Polymyalgia Rheumatica (PMR) Support Group

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Comments (3,994)

Before my diagnosis, it was a running joke in my family that mom falls down, it's...

https://connect.mayoclinic.org/comment/1306285/

Discussion: Falling or Tripping

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 17 2:19pm

There are many approaches for tapering off Prednisone. Learning which approach works the best for every...

https://connect.mayoclinic.org/comment/1328838/

Discussion: Tapering pain

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 17 5:20am

How is anyone supposed to know when PMR "burns out" or "self limited itself? If PMR...

https://connect.mayoclinic.org/comment/1048211/

Discussion: Adrenal Insufficiency and Tapering Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 10, 2024

This post is to help validate what John VM posted. I too thought i would be...

https://connect.mayoclinic.org/comment/1332264/

Discussion: Recently Diagnosed PMR Disease Progression

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 21 7:28pm

I was diagnosed with PMR right after my 70th birthday - I am under the care...

https://connect.mayoclinic.org/comment/638926/

Discussion: PMR Dosages and Managing Symptoms

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 25, 2021

I recall being similarly despondent at the same 8mg point when some morning pain and fatigue...

https://connect.mayoclinic.org/comment/1299269/

Discussion: PMR and the taper

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 7 4:42pm

The recommendation from the Endocrine Society in the USA in collaboration with the European Society of...

https://connect.mayoclinic.org/comment/1319706/

Discussion: Testing for Cortisol levels during taper of prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 3 6:53pm

I've been on Prednisone since Oct 2023. I am now on 1mg and trying to stop...

https://connect.mayoclinic.org/comment/1319677/

Discussion: PMR relapse symptoms

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 3 5:42pm

Hi LinaXYL, Just had to reach out to say that I have had about the same...

https://connect.mayoclinic.org/comment/1319328/

Discussion: Actemra Infusions

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 3 10:50am

I didn't start feeling any improvement until after my second infusion. That's when my energy levels...

https://connect.mayoclinic.org/comment/1318672/

Discussion: Actemra Infusions

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 2 1:39pm

"Pity it will never get rid of the OA. I think it just does a good...

https://connect.mayoclinic.org/comment/1320960/

Discussion: PMR (ending prednisone) and Osteoarthritis flare up

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 5 2:19pm

Welcome @nan50, It's good to hear that you have tapered to a low dose of prednisone...

https://connect.mayoclinic.org/comment/1319153/

Discussion: Knee pain and PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 3 7:38am

Had a relapse after three years off meds. Been on 10mg prednisone for a little over...

https://connect.mayoclinic.org/comment/1329805/

Discussion: Prednisone vs No Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 18 10:33am

Am very sorry to learn of your diagnosis. I've had Temporal Arteritis (GCA) for 7 years....

https://connect.mayoclinic.org/comment/88636/

Discussion: Adjusting to life with temporal arteritis

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 10, 2016

"A systematic examination of the peer-reviewed literature, which included 30 studies, found that most patients seemed...

https://connect.mayoclinic.org/comment/1295334/

Discussion: PMR tapering

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 2 7:57pm

I let PMR, it's management and the lifestyle/holistic interventions take over my life..that was ok when...

https://connect.mayoclinic.org/comment/1328888/

Discussion: Diet & PMR.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 17 7:09am

This is Helene in Georgia. I was so glad to come across this Connect! It has...

https://connect.mayoclinic.org/comment/1334735/

Discussion: PMR and the taper

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 25 8:56am

Welcome to the group. The usual suggestion is to increase your Prednisone dose back to where...

https://connect.mayoclinic.org/comment/1299001/

Discussion: PMR and the taper

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 7 11:07am

I am also interested in life after prednisone. I took my last dose in January. I...

https://connect.mayoclinic.org/comment/1334893/

Discussion: Symptoms after you stop prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 25 11:31am

Here's some information from perplexity.ai: For polymyalgia rheumatica (PMR), standard pain relievers like Tylenol (acetaminophen) are...

https://connect.mayoclinic.org/comment/1327768/

Discussion: Prednisone vs No Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 15 1:04pm

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