Polymyalgia Rheumatica (PMR) Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

4,021 total results

Comments (3,806)

@christopherc, My first time with PMR lasted 3-1/2 years until I could taper off of prednisone....

https://connect.mayoclinic.org/comment/965199/

Discussion: PMR Remission

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 15, 2023

There are cases of glucocorticoid-resistant polymyalgia rheumatica. I was probably one of those cases. When my...

https://connect.mayoclinic.org/comment/965022/

Discussion: I’m Not Responding to Prednisone and I Need Advice

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 14, 2023

I have been on a PMR journey for almost 1 1/2 years. I like (and consult)...

https://connect.mayoclinic.org/comment/959446/

Discussion: Confused about PMR symptoms

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 5, 2023

I also had one side done, came back negative. Still have mild headache most days. Figure...

https://connect.mayoclinic.org/comment/959183/

Discussion: Temporal biopsies to diagnose GCA: What's your experience?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 5, 2023

Hitting PMR hard in the early stages has some merits. My ophthalmolgist and I successfully took...

https://connect.mayoclinic.org/comment/958318/

Discussion: How long has PMR lasted - I'm trying to find the average

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 3, 2023

I felt that creeping fatigue for about a week or ten days when I tapered from...

https://connect.mayoclinic.org/comment/958280/

Discussion: Chronic Fatigue while tapering Prednisone for PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 3, 2023

Welcome @nancygood, Sorry to hear your husband has been diagnosed with PMR. I don't have any...

https://connect.mayoclinic.org/comment/957319/

Discussion: Post PMR safety?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 1, 2023

I'm not a doctor, but I also am confident I developed PMR after my 4th Covid-19...

https://connect.mayoclinic.org/comment/956461/

Discussion: Post PMR safety?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 30, 2023

The Actemra has worked very well for me, with no noticeable side effects, and no relapses...

https://connect.mayoclinic.org/comment/954117/

Discussion: GCA, zoster, and (maybe) PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 26, 2023

When your cortisol level is low, the body loses the ability to regulate inflammation. It seems...

https://connect.mayoclinic.org/comment/953745/

Discussion: How does Kevzara help with PMR symptoms and pain? I am being weaned

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 25, 2023

At present, I have no choice but to take prednisone, even with osteoporosis, since it's either...

https://connect.mayoclinic.org/comment/951589/

Discussion: Has anyone else had pain return after reducing pred by only 2.5 mg?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 21, 2023

Hi nyxygirl. Thanks for the all the great info! It's amazing that you've been able to...

https://connect.mayoclinic.org/comment/950985/

Discussion: Has anyone else had pain return after reducing pred by only 2.5 mg?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 20, 2023

Are your concerns about side effects from Actemra or that it might not work? I had...

https://connect.mayoclinic.org/comment/950387/

Discussion: PMR with normal blood markers

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 19, 2023

Hi Everyone, I was diagnosed with PMR in May, 2023. Have had a very good response...

https://connect.mayoclinic.org/comment/949631/

Discussion: Any suggestions getting or not getting RSV, flu, covid vaccines?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 18, 2023

Thanks dadcue. I'm sorry it took you so long to taper down to 15 mg of...

https://connect.mayoclinic.org/comment/949325/

Discussion: Has anyone else had pain return after reducing pred by only 2.5 mg?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 17, 2023

What a terrible doctor. I wonder what her response would be if she got hit with...

https://connect.mayoclinic.org/comment/948402/

Discussion: What are your rheumatologists using to stop the pain from PMR.?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 16, 2023

Thanks lungranger77! It sounds like getting off prednisone, or even tapering down the dosage, is a...

https://connect.mayoclinic.org/comment/948197/

Discussion: Has anyone else had pain return after reducing pred by only 2.5 mg?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 15, 2023

Thanks Daniece. I'm sorry you ended up with fractured vertebrae -- that's horrible! This is what...

https://connect.mayoclinic.org/comment/947189/

Discussion: Has anyone else had pain return after reducing pred by only 2.5 mg?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 13, 2023

I was on a very lose dose of prednisone of 10 mg. and I tapered off...

https://connect.mayoclinic.org/comment/946640/

Discussion: Has anyone else had pain return after reducing pred by only 2.5 mg?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 12, 2023

Congratulations on tapering to 8 mg of Prednisone, that is awesome!! Kevzara is definitely the first...

https://connect.mayoclinic.org/comment/946130/

Discussion: Kevzara (sarilumab) to treat PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 11, 2023

Follow

15521

55 minutes ago

Autoimmune Diseases

Follow

16313

1 hour ago

Follow

11891

2 hours ago

Follow

3039

10 hours ago

Visiting Mayo Clinic

Follow

5695

1 day ago