Polymyalgia Rheumatica (PMR) Support Group

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Hi @pmrsuzie, Welcome to Connect. I'm sorry to hear that you have been dealing with PMR...

https://connect.mayoclinic.org/comment/906271/

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 2, 2023

I'm sorry about your tapering setback. I'm relatively new (diagnosed 5/9), started prednisone at too low...

https://connect.mayoclinic.org/comment/905568/

Discussion: Tapering angst

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 1, 2023

Welcome, and glad you found the group while you’re going through this. @johnbishop provided some great...

https://connect.mayoclinic.org/comment/903462/

Discussion: Do I have polymyalgia rheumatica?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 28, 2023

Good morning, Quick recap on my PMR. Diagnosed in May 2023, started on 25 mg. Prednisone,...

https://connect.mayoclinic.org/comment/901775/

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 25, 2023

@gaylerenee Age might be a factor. I omit part of what my rheumatologist told me when...

https://connect.mayoclinic.org/comment/900826/

Discussion: Weaning off long term use of prednisone.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 23, 2023

My doses of prednisone were 10 mg or more for 12 years. I talked to my...

https://connect.mayoclinic.org/comment/900666/

Discussion: Weaning off long term use of prednisone.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 23, 2023

I noticed you mentioned in a different post that you're also taking methotrexate and soon to...

https://connect.mayoclinic.org/comment/899913/

Discussion: Successfully treated for Polymyalgia Rheumatica

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 21, 2023

fatigue and weakness for me too, I had to increase the prednisone dose from 5 to...

https://connect.mayoclinic.org/comment/899488/

Discussion: Successfully treated for Polymyalgia Rheumatica

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 21, 2023

Hello @gerryandnancydupont, Welcome to Connect. What you are describing doesn't sound like the typical onset of...

https://connect.mayoclinic.org/comment/896964/

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 16, 2023

Not sure this is correct place to respond. Diagnosed 5/23. Started on 30mg of prednisone and...

https://connect.mayoclinic.org/comment/896069/

Discussion: How did you cope with the side effects tapering off prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 15, 2023

How is it going with Kevzara? I am self-injecting weekly with Actemra, which is also a...

https://connect.mayoclinic.org/comment/895854/

Discussion: Kevzara (sarilumab) to treat PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 14, 2023

Hi @ vellen….I just noticed that you have fibromyalgia as well as PMR. I’m thinking I...

https://connect.mayoclinic.org/comment/895420/

Discussion: Trying to determine long term prednisone versus other prescriptions

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 14, 2023

One would hope PMR patients of the future will have better options than prednisone. I took...

https://connect.mayoclinic.org/comment/892625/

Discussion: Kevzara (sarilumab) to treat PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 9, 2023

You wrote: "How are you doing with Actemra?" Actemra seems to be working well for me,...

https://connect.mayoclinic.org/comment/891301/

Discussion: Kevzara (sarilumab) to treat PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 6, 2023

Hi @johnarbaugh, You will notice that we moved your post to an existing discussion on tapering...

https://connect.mayoclinic.org/comment/891164/

Discussion: How did you cope with the side effects tapering off prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 6, 2023

Hi @johnbishop, Thanks so much for sharing your story with me. I have to say I...

https://connect.mayoclinic.org/comment/890554/

Discussion: What steroid dosage did you start on? Did you find the right dosage?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 5, 2023

I will try to answer your questions but I don't have any experience with Kevzara. My...

https://connect.mayoclinic.org/comment/889954/

Discussion: Kevzara and Prednisone Tapering before and during Kevzara

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 4, 2023

Hi @bruce1951vet, It took me 3 and half years to taper off of prednisone my first...

https://connect.mayoclinic.org/comment/889839/

Discussion: What steroid dosage did you start on? Did you find the right dosage?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 4, 2023

I began with 20mg (5/13) of prednisone and got some relief but there was still some...

https://connect.mayoclinic.org/comment/888675/

Discussion: What steroid dosage did you start on? Did you find the right dosage?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 2, 2023

I would like to weigh in about PMR coming on gradually. My symptoms began in Jan....

https://connect.mayoclinic.org/comment/888645/

Discussion: Can PMR come on more gradually?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 2, 2023

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