Support Groups

Polymyalgia Rheumatica (PMR) Support Group

Lock icon Public Support Group
Clear Search
6,561 total results
Discussions (334)
Has anyone else had pain return after reducing pred by only 2.5 mg?
I'd been taking 15 mg of prednisone for two months after being diagnosed with PMR in early August (I am 62). I saw my doctor...
Last active: Oct 24, 2023
Any experience with Actemra - for my mom who is 90 years old
Subject: Actemra for 90-Year-Old with GCA, High BP & Kidney Disease — Looking for Real Experiences Hi everyone, I’m hoping to hear from anyone who...
Last active: Jul 14, 2025
Giant cell arteritis:I’m afraid and would appreciate any advice
In April of 2015 I was diagnosed with polymyalgia and giant cell arteritis and was put on 60m of prednisone daily.<br />After a month my...
Last active: Nov 19, 2025
I just started Kevzara and hope to tape of Prednisone., any advice?
I just started Kevzara and hope to tape of Prednisone. I live in a retirement home and enjoy social life around joint meals. With the...
Last active: Aug 26, 2025
Kevzara and prednisone for almost a year-
I have been treated for PMR with prednisone since June of 2022. Was doing well on 10 mg until 2 discs blew out in November...
Last active: May 21, 2024
Anyone tried Actemra (Tocilizumab) to treat PMR? FDA approved for GCA
I was diagnosed with PMR in 2007 which was in addition to reactive arthritis with recurring uveitis which was diagnosed in the early 1990's. I...
Last active: Dec 12, 2025
Biologic Medications-Video about how to decide what is right for you.
This is a good video discussing a biologic for autoimmune conditions. I like how it talks about identifying your priorities. It also says lifestyle changes...
Last active: Mar 4 5:01pm
PMR's effect on my hands
Has PMR affected your hands? In February, I noticed my legs and arms were often sore and stiff (no pain in my neck or shoulders)....
Last active: May 28, 2025
PMR recurrence
After 15 months my PMR resolved in Aug of ‘25. Just after New Year I started having symptoms. Put off testing until recently. It’s definitely...
Last active: Mar 17 6:53pm
Revisit the 'PMRandIL6' site _PMR needs NEW FACES of patients
THANK you for the prompt about adrenal insufficiency @dadcue ! You wrote in the Kevzara thread : " I was diagnosed with adrenal insufficiency after...
Last active: Jun 18, 2023
Abdominal discomfort, bloating and acid reflux
On June 22nd, 2024 I was diagnosed with PMR and was started on 20 mg prednisone. By July 5th I was down to 12.5 and...
Last active: Nov 7, 2025
Shingles vaccination while on steroids
I am 78, tapering down on Prenisolone, currently 5mg. I have been offered a shingles vaccination by my GP. Is there any evidence of danger...
Last active: Mar 6 10:53am
PMR & Statins
Recently, I’ve been trying to research out the possible connection of PMR and the use of statin drugs. Does anyone have any information they would...
Last active: Oct 15, 2025
Worried about GCA
I was diagnosed with PMR in June after months of severe morning pain in my hips to mid thighs and my neck. I started at...
Last active: Jan 3, 2025
GCA Relapse - A Slow Burn
I thought I was doing so well, off Prednisone almost two years, after having PMR and GCA for about two and a half years (one...
Last active: May 2, 2024
When did your prednisone side effects end?
From what I’ve read here, my case of PMR is not as severe as others. I respect your strength! After a year tapering from 40mg...
Last active: Feb 22 8:47am
Irregular heartbeat issues
I am tapering off prednisone and currently at 1 mg. I have been monitoring my blood pressure since I was on blood pressure medication prior...
Last active: Feb 18 2:50pm
Prednisone
Hi. I think I got PMR after having an infection when I got the first COVID vaccine in 2020. I gradually got severe joint pain...
Last active: 1 day ago
Prednisone and neuropathy
Before prednisone and PMR, I had a very, very mild case of non-diabetic neuropathy. I've been on pred for five months and in the last...
Last active: Mar 3 9:27pm
Are others with GCA and PMR on Tyenne Monthly Infusions?
I just joined today, 1/17/26, after having been diagnosed with GCA & PMR in 7/2024. On High dose (60mg) Prednisone for several months, tapering over...
Last active: Mar 14 2:01pm