Polymyalgia Rheumatica (PMR) Support Group

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Comments (3,796)

"I want her to consider Actemra for me. Based on posts in this group, I think...

https://connect.mayoclinic.org/comment/1203893/

Discussion: How did you cope with the side effects tapering off prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 4 3:39pm

@nyxygirl, mtr2601, @linda7, @johnbishop, and all... I'm late to the conversation, but as a PMR and...

https://connect.mayoclinic.org/comment/1203876/

Discussion: What do you all think of #Social Media Listening ?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 4 3:24pm

There are certainly challenges to the 10% recommendation once you get below 10 mg. If it...

https://connect.mayoclinic.org/comment/1203635/

Discussion: How did you cope with the side effects tapering off prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 4 10:16am

I’m just going to hop in here because I’m having a horrible time and I don’t...

https://connect.mayoclinic.org/comment/1202503/

Discussion: How did you cope with the side effects tapering off prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 2 1:41pm

I had COVID Dec 16, 2023. Tested negative Dec. 27, 2023. Woke up Jan 11, 2025...

https://connect.mayoclinic.org/comment/1199772/

Discussion: Precursor symptoms to PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 29, 2024

I was diagnosed with spinal arthritis in June 2023, followed shortly thereafter by advanced OA in...

https://connect.mayoclinic.org/comment/1198682/

Discussion: Sciatic problems

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 28, 2024

Both Prednisone and Actemra can cause increased cholesterol levels. I took a atorvastatin for years when...

https://connect.mayoclinic.org/comment/1198529/

Discussion: Just Started Actemra

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 28, 2024

I was prescribed pt before I was diagnosed. After the first week, I was much worse...

https://connect.mayoclinic.org/comment/1198096/

Discussion: Physical therapy

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 27, 2024

I would say that if you're not having vision problems, you're probably ok staying on your...

https://connect.mayoclinic.org/comment/1197071/

Discussion: Worried about GCA

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 25, 2024

I can only speak from personal experience with Actemra (tocilizumab) which was offered to me 13...

https://connect.mayoclinic.org/comment/1193147/

Discussion: Starting KEVZARA: Anyone experience side effects?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 18, 2024

My uric acid level is elevated. I'm told to cut back on red meat and alcohol...

https://connect.mayoclinic.org/comment/1192961/

Discussion: PMR Diet: Foods to eat and avoid

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 18, 2024

I’m experiencing very similar symptoms as your description. I’m just at 10.5 mg of prednisone and...

https://connect.mayoclinic.org/comment/1189996/

Discussion: Back pain

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 13, 2024

Sorry ... I didn't realize you were from the UK. Someone told me the rules in...

https://connect.mayoclinic.org/comment/1188772/

Discussion: Flare

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 11, 2024

I also take Tylenol Arthritis. It does help, but I feel like I’m popping pills constantly!...

https://connect.mayoclinic.org/comment/1188278/

Discussion: Back pain

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 11, 2024

If you have intermittent flares of iritis, that generally isn't associated with PMR --- iritis is...

https://connect.mayoclinic.org/comment/1183593/

Discussion: Precursor symptoms to PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 2, 2024

I have AFIb and PMR. Trying to wean down the prednisone, currently at 9mg going to...

https://connect.mayoclinic.org/comment/1180245/

Discussion: Any of you with PMR also have afib and on blood thinners?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 26, 2024

One thing about PMR seems to be that everyone is different with their pain, response to...

https://connect.mayoclinic.org/comment/1179381/

Discussion: Confused on what’s considered “normal”

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 24, 2024

Wow! 120 is amazing! Great news for you! Well done! I haven’t been under 200 in...

https://connect.mayoclinic.org/comment/1178948/

Discussion: Effect of Statins on PMR pain

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 24, 2024

My experience with methotrexate was horrible nausea at first but I was able to taper prednisone...

https://connect.mayoclinic.org/comment/1178866/

Discussion: New Methotrexate Study in PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 23, 2024

I initially contracted PMR with a week after my second Pfyzer vaccination. I had a very...

https://connect.mayoclinic.org/comment/1177383/

Discussion: PMR Flair up From a Virus?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 21, 2024

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