Polymyalgia Rheumatica (PMR) Support Group

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Comments (3,802)

I had a much worse version of that at the beginning of my PMR journey. Which...

https://connect.mayoclinic.org/comment/1103557/

Discussion: Tingling fingers part of PMR symptom?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 11, 2024

I started back to regular exercising with Tai Chi, which I studied for several years in...

https://connect.mayoclinic.org/comment/1101034/

Discussion: MOVING AND EXERCISE WITH PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 7, 2024

I can certainly empathize with your thin skin issue!! I do have to be careful not...

https://connect.mayoclinic.org/comment/1100711/

Discussion: Prednisone Side Effects and Withdrawal Symptoms

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 7, 2024

Welcome to the forum, you are among friends. Remember that patience is a virtue with PMR,...

https://connect.mayoclinic.org/comment/1100694/

Discussion: How do I handle the ups and downs of PMR? So many questions.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 7, 2024

I haven't seen many people who taper the way I do, but it's working well for...

https://connect.mayoclinic.org/comment/1100510/

Discussion: Feeling Stuck at 7mg Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 6, 2024

My current experience is this: Tapered from 10 to 5 at 1 per month, then at...

https://connect.mayoclinic.org/comment/1100468/

Discussion: Feeling Stuck at 7mg Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 6, 2024

Don't skip your morning dose. Just take whatever dose you took today and carry on with...

https://connect.mayoclinic.org/comment/1099985/

Discussion: Feeling Stuck at 7mg Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 5, 2024

They ordered the biopsy and I did not have GCA. I was put on prednisone 20...

https://connect.mayoclinic.org/comment/1099650/

Discussion: A Bizarre Change in Condition

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 5, 2024

Tylenol (acetaminophen) is okay to take with prednisone. It's called Panadol (paracetamol) in Australia. My doctor...

https://connect.mayoclinic.org/comment/1099008/

Discussion: Very new to PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 4, 2024

I’ve had PMR since early April 2022. Have been under the care of a rheumatologist since...

https://connect.mayoclinic.org/comment/1098069/

Discussion: Holistic medicine approach to PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 2, 2024

Google "Dead slow taper." It is a tried and true method for getting off prednisone for...

https://connect.mayoclinic.org/comment/1097803/

Discussion: I keep relapsing when I try to get off prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 2, 2024

I have been on Actemra for 5 years. I started with injections every 2 weeks. I...

https://connect.mayoclinic.org/comment/1096843/

Discussion: Good information to know about prednisone.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 30, 2024

I didn't have pain and stiffness for another autoimmune condition which had symptoms similar to PMR....

https://connect.mayoclinic.org/comment/1095799/

Discussion: Anyone have discomfort or pain when tapering off prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 28, 2024

I don't have any experience with changing but I was a DEX user. I know I...

https://connect.mayoclinic.org/comment/1095168/

Discussion: In process of changing from dexamethasone back to prednisone any sugg?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 27, 2024

I am tapering my prednisone dose and am now down to 5mg . My rheumatologist wants...

https://connect.mayoclinic.org/comment/1094858/

Discussion: Are painful swollen hands and fingers a PMR flare?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 26, 2024

Methotrexate is used to help prevent inflammation while trying to taper off prednisone. The idea if...

https://connect.mayoclinic.org/comment/1094212/

Discussion: Tapering Pains Body Response or PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 25, 2024

My mantra is there isn't any "best way" to taper off Prednisone. There are some guidelines...

https://connect.mayoclinic.org/comment/1094069/

Discussion: Tapering Pains Body Response or PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 25, 2024

Same here. Very gradual elongated taper by .5mg. Began at 10 in April, only down to...

https://connect.mayoclinic.org/comment/1092505/

Discussion: I keep relapsing when I try to get off prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 23, 2024

steroids do have side effects. But so can the pain/inflammation you endure trying to not use...

https://connect.mayoclinic.org/comment/1092328/

Discussion: treatment of PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 23, 2024

I just saw these webinars on the PMRGCAUK website and thought they might be helpful. --...

https://connect.mayoclinic.org/comment/1092242/

Discussion: I keep relapsing when I try to get off prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 23, 2024

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