Polymyalgia Rheumatica (PMR): Discussions | Page 65

Congratulations! Many of us are still on the tapper journey. I too sat for too long...

https://connect.mayoclinic.org/comment/1170534/

Discussion: Last Prednisone Pill

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 9, 2024

"Please let me know what all the problems I am going to have?" --------------------- You might...

https://connect.mayoclinic.org/comment/1169812/

Discussion: The affect of beta blockers on adrenaline and cortisol levels.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 7, 2024

Methotrexate works for many people but not for everyone. The trick is finding what medication works...

https://connect.mayoclinic.org/comment/1169607/

Discussion: How much pain to tolerate

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 7, 2024

Question is how much pain is worth tolerating to keep reducing prednisone? ------------------------------- I don't think...

https://connect.mayoclinic.org/comment/1169421/

Discussion: How much pain to tolerate

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 7, 2024

"So I can't be converted to a life-is-better-without-prednisone position till I have a reasonably good chance...

https://connect.mayoclinic.org/comment/1168311/

Discussion: The affect of beta blockers on adrenaline and cortisol levels.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 5, 2024

May25/2023 I had my 5th covid vaccine, 2 days later I could hardly walk with hip...

https://connect.mayoclinic.org/comment/1222149/

Discussion: Getting COVID, Flu etc vaccines while treating for PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 26 11:00am

I have appreciated the following point of view that is talked about in the following link....

https://connect.mayoclinic.org/comment/1228579/

Discussion: Can ultrasound help confirm PMR diagnosis?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 3 11:17am

Edema (swelling due to fluid) is a common side effect of prednisone. I had swelling in...

https://connect.mayoclinic.org/comment/1229928/

Discussion: Decrease in swelling after tapering prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 5 9:47am

My ESP and CRP have been normal from the beginning, causing my internist to hold off...

https://connect.mayoclinic.org/comment/1223110/

Discussion: what does the community consider a normal SED rate for GCA/PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 27 11:39am

I was diagnosed w/pmr in april, 2024 and prescribed 15 mg of prednisone. I was able...

https://connect.mayoclinic.org/comment/1224496/

Discussion: Using methotrexate with PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 29 9:00am

I started Methotrexate end of December 2024, and my PMR symptoms are much better but still...

https://connect.mayoclinic.org/comment/1225318/

Discussion: Using methotrexate with PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 30 9:26am

You should work with your rheumatologist to see what dose of prednisone you should be taking....

https://connect.mayoclinic.org/comment/1224930/

Discussion: Prednisone duration

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 29 5:13pm

Hi @noti, Unfortunately I don't think it's the same for everyone and can be difficult for...

https://connect.mayoclinic.org/comment/1232418/

Discussion: Path to 0mg and acceptable discomfort?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 8 3:14pm

Yes, I agree that everyone is different and slow taper is less likely to encounter flares....

https://connect.mayoclinic.org/comment/1232721/

Discussion: The lowest effective dose, how is it defined?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 9 7:15am

I don't have any experience with Kevzara but I have been on Actemra (tocilizumab) since January...

https://connect.mayoclinic.org/comment/1053066/

Discussion: Starting treatment with Kevzara: My journey

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 18, 2024

Congratulations for tapering off Prednisone. I hope you can stay off Prednisone. I was on Prednisone...

https://connect.mayoclinic.org/comment/1331305/

Discussion: Any experiences with Kevzara (sarilumab)?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 20 12:11pm

In my opinion, prednisone perpetuates PMR after the adrenals are suppressed. I wonder how many people...

https://connect.mayoclinic.org/comment/1162758/

Discussion: PMR and Methotrexate

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 25, 2024

If you are at 2.5 mg, I think it is important to have your cortisol level...

https://connect.mayoclinic.org/comment/1160511/

Discussion: PMR pain management with medical cannabis

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 21, 2024

I started with Actemra (tociliumab) injections every 2 weeks. After a year, the injections were changed...

https://connect.mayoclinic.org/comment/1160479/

Discussion: PMR pain management with medical cannabis

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 21, 2024

Hi @anncoco57, I had pain in the feet and legs including the back of my knees...

https://connect.mayoclinic.org/comment/1160297/

Discussion: Pain - at back of knees?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 21, 2024

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