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Discussions (226)
Knee pain and PMR?
I was diagnosed with PMR the end of October 2024 and have been on prednisone ever since and tapering. Right now I just increased from...
After PMR and return to good health
I had PMR for twenty months and thanks to Prednisone, good doctors and advice from Mayo Connect I was able to taper my way back...
How hard is it to get on Actemra (Tocilizumab) with PMR?
Has anyone had experience with getting their doctors to prescribe, AND their insurance to pay for, Actemra (Tocilizumab) when they "only" have PMR? Some background:...
Temporal Artery Biopsy VS a color Doppler Ultrasound for GCA diagnosis
Hello. I am new to this group and recently diagnosed with PMR. My blood work (SED, CRP, CCP) are all normal. My ANA panel was...
Has anyone experienced steroid myopathy?
I’ve had what was diagnosed as PMR for 2 years. My pain and stiffness is getting worse as time goes on even though I’ve been...
PMR with hand/wrist pain and swollen veins?
Hi, I've been struggling with PMR since May '22. Most of my symptoms are typical though apparently unusually stubborn; I'm currently on 40mg/day prednisone and...
PMR & Statins
Recently, I’ve been trying to research out the possible connection of PMR and the use of statin drugs. Does anyone have any information they would...
Revisit the 'PMRandIL6' site _PMR needs NEW FACES of patients
THANK you for the prompt about adrenal insufficiency @dadcue ! You wrote in the Kevzara thread : " I was diagnosed with adrenal insufficiency after...
When your doctor stops prescribing prednisone
So I have been on prednisone and plaq for 20 years. this is because originally they thought i had lupus. I do not. fast forward...
Upcoming surgery prevents prednisone use
I have to have major back surgery in 3 weeks (rods, fusion etc) due to severe stenosis. The doctors think my steroids were covering any...
Kevzara and prednisone for almost a year-
I have been treated for PMR with prednisone since June of 2022. Was doing well on 10 mg until 2 discs blew out in November...
Any experience with Actemra - for my mom who is 90 years old
Subject: Actemra for 90-Year-Old with GCA, High BP & Kidney Disease — Looking for Real Experiences Hi everyone, I’m hoping to hear from anyone who...
Do CPR and SED rate numbers correspond to pain levels?
I was newly dxed with PMR about 3 weeks ago. I have had a good response to prednisone, started on 10 mg, now tapering with...
My story may help
I think we’ve all noticed that PMR and Prednisone seem to have different stories for everyone. I believe my experience may help some of you...
PMR symptoms worse in winter? Seasonal?
My PMR was finally diagnosed in January 2024 after my having what I now know were classic symptoms starting in November 2023. Symptoms started slowly,...
Tapering angst
It’s been awhile since I joined and introduced myself. I began my PMR journey July 2022 taking 15mg daily. I thought I was doing a...
Still Struggling with that last mile on the path to 0 mg
After two months on 1/2mg of prednisone, various setbacks, and revisiting PT, I started to feel quite a bit of improvement, which led me to...
Suspect Open Angle Glaucoma after seven months on prednisone
I started prednisone towards the end of April. I began at 15 mg, and have tapered down to 4 mg as of three days ago....
Starting treatment with Kevzara: My journey
Good morning everyone.Well, yesterday was my first dose of Kevzara and day one of my taper down to 15mg of prednisone. We'll see how that...
Kevzara Side Effects?
I'm thinking of going off Prednisone and onto Kevzara. Having such bad side effects with Pred that I'm so wanting to stop taking it. The...
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