Polymyalgia Rheumatica (PMR): Discussions | Page 62

Good morning. Diagnosed in Jan 23. Got all the way to no prednisone in September for...

https://connect.mayoclinic.org/comment/975427/

Discussion: How long has PMR lasted - I'm trying to find the average

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 5, 2023

I agree with @megz When I was first diagnosed with PMR -- pain would wake me...

https://connect.mayoclinic.org/comment/974580/

Discussion: PMR Dosages and Managing Symptoms

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 3, 2023

Great informative string. I was diagnosed with PMR about a year ago. Like most on this...

https://connect.mayoclinic.org/comment/975612/

Discussion: How long has PMR lasted - I'm trying to find the average

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 5, 2023

Anxious to get off Prednisone I tapered the dose too rapidly and now have to go...

https://connect.mayoclinic.org/comment/975738/

Discussion: How to avoid flares

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 6, 2023

@ddmo Hi Dianne. You may find the following discussion useful. It includes my comments along with...

https://connect.mayoclinic.org/comment/977844/

Discussion: GCA conserns

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 9, 2023

@vanns, @johnbishop, @megz, and all... My goodness! What wonderful help from you all for those of...

https://connect.mayoclinic.org/comment/979078/

Discussion: Sugar and PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 12, 2023

I have not had any guidance for reducing prednisone while taking Kevzara. I do know you...

https://connect.mayoclinic.org/comment/980138/

Discussion: How long has PMR lasted - I'm trying to find the average

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 14, 2023

Has anyone been diagnosed with PMR after the shingles vaccine? I had my initial dose of...

https://connect.mayoclinic.org/comment/840526/

Discussion: Had Shingles shot and now have PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 9, 2023

@raven1955. I’m into my second month of having tapered completely off prednisone. I fully expected to...

https://connect.mayoclinic.org/comment/994652/

Discussion: PMR Taper and pain

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 9 5:57pm

Dear legend, I was fully vacinated for Covid in 2021 with Phizer vaccine. For about 30...

https://connect.mayoclinic.org/comment/993010/

Discussion: Had Shingles shot and now have PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 7 9:21am

I was on prednisone for more than 12 years. I have been completely off prednisone for...

https://connect.mayoclinic.org/comment/1016416/

Discussion: PMR Taper and pain

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 15 4:25pm

What is discontinuation syndrome? Prednisone withdrawal? When I tapered to 7.5mg in October from 10mg in...

https://connect.mayoclinic.org/comment/1017412/

Discussion: How did you cope with the side effects tapering off prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 17 11:25am

My rheumatologist wanted me to taper my prednisone dose as low as possible before starting Actemra....

https://connect.mayoclinic.org/comment/995964/

Discussion: GCA prednisone vs. actemra infusion therapy

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 12 8:52am

Congratulations on tapering to 8 mg of Prednisone, that is awesome!! Kevzara is definitely the first...

https://connect.mayoclinic.org/comment/946130/

Discussion: Kevzara (sarilumab) to treat PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 11, 2023

After I was diagnosed with PMR (May 2023), I had a dexa scan which indicated that...

https://connect.mayoclinic.org/comment/992264/

Discussion: PMR Taper and pain

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 6 7:53am

I agree—it’s a really broad, generalization. Inflammation does promote healing in the right amount, but excessive...

https://connect.mayoclinic.org/comment/1021827/

Discussion: Upcoming surgery prevents prednisone use

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 24 2:09pm

I had a synovial cyst removed and bone spur removed from L5-S1 in December12, 2023. The...

https://connect.mayoclinic.org/comment/1022212/

Discussion: Upcoming surgery prevents prednisone use

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 25 10:00am

No. There was a question when I had an incredibly acute and painful onset, which did...

https://connect.mayoclinic.org/comment/995644/

Discussion: How does Kevzara help with PMR symptoms and pain? I am being weaned

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 11 2:15pm

I knew you’d have intel :) I’ve just been hearing about the skinny side effect profile...

https://connect.mayoclinic.org/comment/995560/

Discussion: How does Kevzara help with PMR symptoms and pain? I am being weaned

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 11 11:32am

Just FYI ... I was doing injections every 2 weeks at the start on Actemra. I...

https://connect.mayoclinic.org/comment/996102/

Discussion: How does Kevzara help with PMR symptoms and pain? I am being weaned

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 12 11:41am

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