Polymyalgia Rheumatica (PMR) Support Group

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That truly is an interesting question. My opinion is PMR causes "systemic inflammation." Most of the...

https://connect.mayoclinic.org/comment/1063675/

Discussion: PMR target areas

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 7, 2024

Hello, I live in the UK and have pmr. You may find these tapers a little...

https://connect.mayoclinic.org/comment/1062007/

Discussion: 2 year struggle to get off prednisone still hard to get from 3 to 2mg

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 4, 2024

@csm70 I'm glad you found it valuable and hope you can taper the prednisone quickly. That's...

https://connect.mayoclinic.org/comment/1061614/

Discussion: Actemra & Methotrexate for GCA treatment

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 3, 2024

Welcome @daveycarls, That's great to hear that you have gotten off of the steroids for PMR....

https://connect.mayoclinic.org/comment/1061547/

Discussion: 2 year struggle to get off prednisone still hard to get from 3 to 2mg

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 3, 2024

@victoriab The overwhelming fatigue is likely a symptom of adrenal insufficiency and a low cortisol level....

https://connect.mayoclinic.org/comment/1061153/

Discussion: 2 year struggle to get off prednisone still hard to get from 3 to 2mg

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 3, 2024

My PMR battle lasted 12 years until I was switched from Prednisone to a biologic medication...

https://connect.mayoclinic.org/comment/1060818/

Discussion: 2 year struggle to get off prednisone still hard to get from 3 to 2mg

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 2, 2024

Thanks for the feedback, Becky. I believe my doctor would be ok with the idea of...

https://connect.mayoclinic.org/comment/1060513/

Discussion: Actemra & Methotrexate for GCA treatment

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 1, 2024

I'm convinced my last Pfizer shot gave me PMR. I had my sixth shot in May...

https://connect.mayoclinic.org/comment/1059747/

Discussion: Anyone diagnosed with PMR after the Covid vaccine?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 30, 2024

I was also the poster child of health doing Triathlons at and before 70 years old...

https://connect.mayoclinic.org/comment/1059580/

Discussion: Anyone diagnosed with PMR after the Covid vaccine?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 30, 2024

PMR was diagnosed when I was 52 years old. I tapered off prednisone at age 67....

https://connect.mayoclinic.org/comment/1057736/

Discussion: Clinical Information or Fishbowl?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 26, 2024

I found the following excerpt to be interesting. Barriers to research: Fifteen percent of the responding...

https://connect.mayoclinic.org/comment/1055786/

Discussion: Clinical Information or Fishbowl?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 23, 2024

Thank you for your honest reply about the benefits and pitfalls of THC and CBD. Funny...

https://connect.mayoclinic.org/comment/1054445/

Discussion: PMR pain management with medical cannabis

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 20, 2024

In summer of 2023 I was dealing with a lot of upper back pain. Finally I...

https://connect.mayoclinic.org/comment/1054409/

Discussion: PMR and MGUS/SSM/MM multiple myeloma

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 20, 2024

Welcome @321design, That does seem to be the magic and elusive question when diagnosed with PMR...

https://connect.mayoclinic.org/comment/1053858/

Discussion: New PMR patient, wondering if mornings will become pain free someday

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 19, 2024

"basically wean down until you get sick, increase when you get sick" That sums it up...

https://connect.mayoclinic.org/comment/1053264/

Discussion: Factors that encourage the body to begin producing cortisol again

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 18, 2024

I don't have any experience with Kevzara but I have been on Actemra (tocilizumab) since January...

https://connect.mayoclinic.org/comment/1053066/

Discussion: Starting treatment with Kevzara: My journey

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 18, 2024

Thank you! I’ve been off prednisone for 7 weeks after tapering for 13 months. Every day...

https://connect.mayoclinic.org/comment/1053057/

Discussion: Chronic Fatigue while tapering Prednisone for PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 18, 2024

Hi @dadcue and everyone really- Thanks so much for the detailed replies and resources. Sorry to...

https://connect.mayoclinic.org/comment/1052116/

Discussion: Adrenal Insufficiency and Tapering Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 17, 2024

Good morning @besmith57 - I'd like to tell you about my PMR-friend who just returned from...

https://connect.mayoclinic.org/comment/1049449/

Discussion: PMR and Methotrexate

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 12, 2024

I got euphoria on 20mg and was wondering why I never heard of this drug. Of...

https://connect.mayoclinic.org/comment/1049207/

Discussion: What to tell adult kids? Dad diagnosed with giant cell arteritis (GCA)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 11, 2024

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