Polymyalgia Rheumatica (PMR) Support Group

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Hello @loujc, Welcome to Connect. I've had 2 occurrences of PMR with the first lasting 3...

https://connect.mayoclinic.org/comment/870271/

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 1, 2023

Check out my previous reply to original poster. My rheumatologist won't give up. I have other...

https://connect.mayoclinic.org/comment/905335/

Discussion: Recommendations for PMR savvy rheumatologist in Washington DC/MD/ VA

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 31, 2023

@mikeshell Hmmm -- that is interesting tapering protocol - again i am curious - did your...

https://connect.mayoclinic.org/comment/907207/

Discussion: Trying to determine long term prednisone versus other prescriptions

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 3, 2023

Hello @jillrp, Welcome to Connect. @ghsmith only posted once and has not been back on Connect...

https://connect.mayoclinic.org/comment/906211/

Discussion: PMR Diet: Foods to eat and avoid

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 2, 2023

I never had a big problem with bruising and thin skin while on prednisone. I did...

https://connect.mayoclinic.org/comment/891329/

Discussion: How did you cope with the side effects tapering off prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 6, 2023

I started prednisone at 15mg per day, after a hiccup where my dr wanted me to...

https://connect.mayoclinic.org/comment/907952/

Discussion: How did you cope with the side effects tapering off prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 5, 2023

So sorry you are having trouble with your dosage of prednisone. PMR is a tricky condition...

https://connect.mayoclinic.org/comment/911149/

Discussion: New to PMR - Are Monthly Labs and Check-ups normal?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 11, 2023

Hi, For me the prednisone side effect included overall tiredness at times and napping during the...

https://connect.mayoclinic.org/comment/912835/

Discussion: Sleeping 9-10 hours with tapering Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 14, 2023

Hi, yes, I know anything above 20mg is unusual. Unfortunately, 40mg was the only level that...

https://connect.mayoclinic.org/comment/754791/

Discussion: PMR progressing to GCA? Broken vessels in eye

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 28, 2022

@johnbishop - I know you had two bouts of PMR but you were able to taper...

https://connect.mayoclinic.org/comment/919116/

Discussion: Does adrenal insufficiency with unregulated inflammation cause flares?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 26, 2023

I just had a similar experience tapering from 8mg of Prednisone to 7mg. I was in...

https://connect.mayoclinic.org/comment/897409/

Discussion: Does or has anyone suffered depression while on Prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 17, 2023

Hi there- So sorry you’re going through this, and I hope you find answers soon. You’re...

https://connect.mayoclinic.org/comment/902251/

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 25, 2023

15mg prednisone didn't do it for me. The morning after the first dose, no difference. The...

https://connect.mayoclinic.org/comment/903733/

Discussion: Do I have polymyalgia rheumatica?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 28, 2023

Welcome @debbieo123, Unfortunately PMR is not one of those 1 and done conditions. Once you start...

https://connect.mayoclinic.org/comment/903445/

Discussion: Do I have polymyalgia rheumatica?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 28, 2023

Thank you @bschoeni for the book recommendation. I’m supplementing my tapering with immune boosting supplements, and...

https://connect.mayoclinic.org/comment/903929/

Discussion: Tapering angst

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 29, 2023

Hi, I, too, exercise a lot but it really hasn’t protected me against the PMR set...

https://connect.mayoclinic.org/comment/905596/

Discussion: Tapering angst

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 1, 2023

My pain relief was within an hour or two of taking my dose of prednisone and...

https://connect.mayoclinic.org/comment/911132/

Discussion: New to PMR - Are Monthly Labs and Check-ups normal?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 11, 2023

Uveitis doses prescribed by my ophthalmologist usually took 60 mg to 100 mg to start with...

https://connect.mayoclinic.org/comment/889702/

Discussion: PMR Dosages and Managing Symptoms

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 3, 2023

I don't wish to suggest that Actemra is a perfect solution for PMR/GCA. My rheumatologist didn't...

https://connect.mayoclinic.org/comment/921731/

Discussion: Does adrenal insufficiency with unregulated inflammation cause flares?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 30, 2023

Doc said maybe a year. Better than prednisone but tapering down too fast of methotrexate could...

https://connect.mayoclinic.org/comment/923331/

Discussion: How to address PMR pain while decreasing prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 3, 2023

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