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Polymyalgia Rheumatica (PMR) Support Group

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Discussions (334)
Sharing ways to stop coping and start living!
I’ve been doing the PMR dance for a couple of years. (Sometimes it’s a slow waltz, sometimes it’s The Jerk.) I’m currently at 5mg prednisone,...
Last active: 1 day ago
Ongoing jaw pain in established GCA/PMR patient
Hello everyone. I was diagnosed with GCA and PMR in September 2025 at age 70. My presenting symptoms were mild, right side jaw pain when...
Last active: Mar 4 2:13pm
Itchy tiny bumps on back
Has anyone experienced tiny reddish bumps on their back that are itchy, while tapering off prednisone? I’ve been tapering off the Prednisone each month which...
Last active: Feb 23, 2025
PMR relapse symptoms
For anyone who had PMR and tapered off steroids. Did your PMR come back? How quickly? And did it feel the same as the first...
Last active: Mar 2 10:21am
Working out with PMR
I'm a newbie to PMR and glad I found this forum. I have so many questions. I'm around the corner from 69 years old and...
Last active: 4 days ago
Anyone else with acceptable CRP (3.5) but significant discomfort?
Hi! Tapering slowly with excellent guidance from my Rheumatologist. Since below 9 mg. I've been finding my discomfort at each level getting worse. I have...
Last active: Feb 9, 2025
Infrared sauna blanket for pain relief
I have been coping with PMR pred therapy and tapering for about ten months. I'm tapering 1mg/mo from 10mg and am currently at 2mg. It...
Last active: Sep 6, 2025
PMR due to immunotherapy for cancer.
I have cancer and receive immunotherapy. Now I have PMR due to an overactive immune system. I had a couple of treatments of the immunotherapy...
Last active: Aug 27, 2024
Rheumatologist has now diagnosed me with Rheumatoid Arthritis
My rheumatologist has now diagnosed me with Rheumatoid Arthritis due to extremely painful wrists beginning in April of this year. I was diagnosed with PMR...
Last active: Jun 18, 2025
When is it time to discontinue prednisone?
I was diagnosed with PMR in January 2025. I have been tapering down on the prednisone and I’m now down to .5 mg. My most...
Last active: Nov 23, 2025
PMR and sleep apnea
Has anyone developed sleep apnea some time after being diagnosed with PMR? I recently have, and I think it's a redistribution of fat and/or weight...
Last active: Feb 12 1:49pm
Kevzara insurance denial options
I have been on Kevzara for three months and have been receiving repeated denials for approval for 2026. Any suggestions from anyone who has experienced...
Last active: Feb 9 5:48am
Symptoms after you stop prednisone
I was diagnosed with PMR in April, 2023 and prescribed 15 mg of prednisone tapering monthly until completely off by May, 2024. Understandably, my previous...
Last active: Jan 23 9:34am
PMR and travel
I am wondering if anyone has traveled outside the country while tapering? If so, would like any travel recommendations. Thank you.
Last active: Sep 4, 2025
Disorientation and confusion
I’m in the process of tapering down from 20mg now down to 10. Does anyone else have the feeling of disorientation or confusion during the...
Last active: Jan 22, 2025
Anti-inflammatory diet and supplements for PMR
Hi, I have been dealing with polymyalgia rheumatica for a little over three months and have been taking 25 mg pf prednisone per day with...
Last active: Jan 22, 2025
Can ultrasound help confirm PMR diagnosis?
Diagnosed with PMR Jan 2024. Did the 20 mg prednisone to start, tapered down to 7.5 by August when symptoms returned. Back up to 20...
Last active: Feb 7, 2025
PMR symptom flare from a head cold
I have been on prednisone (started at 30mg) since May and now have tapered to 5mg with no issues. This week Santa has brought me...
Last active: Dec 27, 2023
Lung complications with PMR?
I was diagnosed with PMR in August of last year, not showing many symptoms. I was on Prednisolone and am now tapering and should be...
Last active: Feb 26, 2024
PMR Dosages and Managing Symptoms
I've read through the discussions and note all the different dosages of prednisone, different lengths of time taking prednisone, plus the addition of other meds,...
Last active: Jul 27, 2024