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Polymyalgia Rheumatica (PMR) Support Group

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Discussions (294)
PMR Case Study with Remaining Questions as of 09-04-2025
Background 1. PMR 40 -20-15-10-7.5-5-2.5-0 mg/daily tapering over 5 months, 77-yr old male in great shape. PMR triggered overseas dive trip (Malaysia) unexpectedly and exceedingly...
Last active: Sep 10 6:00pm
Low Dose Naltrexone and Prednisone for PMR?
My doctor has prescribed LDN and I will be receiving it soon from a compounding pharmacy. I am tapering prednisone, now at 12.5 (from 20...
Last active: Sep 27 11:36pm
Itchy tiny bumps on back
Has anyone experienced tiny reddish bumps on their back that are itchy, while tapering off prednisone? I’ve been tapering off the Prednisone each month which...
Last active: Feb 23 1:45pm
Anyone else with acceptable CRP (3.5) but significant discomfort?
Hi! Tapering slowly with excellent guidance from my Rheumatologist. Since below 9 mg. I've been finding my discomfort at each level getting worse. I have...
Last active: Feb 9 5:53pm
Painful Kevzara Injection
I'm a 73-year-old female in otherwise good health, but was diagnosed with PMR in August 2024. After tapering down from 20 mg/day Prednisone to zero,...
Last active: Jul 24 11:46am
Actemra Infusions
I was diagnosed with PMR and possible GCA in July 2024. In January 2025, I began Actemra infusions, every 4 weeks. I am currently on...
Last active: Sep 22 7:10pm
PMR due to immunotherapy for cancer.
I have cancer and receive immunotherapy. Now I have PMR due to an overactive immune system. I had a couple of treatments of the immunotherapy...
Last active: Aug 27, 2024
Rheumatologist has now diagnosed me with Rheumatoid Arthritis
My rheumatologist has now diagnosed me with Rheumatoid Arthritis due to extremely painful wrists beginning in April of this year. I was diagnosed with PMR...
Last active: Jun 18 1:46pm
Switching From Prednisone to Methotrexate!?
I was diagnosed with PMR 10 years ago and have been on low dose Prednisone (5mg) ever since. Flares happen about once a year on...
Last active: Aug 16 4:17am
Can ultrasound help confirm PMR diagnosis?
Diagnosed with PMR Jan 2024. Did the 20 mg prednisone to start, tapered down to 7.5 by August when symptoms returned. Back up to 20...
Last active: Feb 7 7:40am
PMR symptom flare from a head cold
I have been on prednisone (started at 30mg) since May and now have tapered to 5mg with no issues. This week Santa has brought me...
Last active: Dec 27, 2023
PMR and travel
I am wondering if anyone has traveled outside the country while tapering? If so, would like any travel recommendations. Thank you.
Last active: Sep 4 5:56pm
Disorientation and confusion
I’m in the process of tapering down from 20mg now down to 10. Does anyone else have the feeling of disorientation or confusion during the...
Last active: Jan 22 7:23pm
Anti-inflammatory diet and supplements for PMR
Hi, I have been dealing with polymyalgia rheumatica for a little over three months and have been taking 25 mg pf prednisone per day with...
Last active: Jan 22 7:39am
Lung complications with PMR?
I was diagnosed with PMR in August of last year, not showing many symptoms. I was on Prednisolone and am now tapering and should be...
Last active: Feb 26, 2024
PMR Dosages and Managing Symptoms
I've read through the discussions and note all the different dosages of prednisone, different lengths of time taking prednisone, plus the addition of other meds,...
Last active: Jul 27, 2024
Shingles vaccination while on steroids
I am 78, tapering down on Prenisolone, currently 5mg. I have been offered a shingles vaccination by my GP. Is there any evidence of danger...
Last active: Dec 31, 2022
Urgent Question Regarding Prednisone Burst Dosage
Hello, I've had PMR for 2 years. After lots of struggles finally tapered to 5 mg daily. Currently on vacation hours from home, developed severe...
Last active: Aug 29, 2022
PMR - How will I know I am in remission?
How will I know I am remission? I have significant pain each am... and am tapering 1 mg per month... Would remission mean I have...
Last active: May 12, 2023
How much Prednisone to increase?
Tapered from 10 mgm Prednisone to 7.5 mgm and it was too much. Increased to 10 mgm 10 days ago, but I'm still having pain...
Last active: Sep 1, 2024