Polymyalgia Rheumatica (PMR) Support Group

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Just FYI ... I was doing injections every 2 weeks at the start on Actemra. I...

https://connect.mayoclinic.org/comment/996102/

Discussion: How does Kevzara help with PMR symptoms and pain? I am being weaned

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 12, 2024

My rheumatologist wanted me to taper my prednisone dose as low as possible before starting Actemra....

https://connect.mayoclinic.org/comment/995964/

Discussion: GCA prednisone vs. actemra infusion therapy

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 12, 2024

No. There was a question when I had an incredibly acute and painful onset, which did...

https://connect.mayoclinic.org/comment/995644/

Discussion: How does Kevzara help with PMR symptoms and pain? I am being weaned

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 11, 2024

I knew you’d have intel :) I’ve just been hearing about the skinny side effect profile...

https://connect.mayoclinic.org/comment/995560/

Discussion: How does Kevzara help with PMR symptoms and pain? I am being weaned

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 11, 2024

@raven1955. I’m into my second month of having tapered completely off prednisone. I fully expected to...

https://connect.mayoclinic.org/comment/994652/

Discussion: PMR Taper and pain

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 9, 2024

Dear legend, I was fully vacinated for Covid in 2021 with Phizer vaccine. For about 30...

https://connect.mayoclinic.org/comment/993010/

Discussion: Had Shingles shot and now have PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 7, 2024

After I was diagnosed with PMR (May 2023), I had a dexa scan which indicated that...

https://connect.mayoclinic.org/comment/992264/

Discussion: PMR Taper and pain

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 6, 2024

It would be helpful if you knew your test numbers. If your history was a very...

https://connect.mayoclinic.org/comment/990531/

Discussion: Good days and bad days

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 2, 2024

Hello @whyohwhy, I would like to add my welcome to Connect along with @dadcue and others....

https://connect.mayoclinic.org/comment/990480/

Discussion: Good days and bad days

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 2, 2024

Please be careful on the dose you are taking. It is a balancing act and any...

https://connect.mayoclinic.org/comment/989477/

Discussion: Just diagnosed and still hurt in am with 20 mg

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 1, 2024

Did your rheumatologist start Actemra? When were you diagnosed with GCA and PMR? How long have...

https://connect.mayoclinic.org/comment/989107/

Discussion: Just diagnosed and still hurt in am with 20 mg

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 31, 2023

I’m very lucky that by and large on well controlled on Remicade. But on random occasions...

https://connect.mayoclinic.org/comment/988928/

Discussion: There is a national shortage of rheumatologists.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 30, 2023

I was started on Toprol which is a beta blocker years ago. After three weeks both...

https://connect.mayoclinic.org/comment/986314/

Discussion: Diagnosed with PMR shortly after starting statin drug.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 25, 2023

I would hang in there staying on the 5 mg ( I’m tapered to 4 mg...

https://connect.mayoclinic.org/comment/986274/

Discussion: PMR symptom flare from a head cold

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 25, 2023

Interesting that this happened after your Covid Vax and booster I became inflicted with PMR about...

https://connect.mayoclinic.org/comment/984202/

Discussion: Tapering prednisone and stress

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 21, 2023

How long were you on Actemra? I am about to start Kezvara which is similar to...

https://connect.mayoclinic.org/comment/983446/

Discussion: How long has PMR lasted - I'm trying to find the average

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 19, 2023

Now that I have stopped laughing histerically at your post. I have been on Kevzara for...

https://connect.mayoclinic.org/comment/982547/

Discussion: PMR: Are there treatment alternatives to Prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 18, 2023

In September, when I was tapering down prednisone (now off), I had a little pain in...

https://connect.mayoclinic.org/comment/982404/

Discussion: Side effects after Covid Vaccine - symptoms seem like PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 18, 2023

I have not had any guidance for reducing prednisone while taking Kevzara. I do know you...

https://connect.mayoclinic.org/comment/980138/

Discussion: How long has PMR lasted - I'm trying to find the average

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 14, 2023

@vanns, @johnbishop, @megz, and all... My goodness! What wonderful help from you all for those of...

https://connect.mayoclinic.org/comment/979078/

Discussion: Sugar and PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 12, 2023

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