Polymyalgia Rheumatica (PMR) Support Group

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Comments (4,004)

What was the level of Predisone that you were started at when you were first being...

https://connect.mayoclinic.org/comment/1257597/

Discussion: PMR and pain levels

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 14 7:52am

"RA has been around a long time." "Corticosteroids appear to be all that works if the...

https://connect.mayoclinic.org/comment/1092561/

Discussion: treatment of PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 23, 2024

I agree with Jeff97. I doubt whether your taking enough of the steroid. 2 months is...

https://connect.mayoclinic.org/comment/1283076/

Discussion: Taking prednisone before sleep.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 16 8:29am

I'm sorry you're experiencing GCA. I was diagnosed with GCA and PMR almost a year ago....

https://connect.mayoclinic.org/comment/1283706/

Discussion: Can you split Prednisone dose for GCA?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 17 3:01am

Hi...Brand new to this site. I've been treating my PMR with Prednisone from when I was...

https://connect.mayoclinic.org/comment/1284782/

Discussion: PMR - Prednisone and random itching patches of skin

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 18 1:30pm

I tapered from 20mg to 3mg in one year. Then got stuck mid-Feb at 3. I...

https://connect.mayoclinic.org/comment/1284548/

Discussion: Tapering prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 18 9:15am

I agree with @megz that the advice to stop prednisone when your dose is 7 mg...

https://connect.mayoclinic.org/comment/1296282/

Discussion: I’m just wondering how old most of you are with PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 4 9:24am

I was diagnosed with PMR the end of October. Was put on prednisone 15 mg but...

https://connect.mayoclinic.org/comment/1221553/

Discussion: Anyone having a lot of problems while taking leflunomide?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 25 3:42pm

I'm a believer in slow tapers too. I have just modified my belief based on my...

https://connect.mayoclinic.org/comment/1222749/

Discussion: Saying Goodbye and Thank You ALL

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 27 6:55am

That is so unfortunate. You were doing so well and then all of a sudden… Are...

https://connect.mayoclinic.org/comment/1224165/

Discussion: Kevzara and elevated liver enzymes ALT AST

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 28 6:47pm

Hi weten2, I am 71 and happen to be a registered dietitian and have had a...

https://connect.mayoclinic.org/comment/1224468/

Discussion: Prednisone or Diet?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 29 8:38am

"I’ve noticed on this forum that everyone just seems to be on prednisone and no other...

https://connect.mayoclinic.org/comment/1232000/

Discussion: The lowest effective dose, how is it defined?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 8 7:14am

Hello, I am currently on 3 mg LDN taken at 9pm and 2mg Prednisone in AM....

https://connect.mayoclinic.org/comment/1232922/

Discussion: shakiness in limbs

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 9 10:57am

Prednisone interacts with blood levels of cortisol so lab values that measure cortisol levels are meaningless...

https://connect.mayoclinic.org/comment/1234558/

Discussion: If you have tapering problems below 5 mg this might explain why.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 11 2:04pm

I'm not sure what to think about this study except that I wouldn't have wanted to...

https://connect.mayoclinic.org/comment/1234627/

Discussion: Your feedback when taking HYDROXYCHLOROQUINE with nothing else?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 11 3:23pm

I too had the same response to methylprednisolone! However, I have had a relapse this year...

https://connect.mayoclinic.org/comment/1209001/

Discussion: Comprehensive Overview Of PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 11 10:31am

Wow! Many thanks for your sharing. I can’t tell you how much it means to me....

https://connect.mayoclinic.org/comment/1217099/

Discussion: PMR and Work

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 20 7:05am

I can relate to your feelings of defeat. Fatigue, brain fog and pain from pmr added...

https://connect.mayoclinic.org/comment/1216998/

Discussion: Feeling defeated

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 19 11:23pm

I started with Actemra injections at first. I got off prednisone temporarily a year later. I...

https://connect.mayoclinic.org/comment/1217396/

Discussion: Feeling defeated

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 20 11:11am

HI @pmrsuzie I know there have been other answers to your question elsewhere -- CVS tablets...

https://connect.mayoclinic.org/comment/1217966/

Discussion: Pill splitting

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 21 8:13am

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