Polymyalgia Rheumatica (PMR) Support Group

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I've been tapering Prednisone by 2.5 mg every two weeks. It was going well - not...

https://connect.mayoclinic.org/comment/698605/

Discussion: Anyone have discomfort or pain when tapering off prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 13, 2022

I developed severe PMR basically on my 55th birthday. It went misdiagnosed for 2 months because...

https://connect.mayoclinic.org/comment/1044629/

Discussion: PMR onset under 55?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 3, 2024

Hi, i have had my struggles with tapering prednisone and at certain levels of dosage. What...

https://connect.mayoclinic.org/comment/791692/

Discussion: Good days and bad days

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 3, 2023

Hello @emma321, Welcome to Connect. Sorry to hear that you have joined the PMR club. My...

https://connect.mayoclinic.org/comment/707672/

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 12, 2022

Thats probably a good concern. The older we get the more susceptible we become. However if...

https://connect.mayoclinic.org/comment/1379504/

Discussion: I just started Kevzara and hope to tape of Prednisone., any advice?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 26, 2025

It could be the prednisone, but it could also be the PMR. I had a lot...

https://connect.mayoclinic.org/comment/1263476/

Discussion: PMR/prednisone/rotator cuff tear

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 21, 2025

Thank you John. Good to know cancern is on the list. Why not. I'm satisfied I...

https://connect.mayoclinic.org/comment/991438/

Discussion: Good days and bad days

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 4, 2024

I have had 15 treatments of ACTEMRA for GCA (I also have PMR) but wanted to...

https://connect.mayoclinic.org/comment/987495/

Discussion: Anyone tried Actemra (Tocilizumab) to treat PMR? FDA approved for GCA

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 28, 2023

Here is Mayo clinic comment on fatigue. I have included the link. I may have also...

https://connect.mayoclinic.org/comment/1083948/

Discussion: Aching chest/rib cage and exhaustion

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 9, 2024

Thinking about our various symptoms with a diagnosis of Polymyagia we should consider other possible causes...

https://connect.mayoclinic.org/comment/957215/

Discussion: Morning misery: Is prednisone effective 24 hrs? PMR and hands

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 1, 2023

So sorry you have to wait such a long time each day to feel better. I...

https://connect.mayoclinic.org/comment/699870/

Discussion: Morning misery: Is prednisone effective 24 hrs? PMR and hands

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 17, 2022

Hello. And thanks for sharing the knowledge and perspective from your experience with tapering prednisone. Next...

https://connect.mayoclinic.org/comment/997541/

Discussion: PMR Taper and pain

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 15, 2024

I too had my BP drop while on prednisone for PMR. It happened within a couple...

https://connect.mayoclinic.org/comment/1393329/

Discussion: Low blood pressure since being on prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 14, 2025

I hate to chime in on this one but I was diagnosed with shingles yesterday! I...

https://connect.mayoclinic.org/comment/1263079/

Discussion: Ugh, just been diagnosed with shingles, vaccine in one year?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 21, 2025

Welcome @usmwp111, I'm sorry to hear you developed PMR shortly after having the second shingles vaccine...

https://connect.mayoclinic.org/comment/998476/

Discussion: Had Shingles shot and now have PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 16, 2024

@MarianneJ We have a very similar story, except I lost the vision in my right eye...

https://connect.mayoclinic.org/comment/88777/

Discussion: Adjusting to life with temporal arteritis

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 15, 2021

I was diagnosed with GCA and PMR about 15 months ago. I am currently taking weekly...

https://connect.mayoclinic.org/comment/1397992/

Discussion: Almost off Pred, but Very fatiqued

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 21, 2025

I was diagnosed by bilateral biopsies with GCA after loss of eyesight in right eye in...

https://connect.mayoclinic.org/comment/1456940/

Discussion: Is Actemra (tocilizumab) for GCA worth the side effects?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 9, 2025

@mezack25 Hopefully splitting the dose will help you, but if it doesn't it seems like you...

https://connect.mayoclinic.org/comment/1500215/

Discussion: Off Prednisone but still feeling new type of pain

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 7 11:43am

It’s been 8 months since my Feb 26th post. Here is the update I said I...

https://connect.mayoclinic.org/comment/1176215/

Discussion: GCA prednisone vs. actemra infusion therapy

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 19, 2024

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