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Public Support Group 5,012 total results
Discussions (272)
Down to 1mg prednisone and then extreme fatigue sets in.
I was diagnosed with PMR in January after ending up in emergency with extreme pain and unable to walk. In the hospital they gave me...
Associated migratory primarily thoracic back pain
I currently had to increase my 20 mg daily prednisone dose to 30 mg to minimize my hip pain and shoulder pain joint complaints but...
Giant cell arteritis:I’m afraid and would appreciate any advice
In April of 2015 I was diagnosed with polymyalgia and giant cell arteritis and was put on 60m of prednisone daily.<br />After a month my...
PMR and Hip Osteoarthritis
Hello everyone, I was diagnosed with PMR in August. At the time, my rheumatologist took hip X-rays which showed moderate to severe osteoarthritis but I...
Pill splitting
I have had two rheumatologists discourage pill splitting. I have to believe they have what I'll call 'medical logic' for discouraging their patients splitting prednisone...
PMR 2ys and 4mos. Tapering to 1.5mg
PMR started Feb. 2022. Having had a flare up at 6mg (Sept. 2022 while tapering by 1mg/month) I then was put back to 15mg for...
Better to be in some pain or better to up the dose of prednisone?
Thank you for all of the information and guidance provided by members of this group. It has been very helpful. I have been tapering down...
What justifies an increase in prednisone?
I have been tapering for 5 months. I just started 5mg this week. Each time I have tapered after getting below 10mg I always seemed...
PMR and Fatigue. Interesting study
Lots of threads on here to the question of fatigue. I know I suffer from it. It is well documented that steroids can cause fatigue...
Do we actually “recover”?
Will there be a time when the PMR actually goes away, or is this a lifetime diagnosis? I have to taper off prednisone rather quickly,...
Prednisone Side Effects and Withdrawal Symptoms
Since it's been a couple of years since the last discussion I found about one of my problems since going on Pred---red eyes that are...
Rheumatoid Drs
I was diagnosed with PMR in August of 2023. My family doctor has been all I have seen about my disease. I was ok with...
PMR flare -Shoulder and neck pain..and headaches
I’ve had PMR now for a 18 months. Mostly pain in my hips, thighs, and lower back. I have been trying to taper down the...
Living with someone on high-dose long-term prednisone
I’d love to hear other people’s experiences of living with someone on high-dose, long-term prednisone. My husband has PMR and a serious case of GCA...
Urgent Question Regarding Prednisone Burst Dosage
Hello, I've had PMR for 2 years. After lots of struggles finally tapered to 5 mg daily. Currently on vacation hours from home, developed severe...
Just Started Actemra
I just wanted to share some info about my new treatment but wanted to give you a little history first. I was diagnosed with PMR...
Statins - side-effects, PMR, Giant Cell Arteritis
My husband was diagnosed with PMR May 2023, GCA (giant cell arteritis) Feb 2024. He's been on high-dose Prednisone the entire time. Started on 30...
Non-bilateral neck pain
I have many of the classic PMR symptoms and responded immediately to a 15 mg dosage of Prednisone. I’ve been tapering since the original prescription...
Kevzara and elevated liver enzymes ALT AST
Ten weeks after starting Kevzara my ALT & AST readings went from normal to very high values. (ALT = 137, AST = 54) As a...
New Methotrexate Study in PMR
As seen on X, another study showing no benefit in PMR using methotrexate. I watch a lot of the RheumNow videos on YouTube as they...
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