Polymyalgia Rheumatica (PMR) Support Group

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Comments (2,981)

Yes, it is a comfort no longer having to navigate the twisting path of PMR alone....

https://connect.mayoclinic.org/comment/840882/

Discussion: Had Shingles shot and now have PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 10, 2023

Welcome @barbaraphyllis, It is a comfort to find you are not alone. So glad that you...

https://connect.mayoclinic.org/comment/840572/

Discussion: Had Shingles shot and now have PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 9, 2023

hello out there fellow sufferers..I have pmr for a year and a half..every time i start...

https://connect.mayoclinic.org/comment/677157/

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 2, 2022

Welcome @kvd9, I'm sorry to hear you are experiencing a relapse with PMR. I'm currently in...

https://connect.mayoclinic.org/comment/675156/

Discussion: Alternative to Prednisone for Treating PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 26, 2022

I, too, am a retiree and have a somewhat similar routine for getting the benefit of...

https://connect.mayoclinic.org/comment/673863/

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 22, 2022

Hi @annettetompkins Is your doctor trying to taper you down from 10 mg to .5mg? That...

https://connect.mayoclinic.org/comment/673273/

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 20, 2022

Dear @oldhen are you being treated by a rheumatologist? When I started the taper, my doctor...

https://connect.mayoclinic.org/comment/672100/

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 18, 2022

Hello Carrie @pmr2016, Welcome to Connect. I can't imagine how difficult it is to live in...

https://connect.mayoclinic.org/comment/670631/

Discussion: Had Shingles shot and now have PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 13, 2022

PMR Induced by Merck Zostavax LIVE Shingles Vaccine Received vaccine on November 26 2016. The following...

https://connect.mayoclinic.org/comment/670605/

Discussion: Had Shingles shot and now have PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 13, 2022

Hi John, do you remember what your CRP numbers were when you were tapering? Mine went...

https://connect.mayoclinic.org/comment/670425/

Discussion: Prednisone tapering is challenging. What does remission feel like?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 12, 2022

Hello @traynor4, Welcome to Connect. You will notice that we merged your post with an existing...

https://connect.mayoclinic.org/comment/688349/

Discussion: Prednisone tapering is challenging. What does remission feel like?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 10, 2022

Hello Mike @vinnieh, Welcome to Connect. I'm really sorry to hear about your PMR symptoms flaring...

https://connect.mayoclinic.org/comment/686672/

Discussion: Alternative to Prednisone for Treating PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 5, 2022

Hi @sandy1988, Welcome to Connect. Tapering off of prednisone can be difficult for a lot of...

https://connect.mayoclinic.org/comment/685589/

Discussion: How to address PMR pain while decreasing prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 1, 2022

To Barbara- I saw the comment about a vibration plate. While tapering from 6 down to...

https://connect.mayoclinic.org/comment/685194/

Discussion: How to address PMR pain while decreasing prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 28, 2022

This is in reply to the original poster who asked about controlling PMR pain during tapering...

https://connect.mayoclinic.org/comment/684146/

Discussion: How to address PMR pain while decreasing prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 24, 2022

I am wondering if it is smart to try tapering as long as your ESR and...

https://connect.mayoclinic.org/comment/684025/

Discussion: How to address PMR pain while decreasing prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 24, 2022

The heaviness in my arms, upper chest, neck and shoulders started on Prednisone and continue on...

https://connect.mayoclinic.org/comment/683640/

Discussion: Adjusting to life with temporal arteritis

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 23, 2022

Hi Mickie @njtodctode, Both times I started at 20 mg and was able to drop down...

https://connect.mayoclinic.org/comment/737743/

Discussion: Chronic Fatigue while tapering Prednisone for PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 15, 2022

I was diagnosed with PMR in April 2022 after 2 months of guessing what was wrong...

https://connect.mayoclinic.org/comment/737634/

Discussion: Is anyone else diagnosed with PMR experiencing weakness in their legs?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 15, 2022

It has taken me 2 years to get to 7 mg of Prednisone from 80 mg....

https://connect.mayoclinic.org/comment/737276/

Discussion: Chronic Fatigue while tapering Prednisone for PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 14, 2022

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