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Don't get your hopes up too much because there isn't that much that can be done...
https://connect.mayoclinic.org/comment/1176848/
Hi @dadcue, I also find your posts very helpful and was hoping you could share more...
https://connect.mayoclinic.org/comment/1176500/
I am a 6 year veteran. first couple of years had 2 courses of prednisone. Each...
https://connect.mayoclinic.org/comment/1175220/
I'm not Therese but I currently do Actemra infusions. I actually started out doing Actemra injections...
https://connect.mayoclinic.org/comment/1175101/
I guess the thinking is that 5 days is not long enough to completely shut down...
https://connect.mayoclinic.org/comment/1172799/
"My recent tests showed adrenal insufficiency, after I had gone down from 5 to 4 mg....
https://connect.mayoclinic.org/comment/1171942/
Congratulations! Many of us are still on the tapper journey. I too sat for too long...
https://connect.mayoclinic.org/comment/1170534/
"Please let me know what all the problems I am going to have?" --------------------- You might...
https://connect.mayoclinic.org/comment/1169812/
Methotrexate works for many people but not for everyone. The trick is finding what medication works...
https://connect.mayoclinic.org/comment/1169607/
Question is how much pain is worth tolerating to keep reducing prednisone? ------------------------------- I don't think...
https://connect.mayoclinic.org/comment/1169421/
"So I can't be converted to a life-is-better-without-prednisone position till I have a reasonably good chance...
https://connect.mayoclinic.org/comment/1168311/
In my opinion, prednisone perpetuates PMR after the adrenals are suppressed. I wonder how many people...
https://connect.mayoclinic.org/comment/1162758/
If you are at 2.5 mg, I think it is important to have your cortisol level...
https://connect.mayoclinic.org/comment/1160511/
I started with Actemra (tociliumab) injections every 2 weeks. After a year, the injections were changed...
https://connect.mayoclinic.org/comment/1160479/
Hi @anncoco57, I had pain in the feet and legs including the back of my knees...
https://connect.mayoclinic.org/comment/1160297/
Hello all, so, my husband has had PMR since Oct last year. We started using a...
https://connect.mayoclinic.org/comment/1160289/
I understand how you feel. I was lucky that the right rheumatologist found me! The possibility...
https://connect.mayoclinic.org/comment/1156266/
My GP didn't really appreciate my need for an endocrine referral until my cortisol level was...
https://connect.mayoclinic.org/comment/1156038/
I had done a lot of internet research on my confusing symptoms and sudden extreme level...
https://connect.mayoclinic.org/comment/1155987/
I am sorry you are feeling so much pain. I have had a similar experience after...
https://connect.mayoclinic.org/comment/1153875/
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