Polymyalgia Rheumatica (PMR) Support Group

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I was diagnosed with symptoms of GCA in April of 2023 with blood test results. I...

https://connect.mayoclinic.org/comment/934758/

Discussion: GCA (Giant Cell Arteritis) and PMR (polymyalgia rheumatica)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 23, 2023

I have been up and down from 8- 15 mgs of prednisone for about one and...

https://connect.mayoclinic.org/comment/934024/

Discussion: Kevzara (sarilumab) to treat PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 21, 2023

I'm on Actemra which works in a similar way as Kevzara. Both Actemra and Kevzara are...

https://connect.mayoclinic.org/comment/939224/

Discussion: Kevzara (sarilumab) to treat PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 30, 2023

After 15 months of prednisone/Medrol tapers I have failed both trials. Rheumatology recommending Kevzara (FDA approved...

https://connect.mayoclinic.org/comment/886720/

Discussion: Kevzara (sarilumab) to treat PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 28, 2023

Personally, I wouldn't take the chance on any new drug due to my PMR being a...

https://connect.mayoclinic.org/comment/858355/

Discussion: Kevzara (sarilumab) to treat PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 11, 2023

How are you doing with Actemra? I think you were lucky to start Actemra as quickly...

https://connect.mayoclinic.org/comment/888331/

Discussion: Kevzara (sarilumab) to treat PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 1, 2023

Just took my first dose of Kevzara two days ago. Diagnosed in January 2023, on 15...

https://connect.mayoclinic.org/comment/883244/

Discussion: Kevzara (sarilumab) to treat PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 22, 2023

I have had 8 injections of Kevzara. To date I have not had any improvements. I’ve...

https://connect.mayoclinic.org/comment/940613/

Discussion: Kevzara (sarilumab) to treat PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 2, 2023

Perhaps if your PMR pain is localized, this could be an option. In my case the...

https://connect.mayoclinic.org/comment/931082/

Discussion: Corticosteroid injections for polymyalgia rheumatica

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 16, 2023

Here's what happened at my last visit at the rheumatologist: the practice is associated with a...

https://connect.mayoclinic.org/comment/931394/

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 17, 2023

I haven’t posted in a while because I’ve been waiting for something new to report. I...

https://connect.mayoclinic.org/comment/925743/

Discussion: GCA (Giant Cell Arteritis) and PMR (polymyalgia rheumatica)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 7, 2023

Hi again- Echoing the others here and sending support. We worked with my dad’s rheumatologist on...

https://connect.mayoclinic.org/comment/884834/

Discussion: When and How to Taper Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 25, 2023

I too developed PMR 7 to 10 days after 2nd Moderna booster shot, July 2022 at...

https://connect.mayoclinic.org/comment/923423/

Discussion: Can PMR (Polymyalgia Rheumatica) be induced by vaccine?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 3, 2023

At present, I have no choice but to take prednisone, even with osteoporosis, since it's either...

https://connect.mayoclinic.org/comment/951589/

Discussion: Has anyone else had pain return after reducing pred by only 2.5 mg?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 21, 2023

When your cortisol level is low, the body loses the ability to regulate inflammation. It seems...

https://connect.mayoclinic.org/comment/953745/

Discussion: How does Kevzara help with PMR symptoms and pain? I am being weaned

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 25, 2023

The Actemra has worked very well for me, with no noticeable side effects, and no relapses...

https://connect.mayoclinic.org/comment/954117/

Discussion: GCA, zoster, and (maybe) PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 26, 2023

An "effective dose" takes into account a variety of factors. It isn't only about pain. Even...

https://connect.mayoclinic.org/comment/909409/

Discussion: The lowest effective dose, how is it defined?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 8, 2023

Good to hear that Kevzara is working for many of you. I am still on 15...

https://connect.mayoclinic.org/comment/939171/

Discussion: Kevzara (sarilumab) to treat PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 30, 2023

I had been on prednisone for over a year and half, but gradually tapered off last...

https://connect.mayoclinic.org/comment/763952/

Discussion: Chronic Fatigue while tapering Prednisone for PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 21, 2022

I have been on a PMR journey for almost 1 1/2 years. I like (and consult)...

https://connect.mayoclinic.org/comment/959446/

Discussion: Confused about PMR symptoms

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 5, 2023

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