Polymyalgia Rheumatica (PMR) Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

4,022 total results

Comments (3,807)

Congratulations on tapering to 8 mg of Prednisone, that is awesome!! Kevzara is definitely the first...

https://connect.mayoclinic.org/comment/946130/

Discussion: Kevzara (sarilumab) to treat PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 11, 2023

Thanks Terry! It certainly sounds like the tapering has to be done by extremely small increments....

https://connect.mayoclinic.org/comment/946047/

Discussion: Has anyone else had pain return after reducing pred by only 2.5 mg?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 11, 2023

Thanks 😊 I have taken 2 doses of kevzara now and seen no improvement so far....

https://connect.mayoclinic.org/comment/945906/

Discussion: How does Kevzara help with PMR symptoms and pain? I am being weaned

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 11, 2023

I have had 8 injections of Kevzara. To date I have not had any improvements. I’ve...

https://connect.mayoclinic.org/comment/940613/

Discussion: Kevzara (sarilumab) to treat PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 2, 2023

I'm on Actemra which works in a similar way as Kevzara. Both Actemra and Kevzara are...

https://connect.mayoclinic.org/comment/939224/

Discussion: Kevzara (sarilumab) to treat PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 30, 2023

Good to hear that Kevzara is working for many of you. I am still on 15...

https://connect.mayoclinic.org/comment/939171/

Discussion: Kevzara (sarilumab) to treat PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 30, 2023

I was diagnosed with symptoms of GCA in April of 2023 with blood test results. I...

https://connect.mayoclinic.org/comment/934758/

Discussion: GCA (Giant Cell Arteritis) and PMR (polymyalgia rheumatica)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 23, 2023

I have been up and down from 8- 15 mgs of prednisone for about one and...

https://connect.mayoclinic.org/comment/934024/

Discussion: Kevzara (sarilumab) to treat PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 21, 2023

Hi Ed. Diagnosed about a month ago. I am struggling to find answers and understand all...

https://connect.mayoclinic.org/comment/933858/

Discussion: A month into my diagnosis with PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 21, 2023

It is not easy to find the right dosage, but when you finally do you should...

https://connect.mayoclinic.org/comment/932837/

Discussion: New PMR patient, wondering if mornings will become pain free someday

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 19, 2023

Here's what happened at my last visit at the rheumatologist: the practice is associated with a...

https://connect.mayoclinic.org/comment/931394/

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 17, 2023

Perhaps if your PMR pain is localized, this could be an option. In my case the...

https://connect.mayoclinic.org/comment/931082/

Discussion: Corticosteroid injections for polymyalgia rheumatica

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 16, 2023

Wow, that is my exact beginning story. My PCP started me on 20. I had the...

https://connect.mayoclinic.org/comment/931017/

Discussion: Prednisone tapering and extreme sweating

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 16, 2023

I had onset of symptoms in July of last year at 58 yrs old. It took...

https://connect.mayoclinic.org/comment/927981/

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 11, 2023

I haven’t posted in a while because I’ve been waiting for something new to report. I...

https://connect.mayoclinic.org/comment/925743/

Discussion: GCA (Giant Cell Arteritis) and PMR (polymyalgia rheumatica)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 7, 2023

Hi @svsmgm07, Welcome to Connect. Each of us are a little different when it comes to...

https://connect.mayoclinic.org/comment/924139/

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 4, 2023

Doc said maybe a year. Better than prednisone but tapering down too fast of methotrexate could...

https://connect.mayoclinic.org/comment/923331/

Discussion: How to address PMR pain while decreasing prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 3, 2023

I don't wish to suggest that Actemra is a perfect solution for PMR/GCA. My rheumatologist didn't...

https://connect.mayoclinic.org/comment/921731/

Discussion: Does adrenal insufficiency with unregulated inflammation cause flares?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 30, 2023

Finally, after 3-1/2 years on Prednisone and several flare-ups, I am today down to my last...

https://connect.mayoclinic.org/comment/919512/

Discussion: How did you cope with the side effects tapering off prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 27, 2023

@johnbishop - I know you had two bouts of PMR but you were able to taper...

https://connect.mayoclinic.org/comment/919116/

Discussion: Does adrenal insufficiency with unregulated inflammation cause flares?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 26, 2023

Autoimmune Diseases

Follow

16314

10 minutes ago

Follow

15523

31 minutes ago

Follow

11892

4 hours ago

Follow

3038

12 hours ago

Visiting Mayo Clinic

Follow

5696

1 day ago