Polymyalgia Rheumatica (PMR) Support Group

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I know that I have stated this before in other threads, but not this one yet....

https://connect.mayoclinic.org/comment/794902/

Discussion: Immune system boosters

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 10, 2023

HI @flymetothemoon, I'm not sure your comment was meant for me. Starting with 40 mg, I...

https://connect.mayoclinic.org/comment/791892/

Discussion: PMR Dosages and Managing Symptoms

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 3, 2023

Hello, I am exactly where you are and had great success tapering 1 mg at a...

https://connect.mayoclinic.org/comment/791777/

Discussion: Tapering off of Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 3, 2023

66 year old male, 6-0 204 lbs. Woke one morning early September and unable raise arms...

https://connect.mayoclinic.org/comment/791608/

Discussion: PMR Dosages and Managing Symptoms

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 2, 2023

I’m new to this site and so glad I found it. I’m also fairly new to...

https://connect.mayoclinic.org/comment/750003/

Discussion: Tapering off of Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 15, 2022

Hi Meredith @meredith101, Welcome to Connect. Sorry to hear you joined the PMR club but you...

https://connect.mayoclinic.org/comment/748777/

Discussion: PMR: Pain moving around your body

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 12, 2022

I am so glad that my comments were helpful. I think the collective info and experience...

https://connect.mayoclinic.org/comment/745423/

Discussion: Prednisone tapering is challenging. What does remission feel like?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 4, 2022

Hi Mickie @njtodctode, It does sound like you may be tapering down too fast. My rheumatologist...

https://connect.mayoclinic.org/comment/745258/

Discussion: Prednisone tapering is challenging. What does remission feel like?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 4, 2022

I contracted PMR after my second COVID vaccination in March 2021 (? coincidence?) I have been...

https://connect.mayoclinic.org/comment/742672/

Discussion: PMR and exercise: What helps you?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 28, 2022

@hfoster, I've always been told to listen to my body and only taper when I had...

https://connect.mayoclinic.org/comment/741044/

Discussion: Prednisone tapering is challenging. What does remission feel like?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 24, 2022

Hi @vandyms1974, I read that about 30% of those with PMR develop GCA. I also read...

https://connect.mayoclinic.org/comment/751282/

Discussion: Anyone with PMR have experience with 4th COVID vax jab?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 18, 2022

Hello there, all of my PMR and giant cell arteritis symptoms came after my second vaccine...

https://connect.mayoclinic.org/comment/754237/

Discussion: Prednisone tapering is challenging. What does remission feel like?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 26, 2022

Oh my gosh - I didn't know the on-going inflammation can trigger GCA. That is scary!...

https://connect.mayoclinic.org/comment/753132/

Discussion: PMR and exercise: What helps you?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 23, 2022

Welcome @polykendancer, I am fortunate that my primary care doctor got me a referral to a...

https://connect.mayoclinic.org/comment/739239/

Discussion: PMR and Sciatica with Back Pain

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 19, 2022

@joeblo746 If you have PMR and are not getting enough prednisone your pain will not subside....

https://connect.mayoclinic.org/comment/738974/

Discussion: PMR Dosages and Managing Symptoms

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 18, 2022

Great questions @elizabethjoan. I think we are each different. I had similar episodes during my first...

https://connect.mayoclinic.org/comment/738383/

Discussion: Prednisone tapering is challenging. What does remission feel like?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 17, 2022

Hi, tillysam, You are correct. Your CRP and ESR don't necessarily have to be elevated for...

https://connect.mayoclinic.org/comment/736401/

Discussion: PMR Dosages and Managing Symptoms

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 11, 2022

@njtodctode Oh my gosh!! Yo-yoing is not good. Pain is not good. If 20 worked, I'd...

https://connect.mayoclinic.org/comment/736284/

Discussion: Extended release oxycodone-long-term use?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 11, 2022

Hello @njtodctode, Welcome to Connect. It does sound like your rheumatologist is right about it being...

https://connect.mayoclinic.org/comment/735802/

Discussion: Extended release oxycodone-long-term use?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 10, 2022

When I started to feel better, my Rheumatologist told me to taper slowly. 1/2 mg. Every...

https://connect.mayoclinic.org/comment/733340/

Discussion: Prednisone tapering is challenging. What does remission feel like?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 2, 2022

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