Polymyalgia Rheumatica (PMR) Support Group

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Comments (4,009)

I appreciate everyone's responses. I had appt with my Rheumatologist. He checked my sed rate and...

https://connect.mayoclinic.org/comment/1178748/

Discussion: Flare

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 23, 2024

Everyone's reactions to prednisone are different. I did not gain weight or change my diet. I...

https://connect.mayoclinic.org/comment/1177413/

Discussion: Do not want to take steroids.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 21, 2024

This subject is very complicated. I don't know all that much other than what my rheumatologist...

https://connect.mayoclinic.org/comment/1176531/

Discussion: GCA prednisone vs. actemra infusion therapy

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 19, 2024

I didn't want to take Prednisone either. It wasn't as though I was given a choice....

https://connect.mayoclinic.org/comment/1175924/

Discussion: Do not want to take steroids.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 19, 2024

I think that's a tough one just because each of us are different. My rheumatologist was...

https://connect.mayoclinic.org/comment/1175307/

Discussion: Still confused about tapering

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 18, 2024

To add to the discussion on how to proceed tapering: Is the only marker to reduce...

https://connect.mayoclinic.org/comment/1174956/

Discussion: Still confused about tapering

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 17, 2024

There is no reason why a person can't do a "fast taper" if you have been...

https://connect.mayoclinic.org/comment/1172827/

Discussion: Feelings when tapering: My journey

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 13, 2024

I think that your nasty rheumy has moved here to Minnesota. Ha. same situation. I have...

https://connect.mayoclinic.org/comment/1172123/

Discussion: PMR savvy doctors in Portland Oregon

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 12, 2024

My previous rheumatologist had me taper down 1 mg per month…slowly. If I had a flare,...

https://connect.mayoclinic.org/comment/1172035/

Discussion: How much pain to tolerate

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 11, 2024

My experience is the pain you have during prednisone taper is less severe than what you...

https://connect.mayoclinic.org/comment/1171646/

Discussion: PMR savvy doctors in Portland Oregon

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 11, 2024

My prednisone dose is beginning to taper from 20 mg down to 12 1/2. I tapered...

https://connect.mayoclinic.org/comment/1169398/

Discussion: Back pain

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 7, 2024

This is such an interesting discussion for me. I was tapering, was at 5 mg of...

https://connect.mayoclinic.org/comment/1168738/

Discussion: Back pain

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 5, 2024

After seeing “megzies” post this AM, I queried my cardiologist on the topic during a scheduled...

https://connect.mayoclinic.org/comment/1168092/

Discussion: The affect of beta blockers on adrenaline and cortisol levels.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 4, 2024

I am also conflicted about the shot. Had the Flu shot recently with no problems. I...

https://connect.mayoclinic.org/comment/1163886/

Discussion: Need to decide to get a Covid Shot while I have PMR.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 28, 2024

According to Johns Hopkins Rheumatology website, "There is no “safe” dose of prednisone. Prednisone over time...

https://connect.mayoclinic.org/comment/1238474/

Discussion: New to PMR diagnosis

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 16 3:39pm

It was stressful for me waiting to see if the insurance company would approve the Actemra,...

https://connect.mayoclinic.org/comment/1241560/

Discussion: New to PMR diagnosis

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 20 1:10pm

I agree with @seniormed that the prednisone side effects don't happen to everyone and are manageable....

https://connect.mayoclinic.org/comment/1237186/

Discussion: New to PMR diagnosis

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 15 5:01am

I’m 61, but was diagnosed with PMR at 60 by a rheumatologist. I started with 20...

https://connect.mayoclinic.org/comment/1290394/

Discussion: I’m just wondering how old most of you are with PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 26 11:27am

I'm going down 1/2 mg per month. If I hurt, I first try 8 hour advanced...

https://connect.mayoclinic.org/comment/1264773/

Discussion: How to Slowly and Safely Taper Off Prednisone but ... no set rules.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 23 10:08am

Hi, I am wanting to taper off my prednisone. I will do it under a Drs...

https://connect.mayoclinic.org/comment/811682/

Discussion: Timing of taking prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 15, 2023

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