Polymyalgia Rheumatica (PMR) Support Group

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Hi Lily, This sure sounds familiar. I had immediate onset of PMR after knee replacement. Family...

https://connect.mayoclinic.org/comment/1132990/

Discussion: Temporal Artery Biopsy VS a color Doppler Ultrasound for GCA diagnosis

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 29, 2024

@hopeinal Hello, so sorry you are having this problem with prednisone tapering! Maybe your doctor needs...

https://connect.mayoclinic.org/comment/1132153/

Discussion: Any Tips For Tapering Off Prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 28, 2024

I currently do a monthly infusion of Actemra but I used to do Actemra injections. My...

https://connect.mayoclinic.org/comment/1131281/

Discussion: Any Tips For Tapering Off Prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 26, 2024

Did you ever get flares of uveitis along with the flares of reactive arthritis? After I...

https://connect.mayoclinic.org/comment/1130892/

Discussion: Off Prednisone but Residual Stiffness

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 26, 2024

@yertondg I posted a video about the "gold standard" for tapering off prednisone for the treatment...

https://connect.mayoclinic.org/comment/1129857/

Discussion: Has anyone successfully weaned off prednisone without using a biologic

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 24, 2024

I had a similar experience with Actemra (tocilizumab). I was skeptical that Actemra would work so...

https://connect.mayoclinic.org/comment/1126998/

Discussion: Grouped Into 3 Buckets

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 19, 2024

I am not sure what a successful prednisone taper looks like. I tapered to zero from...

https://connect.mayoclinic.org/comment/1124857/

Discussion: Prednisone Side Effects and Withdrawal Symptoms

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 16, 2024

I was diagnosed with PMR about 15 months ago. My first assigned prednisone dosage was too...

https://connect.mayoclinic.org/comment/1124064/

Discussion: PMR and Methotrexate

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 15, 2024

Thanks for you post it gives me hope. Currently at 10mg plus Actemra for CGA. and...

https://connect.mayoclinic.org/comment/1121464/

Discussion: Skin changes with prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 11, 2024

Yes, I agree! Prednisone gave me my life back. I was so miserable and debilitated from...

https://connect.mayoclinic.org/comment/1120546/

Discussion: Prednisone Side Effects and Withdrawal Symptoms

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 9, 2024

I would like to know what the latest science says. If the recommendations only say to...

https://connect.mayoclinic.org/comment/1117976/

Discussion: What justifies an increase in prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 4, 2024

@DadCue Your experience mirrors my own. I began 15 mg of Prednisone on April 15th, prescribed...

https://connect.mayoclinic.org/comment/1117838/

Discussion: What justifies an increase in prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 4, 2024

I've been on this group 2 1/2 years and it has been so helpful. At the...

https://connect.mayoclinic.org/comment/1116436/

Discussion: Thank you Reminder to PMR group

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 2, 2024

I've been told that the rule of thumb is that things like soreness, stiffness and burning...

https://connect.mayoclinic.org/comment/1115951/

Discussion: What justifies an increase in prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 1, 2024

To Christopherc: Don’t know if your comment was meant for me or not, my taper to...

https://connect.mayoclinic.org/comment/1112247/

Discussion: Changing from prednisone to NSAID’s

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 26, 2024

@pdxmac, you might find some helpful suggestions in this related discussion: - PMR Flare up: Any...

https://connect.mayoclinic.org/comment/1111248/

Discussion: Flare onset: Is this truly a flare?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 24, 2024

Don’t forget the importance of testing (ESR, CRP) in your evaluation of dosages and whether to...

https://connect.mayoclinic.org/comment/1110964/

Discussion: PMR Dosages and Managing Symptoms

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 24, 2024

I dont think I could have made it without steroids. Like John says within four hours...

https://connect.mayoclinic.org/comment/1109540/

Discussion: MOVING AND EXERCISE WITH PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 21, 2024

When do you start the Actemra infusions? I hope you have an excellent response to Actemra....

https://connect.mayoclinic.org/comment/1109249/

Discussion: Changing from prednisone to NSAID’s

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 21, 2024

Great you tapered off in that space of time took me 2 years to get from...

https://connect.mayoclinic.org/comment/1108976/

Discussion: Changing from prednisone to NSAID’s

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 20, 2024

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