Polymyalgia Rheumatica (PMR) Support Group

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Just FYI ... I was doing injections every 2 weeks at the start on Actemra. I...

https://connect.mayoclinic.org/comment/996102/

Discussion: How does Kevzara help with PMR symptoms and pain? I am being weaned

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 12 11:41am

@seniormed Your story has some parallels to my story. I was diagnosed at the age of...

https://connect.mayoclinic.org/comment/1020947/

Discussion: Anyone had a similar experience?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 23 8:14am

Yes, the first time diagnosed was 2007 and lasted until summer 2010, about 3-1/2 years. It...

https://connect.mayoclinic.org/comment/1023140/

Discussion: Kevzara (sarilumab) to treat PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 26 1:47pm

Hi. And thanks for your post. I'm at the one year mark this month. Last Sept....

https://connect.mayoclinic.org/comment/1022102/

Discussion: Post prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 25 8:12am

i too am being tapered off prednisone i took 10 mgs a day and now 7...

https://connect.mayoclinic.org/comment/1023854/

Discussion: Tapering off of Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 27 3:43pm

Methotrexate is commonly used in Australia for PMR patients who do not respond well to Prednisone...

https://connect.mayoclinic.org/comment/1025007/

Discussion: New Diagnosis of Polymyalgia Rheumatica (Husband)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 29 1:39pm

Now that I have stopped laughing histerically at your post. I have been on Kevzara for...

https://connect.mayoclinic.org/comment/982547/

Discussion: PMR: Are there treatment alternatives to Prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 18, 2023

Did your rheumatologist start Actemra? When were you diagnosed with GCA and PMR? How long have...

https://connect.mayoclinic.org/comment/989107/

Discussion: Just diagnosed and still hurt in am with 20 mg

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 31, 2023

I’m very lucky that by and large on well controlled on Remicade. But on random occasions...

https://connect.mayoclinic.org/comment/988928/

Discussion: There is a national shortage of rheumatologists.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 30, 2023

It would be helpful if you knew your test numbers. If your history was a very...

https://connect.mayoclinic.org/comment/990531/

Discussion: Good days and bad days

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 2 8:00pm

Please be careful on the dose you are taking. It is a balancing act and any...

https://connect.mayoclinic.org/comment/989477/

Discussion: Just diagnosed and still hurt in am with 20 mg

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 1 3:51am

Hello @whyohwhy, I would like to add my welcome to Connect along with @dadcue and others....

https://connect.mayoclinic.org/comment/990480/

Discussion: Good days and bad days

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 2 5:32pm

@bitsygirl, The prednisone is the magic pill that makes PMR symptoms go away or at least...

https://connect.mayoclinic.org/comment/1002026/

Discussion: Advice/experience about going back on Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 22 3:30pm

Hello. I am 54 and was diagnosed about 3 years ago. I have added flax seed...

https://connect.mayoclinic.org/comment/1009533/

Discussion: PMR onset under 55?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 4 2:13pm

Finally, after 3-1/2 years on Prednisone and several flare-ups, I am today down to my last...

https://connect.mayoclinic.org/comment/919512/

Discussion: How did you cope with the side effects tapering off prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 27, 2023

Prednisone is gentler than Predniselone in the first place. After 5mg, he will need to taper...

https://connect.mayoclinic.org/comment/1013480/

Discussion: reducing prednisolone once you get down to 5mg

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 11 4:40am

I'm in day 4 of flu A and it's not fun. Was wondering whether anyone might...

https://connect.mayoclinic.org/comment/1025950/

Discussion: PMR Flair up From a Virus?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 2 9:05am

After reading a ton of posts on a facebook's Healthunlocked, the posters all take prednisone plus...

https://connect.mayoclinic.org/comment/1026592/

Discussion: Weaning off of prednisone & pain management

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 3 9:04am

I would also like to congratulate you for getting off prednisone! My experience was much the...

https://connect.mayoclinic.org/comment/1022191/

Discussion: Post prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 25 9:32am

I did drop a little on the Acterma, a couple months of alternate weeks instead of...

https://connect.mayoclinic.org/comment/1026926/

Discussion: Can you split Prednisone dose for GCA?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 3 4:18pm

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