapering to 8 or 8.5 prednisone in a week and just wondering...
Last active: Oct 25, 2023
Anyone successfully treating PMR without Prednisone?
I am in severe pain with soreness aching in shoulders, upper back, both hips and now headache. I am starting to get some numbness in...
Last active: Aug 10 5:25pm
Prednisone and neuropathy
Before prednisone and PMR, I had a very, very mild case of non-diabetic neuropathy. I've been on pred for five months and in the last...
Last active: May 23 3:21pm
Has anyone tried CBD oil for PMR?
I was diagnosed with PMR in early August of this year. It all started after I had A TKR in January which was followed by...
Last active: Dec 30, 2023
Back pain
Hello, I'm 2 years in to my PMR journey and am tapering... 0.25-0.5 reduction, every 4 weeks. Currently 4.25. Rheumy and I are thrill to...
Last active: Dec 13, 2024
PMR relapse after a fall
I notice that some members of this group mentioned having a PMR flare after a fall and thought I would share this link to an...
Last active: Oct 30, 2022
Methotrexate vs Prednisone
I have decided after researching and discussing with my Dr to ween off Prednisone while switching to methotrexate. I do not like how prednisone makes...
Last active: Aug 23, 2024
Trouble going below 3mg
I have been at 2.5mg for almost 2 weeks and started throwing in a 2mg day every third day but seemed to be having flare...
Last active: Jun 10 3:21pm
Has anyone tried stem cell therapy
I’m going on 3 years now with PMR and my rheumatologist indicates she’s done all she can. I am now on kevzara and tapering down...
Last active: Aug 28 9:07am
Possible GCA
I had some symptoms of GCA, headaches, jaw stiffness and mild pain, sore throat, night sweats. I'm waiting on blood work results and in the...
Last active: Feb 23 1:13pm
Can pmr worsen with weather
I’ve posted before as a newly diagnosed . I’m wondering if the weather can make it worse . I live in the uk and this...
Last active: Sep 10, 2024
I have PMR, as well as a high PTH level of 117, anyone else have this?
I was diagnosed 2 months ago with PMR. I started with 15mg per day of prednisone and am now down to 10mg per day. I...
Last active: May 21, 2023