Polymyalgia Rheumatica (PMR): Discussions | Page 58

My experience has been very similar to yours. I was diagnosed with GCA and PMR in...

https://connect.mayoclinic.org/comment/1288758/

Discussion: What is the goal when tapering?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 24 9:07am

I agree with @johnbishop and I don't think there is a gaping hole in the medical...

https://connect.mayoclinic.org/comment/1289041/

Discussion: Side effects of prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 24 2:46pm

In my experience the drug companies found a way around the $2000 out of pocket maximum....

https://connect.mayoclinic.org/comment/1241584/

Discussion: New to PMR diagnosis

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 20 1:47pm

"I know my experience with rapid pred taper is contrary to many others experiences I have...

https://connect.mayoclinic.org/comment/1239650/

Discussion: New to PMR diagnosis

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 18 7:30am

I am 78 and was diagnosed with PMR Almost 3 yrs ago. I was able to...

https://connect.mayoclinic.org/comment/1290488/

Discussion: I’m just wondering how old most of you are with PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 26 12:58pm

I am currently on Tyenne and tapering off Prednisone. I was given the choice by my...

https://connect.mayoclinic.org/comment/1292709/

Discussion: Insurance coverage for Actemra infusion with straight Medicare?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 29 11:54am

Hi. I had my blood work done this past Friday and just got my results back...

https://connect.mayoclinic.org/comment/1296735/

Discussion: Length of PMR condition

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 4 4:36pm

"Perhaps if we had tapered much more slowly at the beginning things would have gone better."...

https://connect.mayoclinic.org/comment/1280830/

Discussion: Peripheral Neuropathy - Result of PMR or Prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 13 11:13am

In theory, it shouldn't be a question of one or the other but for each person...

https://connect.mayoclinic.org/comment/1277389/

Discussion: Better to be in some pain or better to up the dose of prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 8 7:13pm

The same thing applies to adrenal insufficiency from long term prednisone use. It wasn't the pain...

https://connect.mayoclinic.org/comment/1278031/

Discussion: Better to be in some pain or better to up the dose of prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 9 3:19pm

I was 52 when PMR was diagnosed and treated with Prednisone for 12 years. PMR never...

https://connect.mayoclinic.org/comment/1290105/

Discussion: I’m just wondering how old most of you are with PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 26 7:02am

I’m 78-diagnosed at 77. Started prednisone at 15 mg and now tapering back and forth between...

https://connect.mayoclinic.org/comment/1290232/

Discussion: I’m just wondering how old most of you are with PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 26 9:09am

Agree with all your comments. For myself this applies. Also I’ve tapered off twice of prednisone...

https://connect.mayoclinic.org/comment/1296488/

Discussion: miss diagnosed???

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 4 12:22pm

From 10 to 5, I tapered at 1 per month. Most random discomforts were during this...

https://connect.mayoclinic.org/comment/1272296/

Discussion: Tapering prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 2 7:33am

Your rheumatologist sounds sensible to me. Better than people who advise increasing prednisone for niggles of...

https://connect.mayoclinic.org/comment/1096771/

Discussion: Are painful swollen hands and fingers a PMR flare?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 30, 2024

lol… I can relate to more naps. It might have something to do with your cortisol...

https://connect.mayoclinic.org/comment/1282377/

Discussion: taper decision - stay at 1MG or keep going lower

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 15 9:36am

" It’s hard to know what is a problem and what is part of the tapering...

https://connect.mayoclinic.org/comment/1285391/

Discussion: Tapering prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 19 11:29am

1. What was your starting dosage of prednisone and how long have your been taking prednisone?...

https://connect.mayoclinic.org/comment/1286903/

Discussion: Kevzara and Prednisone Tapering before and during Kevzara

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 21 3:06pm

You have asked an interesting question. Nobody really knows how long PMR lasts except that prolonged...

https://connect.mayoclinic.org/comment/1283501/

Discussion: PMR relapse- anyone mild and quick recovery?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 16 4:39pm

PS important to keep a diary. I don’t always put a comment, although I did in...

https://connect.mayoclinic.org/comment/1293880/

Discussion: I’m just wondering how old most of you are with PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 30 10:07pm

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