Polymyalgia Rheumatica (PMR) Support Group

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Hi @svsmgm07, Welcome to Connect. Each of us are a little different when it comes to...

https://connect.mayoclinic.org/comment/924139/

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 4, 2023

Thanks Terry! It certainly sounds like the tapering has to be done by extremely small increments....

https://connect.mayoclinic.org/comment/946047/

Discussion: Has anyone else had pain return after reducing pred by only 2.5 mg?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 11, 2023

Thanks 😊 I have taken 2 doses of kevzara now and seen no improvement so far....

https://connect.mayoclinic.org/comment/945906/

Discussion: How does Kevzara help with PMR symptoms and pain? I am being weaned

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 11, 2023

I was on a very lose dose of prednisone of 10 mg. and I tapered off...

https://connect.mayoclinic.org/comment/946640/

Discussion: Has anyone else had pain return after reducing pred by only 2.5 mg?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 12, 2023

Thanks lungranger77! It sounds like getting off prednisone, or even tapering down the dosage, is a...

https://connect.mayoclinic.org/comment/948197/

Discussion: Has anyone else had pain return after reducing pred by only 2.5 mg?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 15, 2023

What a terrible doctor. I wonder what her response would be if she got hit with...

https://connect.mayoclinic.org/comment/948402/

Discussion: What are your rheumatologists using to stop the pain from PMR.?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 16, 2023

Thanks Daniece. I'm sorry you ended up with fractured vertebrae -- that's horrible! This is what...

https://connect.mayoclinic.org/comment/947189/

Discussion: Has anyone else had pain return after reducing pred by only 2.5 mg?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 13, 2023

Thanks dadcue. I'm sorry it took you so long to taper down to 15 mg of...

https://connect.mayoclinic.org/comment/949325/

Discussion: Has anyone else had pain return after reducing pred by only 2.5 mg?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 17, 2023

Hi Everyone, I was diagnosed with PMR in May, 2023. Have had a very good response...

https://connect.mayoclinic.org/comment/949631/

Discussion: Any suggestions getting or not getting RSV, flu, covid vaccines?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 18, 2023

Are your concerns about side effects from Actemra or that it might not work? I had...

https://connect.mayoclinic.org/comment/950387/

Discussion: PMR with normal blood markers

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 19, 2023

Hi nyxygirl. Thanks for the all the great info! It's amazing that you've been able to...

https://connect.mayoclinic.org/comment/950985/

Discussion: Has anyone else had pain return after reducing pred by only 2.5 mg?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 20, 2023

Welcome @nancygood, Sorry to hear your husband has been diagnosed with PMR. I don't have any...

https://connect.mayoclinic.org/comment/957319/

Discussion: Post PMR safety?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 1, 2023

Hi Ed. Diagnosed about a month ago. I am struggling to find answers and understand all...

https://connect.mayoclinic.org/comment/933858/

Discussion: A month into my diagnosis with PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 21, 2023

I'm not a doctor, but I also am confident I developed PMR after my 4th Covid-19...

https://connect.mayoclinic.org/comment/956461/

Discussion: Post PMR safety?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 30, 2023

Hitting PMR hard in the early stages has some merits. My ophthalmolgist and I successfully took...

https://connect.mayoclinic.org/comment/958318/

Discussion: How long has PMR lasted - I'm trying to find the average

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 3, 2023

I felt that creeping fatigue for about a week or ten days when I tapered from...

https://connect.mayoclinic.org/comment/958280/

Discussion: Chronic Fatigue while tapering Prednisone for PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 3, 2023

I also had one side done, came back negative. Still have mild headache most days. Figure...

https://connect.mayoclinic.org/comment/959183/

Discussion: Temporal biopsies to diagnose GCA: What's your experience?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 5, 2023

I am on my second taper. I am down to 1 1/2 mg prednisone. It's been...

https://connect.mayoclinic.org/comment/816883/

Discussion: PMR in cold or inclement weather

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 25, 2023

I had onset of symptoms in July of last year at 58 yrs old. It took...

https://connect.mayoclinic.org/comment/927981/

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 11, 2023

It is not easy to find the right dosage, but when you finally do you should...

https://connect.mayoclinic.org/comment/932837/

Discussion: New PMR patient, wondering if mornings will become pain free someday

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 19, 2023

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