Polymyalgia Rheumatica (PMR) Support Group

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Comments (4,736)

I was getting a lot of pain when trying to taper too fast, ie. one mg...

https://connect.mayoclinic.org/comment/1537931/

Discussion: PMR and pain levels

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 29 11:05am

@mech on the Kevzara website, scroll down to see the taper chart/graph. Their study group patients...

https://connect.mayoclinic.org/comment/1542946/

Discussion: Kevzara or Methotrexate

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 4 8:02pm

I have newly diagnosed PMR, and am starting a prednison taper. My rheumatologist is suggesting that...

https://connect.mayoclinic.org/comment/1539929/

Discussion: I have recently switched from Actemra to Tyenne due to insurance.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 31 7:15pm

@ds1 forgive me for the silly question. Makes sense to go up .5MG if pain comes...

https://connect.mayoclinic.org/comment/1550196/

Discussion: Prednisone tapering: How did you do it pain free?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 14 8:11am

I was pleased to see this discussion. I am almost 80 years old and 18 months...

https://connect.mayoclinic.org/comment/1545761/

Discussion: PMR and depression

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 8 12:43pm

I am a 74-year-old woman who was diagnosed with PMR in August of 2024. I was...

https://connect.mayoclinic.org/comment/1552742/

Discussion: Kevzara Side Effects?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 17 10:33am

From ChatGPT: Understanding Your Diagnosis • Are you confident this is PMR, or could it be...

https://connect.mayoclinic.org/comment/1545357/

Discussion: PMR: Please suggest important first questions to ask rheumatologist

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 8 6:48am

I am newly diagnosed as well and it is definately a bit confusing. My family doctor...

https://connect.mayoclinic.org/comment/1556883/

Discussion: Newly diagnosed and confused about the goal

Support Group: Polymyalgia Rheumatica (PMR)

Posted: 4 days ago

I was diagnosed with PMR July 2024. I started with 5mg prednisone, bumped to 7.5 mg...

https://connect.mayoclinic.org/comment/1558658/

Discussion: Diagnosed PMR 2017, can I get off prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: 2 days ago

When I was diagnosed with PMR and GCA, my rheumy put me on 60 mg. of...

https://connect.mayoclinic.org/comment/1551244/

Discussion: Giant Cell Arteritis

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 15 1:08pm

@cwbf I'm not so sure PMR always burns itself out or resolves on its own. My...

https://connect.mayoclinic.org/comment/1559117/

Discussion: Newly diagnosed and confused about the goal

Support Group: Polymyalgia Rheumatica (PMR)

Posted: 2 days ago

I was diagnosed with PMR in January 2026 by urgent care doctor. The pain came on...

https://connect.mayoclinic.org/comment/1559253/

Discussion: Newly diagnosed and confused about the goal

Support Group: Polymyalgia Rheumatica (PMR)

Posted: 2 days ago

Like you I was being treated for shoulder issues to go so far as localized cortisol....

https://connect.mayoclinic.org/comment/1560035/

Discussion: Normal Inflammatory Markers with PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: 1 day ago

Welcome @trishw47, It sounds like you have a great rheumatologist and GP. It took me 3...

https://connect.mayoclinic.org/comment/1560645/

Discussion: Diagnosed PMR 2017, can I get off prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: 4 hours ago

The rheumatologist will order much more extensive blood work which should help with your diagnosis and...

https://connect.mayoclinic.org/comment/1559930/

Discussion: Normal Inflammatory Markers with PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: 1 day ago

@stonewheel It just means that doctors will often introduce steroid-sparing medications at some point in time...

https://connect.mayoclinic.org/comment/1560929/

Discussion: Diagnosed PMR 2017, can I get off prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: 54 minutes ago

@randersonccc I'm so happy to read this. It validates some of the positives I have experienced...

https://connect.mayoclinic.org/comment/1537999/

Discussion: GLP-1 Drugs Effects on PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 29 12:12pm

I was dx with PMR about a yr ago and put on prednisone long term (about...

https://connect.mayoclinic.org/comment/1539549/

Discussion: GLP-1 Drugs Effects on PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 31 11:03am

@docmeehan Hello! Did you ever get the information that you were looking for a year ago?...

https://connect.mayoclinic.org/comment/1542150/

Discussion: PMR/GCA

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 3 3:15pm

@mech When I went on Kevzara l nothing was said abt prednisone levels. It was all...

https://connect.mayoclinic.org/comment/1542268/

Discussion: Kevzara or Methotrexate

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 3 6:53pm

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