Support Groups

Polymyalgia Rheumatica (PMR) Support Group

Public Support Group
3,994 total results
Discussions (213)
My story may help
I think we’ve all noticed that PMR and Prednisone seem to have different stories for everyone. I believe my experience may help some of you...
Last active: Jul 6, 2023
Actemra Infusions
I was diagnosed with PMR and possible GCA in July 2024. In January 2025, I began Actemra infusions, every 4 weeks. I am currently on...
Last active: Jun 3 6:21pm
Kevzara and prednisone for almost a year-
I have been treated for PMR with prednisone since June of 2022. Was doing well on 10 mg until 2 discs blew out in November...
Last active: May 21, 2024
Do CPR and SED rate numbers correspond to pain levels?
I was newly dxed with PMR about 3 weeks ago. I have had a good response to prednisone, started on 10 mg, now tapering with...
Last active: Mar 1 9:28pm
Tapering angst
It’s been awhile since I joined and introduced myself. I began my PMR journey July 2022 taking 15mg daily. I thought I was doing a...
Last active: Aug 5, 2023
PMR symptoms worse in winter? Seasonal?
My PMR was finally diagnosed in January 2024 after my having what I now know were classic symptoms starting in November 2023. Symptoms started slowly,...
Last active: Dec 5, 2024
Suspect Open Angle Glaucoma after seven months on prednisone
I started prednisone towards the end of April. I began at 15 mg, and have tapered down to 4 mg as of three days ago....
Last active: Nov 30, 2024
Kevzara Side Effects?
I'm thinking of going off Prednisone and onto Kevzara. Having such bad side effects with Pred that I'm so wanting to stop taking it. The...
Last active: Apr 26 2:13pm
How to go from a 7 day 50 mg prednisone to the previous 14 mg
I’d been tapering slowly and was at a 14 mg dose daily after 9 months of treatment for PMR. I was doing quite well I...
Last active: Mar 17, 2024
GCA Relapse - A Slow Burn
I thought I was doing so well, off Prednisone almost two years, after having PMR and GCA for about two and a half years (one...
Last active: May 2, 2024
Golf and PMR
Presently on 5mg/day Prednisone from 6 mg/day and taper hasn’t been all that successful as I experienced an increase in symptoms in my shoulders, right...
Last active: Oct 23, 2023
Worried about GCA
I was diagnosed with PMR in June after months of severe morning pain in my hips to mid thighs and my neck. I started at...
Last active: Jan 3 10:44am
Abdominal discomfort, bloating and acid reflux
On June 22nd, 2024 I was diagnosed with PMR and was started on 20 mg prednisone. By July 5th I was down to 12.5 and...
Last active: Feb 22 3:28pm
Feelings when tapering: My journey
I have been taking Prednisone for 6 weeks now, started on 15mg and massive improvements once on 12.5, walking well, using light weights for training...
Last active: Nov 13, 2024
PMR's effect on my hands
Has PMR affected your hands? In February, I noticed my legs and arms were often sore and stiff (no pain in my neck or shoulders)....
Last active: May 28 12:50pm
PMR and hump on back and chest
One month ago I was diagnosed with PMR which came on after COViD vaccines. I am only 55. My CRP was very high. I was...
Last active: Jun 5, 2022
Recently Diagnosed With GCA - Still Experiencing Pain
Hi Everyone! I was recently diagnosed with GCA and have been on prednisone for over a month now. I am concerned because I started at...
Last active: Jul 22, 2024
PMR: Are there treatment alternatives to Prednisone?
Hi, all. I'm wondering if anyone is finding any alternatives to Prednisone in treatment of PMR? I've been on the PMR/Prednisone train for about 6...
Last active: Jan 11, 2024
Sed Rate still elevated, but pain much improved
I have tapered from 40 mg prednisone last February to a current dose of 9 mg. I’ve also been on methotrexate going on three months,...
Last active: Oct 27, 2024
Exercise with PMR and/or GCA
My husband was diagnosed with Polymyalgia Rheumatica (PMR) May 2023. He started at 30 mg prednisone tapering to 12.5 by January 2024. In November his...
Last active: Mar 8, 2024