Polymyalgia Rheumatica (PMR): Discussions | Page 8

You might also be interested in these related discussions in the PMR support group: - PMR...

https://connect.mayoclinic.org/comment/1136201/

Discussion: symptoms present but lab markers aren't high

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 4 2:01pm

At 3.5, (tapering 0.5 per month) I had several periods of level 3 to 4 pain...

https://connect.mayoclinic.org/comment/1137192/

Discussion: Cut back from 1mg prednisone to 1/2mg and shoulder arm pain returns

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 6 9:00am

Hi @jojobarrk, I think it's good that you notified the doctor. I hope you get an...

https://connect.mayoclinic.org/comment/1139108/

Discussion: Trembling and shaking, no energy - PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 9 7:16pm

I believe, although no doctor can conform positively, that I contracted PMR a week after my...

https://connect.mayoclinic.org/comment/1127956/

Discussion: Could your PMR have been a result of the Covid mRNA vaccine?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 21 8:12am

What you have described is one of the reasons why long term prednisone use can end...

https://connect.mayoclinic.org/comment/1128306/

Discussion: Has anyone successfully weaned off prednisone without using a biologic

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 21 6:21pm

I am on 1.5mg of prednisone.. 8 years now of having tapered from 25 and a...

https://connect.mayoclinic.org/comment/1127904/

Discussion: Grouped Into 3 Buckets

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 21 7:03am

Welcome @yertondg, Sorry you've had such a struggle with PMR and hopefully the new rheumatologist can...

https://connect.mayoclinic.org/comment/1129794/

Discussion: Has anyone successfully weaned off prednisone without using a biologic

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 24 10:01am

@dadcue @tuckerp OMG, you guys read my mind, lol. I was just thinking of what I...

https://connect.mayoclinic.org/comment/1147017/

Discussion: PMR and Fatigue. Interesting study

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 25 8:24am

My Rheum tells me that the inflammation and pain from PMR is NOT a sign of...

https://connect.mayoclinic.org/comment/1148813/

Discussion: Weaning off of all medicine - prednisone and methotrexate

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 28 3:27pm

I’d love to try a biologic to get off prednisone but until I get a specialist...

https://connect.mayoclinic.org/comment/1151948/

Discussion: Has anyone experienced steroid myopathy?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 4 2:47pm

I had a great response from Actemra. My first dose was on January 1st, 2019. It...

https://connect.mayoclinic.org/comment/1150722/

Discussion: I am on ACTEMRA for my giant Cell Arteritis but it seems like my PMR ?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 2 11:01am

Well, my third attempt at tapering didn't end well, same as the first two. I went...

https://connect.mayoclinic.org/comment/1152260/

Discussion: Weaning off of prednisone & pain management

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 5 8:58am

This last go round, my Rheumatologist gave me the option of Acterma, but then decided to...

https://connect.mayoclinic.org/comment/1153626/

Discussion: I am on ACTEMRA for my giant Cell Arteritis but it seems like my PMR ?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 7 3:35pm

I learned one of my early lessons on steroids from my wife. She has GBM. Brain...

https://connect.mayoclinic.org/comment/1131875/

Discussion: PMR due to immunotherapy for cancer.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 27 5:05pm

What was the side effect you had from the Kevzara injections? I didn't have much success...

https://connect.mayoclinic.org/comment/1132335/

Discussion: Just Started Actemra

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 28 11:34am

I was diagnosed with PMR in January 2024. My skin bruised and tore easily when I...

https://connect.mayoclinic.org/comment/1131121/

Discussion: Skin changes with prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 26 11:26am

@michwest, It did help me the second time around with PMR and I was able to...

https://connect.mayoclinic.org/comment/1133178/

Discussion: Has anyone used an anti inflammatory diet to get off prednisone ?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 30 7:34am

@emaureen You certainly seem to be doing great for an 80 year old! Better than me,...

https://connect.mayoclinic.org/comment/1133956/

Discussion: newly diagnosed

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 31 12:19pm

Your treatment sounds unconventional to me. Maybe read this new post. https://connect.mayoclinic.org/discussion/pmr-and-prednisone/?pg=1#comment-1143766 ---------------------------- or the following:...

https://connect.mayoclinic.org/comment/1143833/

Discussion: Feelings when tapering: My journey

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 19 7:39am

I have been on Prednisone since January of 2023. After 2 failed attempts in tapering off...

https://connect.mayoclinic.org/comment/1147078/

Discussion: Actemra vs Kevzara success?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 25 9:39am

Polymyalgia Rheumatica (PMR) Support Group