Polymyalgia Rheumatica (PMR) Support Group

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My Rheumatologist had me split the dose 2mgAM 2mgPM until I had some strong “PMRsymptoms/Prednisone Withdrawal...

https://connect.mayoclinic.org/comment/797423/

Discussion: New to PMR - Are Monthly Labs and Check-ups normal?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 16, 2023

After 2 plus years on prednisone, I have tapered to 1 mg for a month and...

https://connect.mayoclinic.org/comment/796013/

Discussion: PMR Dosages and Managing Symptoms

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 13, 2023

I find everyone’s experience, so interesting and different from one another. My naturopath recommended Cortrex, which...

https://connect.mayoclinic.org/comment/792837/

Discussion: PMR Flair up From a Virus?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 5, 2023

Last year I went from 11 to 7 fairly rapidly, but then my rheumatologist suggest we...

https://connect.mayoclinic.org/comment/791824/

Discussion: Tapering off of Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 3, 2023

My first occurrence lasted 3-1/2 years. 6 years after it went into remission it came back...

https://connect.mayoclinic.org/comment/789405/

Discussion: PMR - How will I know I am in remission?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 27, 2022

Hi @lyndee58, I had PMR for about six months before I started with GCA. I was...

https://connect.mayoclinic.org/comment/789042/

Discussion: Can the pain of PMR be aggravated from a stomach virus?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 26, 2022

Hi John. Thank you for your reply. Saw the Rheumatologist today. Definitely a Pmr flare up....

https://connect.mayoclinic.org/comment/787102/

Discussion: PMR Flare up: Any suggestions on what to do?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 20, 2022

I was told that PMR is more likely to go into remission than other autoimmune disorders....

https://connect.mayoclinic.org/comment/787042/

Discussion: PMR - How will I know I am in remission?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 20, 2022

Very sore and stiff in the am. Manageable by later afternoon. I take Tylenol 1000mg/day on...

https://connect.mayoclinic.org/comment/786655/

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 19, 2022

I'm on my fourth attempt to taper below 8 mg. My rheumatolagist believes that 1/2 mg...

https://connect.mayoclinic.org/comment/784205/

Discussion: Feeling tired! Do others with PMR feel significantly more tired?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 12, 2022

Welcome @charlesp, For both of my occurrences of PMR I was started at 20 mg prednisone...

https://connect.mayoclinic.org/comment/781857/

Discussion: PMR Dosages and Managing Symptoms

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 7, 2022

I had issues with lightheadedness while on methotrexate. Saw every specialist they could think of since...

https://connect.mayoclinic.org/comment/781149/

Discussion: Experience with Methotrexate?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 5, 2022

Hi Keelin. This is an interesting case as so many of us have considered Prednisone a...

https://connect.mayoclinic.org/comment/779642/

Discussion: Prednisone and Pain

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 1, 2022

I have been on Actemra for six months. It has allowed me to taper to 1...

https://connect.mayoclinic.org/comment/776265/

Discussion: Anyone tried Actemra (Tocilizumab) to treat PMR? FDA approved for GCA

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 22, 2022

Judy here- I've been taking monthly actemra infusions for 6 months. Much improved symptoms and able...

https://connect.mayoclinic.org/comment/776217/

Discussion: Anyone tried Actemra (Tocilizumab) to treat PMR? FDA approved for GCA

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 22, 2022

I was having trouble tapering below 10 mg prednisone/day...several months (~6 mos.) ago my Rheumy put...

https://connect.mayoclinic.org/comment/772572/

Discussion: Experience with Methotrexate?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 13, 2022

I've never had to use methotrexate. Prednisone was my magic pill for both occurrences of PMR....

https://connect.mayoclinic.org/comment/772402/

Discussion: Experience with Methotrexate?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 12, 2022

I am finally off of prednisone after over 1.5 years! I was on 1 mg. for...

https://connect.mayoclinic.org/comment/768639/

Discussion: Tapering

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 2, 2022

Ditto on the skin sensitivity....I have found that stopping my nighttime dose of ibuprofen and continued...

https://connect.mayoclinic.org/comment/763284/

Discussion: Skin changes with prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 20, 2022

I can’t tell you how thankful I am for this group. I’ve learned so much by...

https://connect.mayoclinic.org/comment/762756/

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 18, 2022

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